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Pudendal Nerve Entrapment/Neuropathy/Damage

Chronic Pain | Last Active: Feb 13 8:28pm | Replies (547)

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@nickyfriskel

No one can understand the pain.... I've had years of worsening pain... As well as being diagnosed with an autoimmune disease.... I don't hold back talking about it to be honest... But because of the personal nature a lot of people don't care to listen!! I feel your pain and I can sympathize....

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Replies to "No one can understand the pain.... I've had years of worsening pain... As well as being..."

The feeling of pain is personal. I have spent way too many years experiencing and talking about mine to too many people. Some were sympathetic some as you said don’t care to listen. I have never looked for sympathy from anyone. The people who caused my pain never care about how they hurt me. As for the people who felt bad for me, they were my friends and family. I still feel bad for people who I hear and see in some of painful situation. The main reason for this is I can’t stop it. I know no one can stop mine. What I find ironic is that I have had a lifetime of painful situations caused by people in my life. The ironic part is that I went for help for a medical problem and was told by them that they would fix that medical problem and I wouldn’t have any more pain. What happened is just the opposite. Now I am in constant pain with no cure for the damage they did. To make a mole hill into a mountain it caused hypersensitivity in the syndrome of Central Sensitization. I am not a doctor but the truth be told, neither were these people, and there have been a lot of them. “ Doctors due no harm”, is suppose to be something that doctors were supposed to pledge themselves to. They failed with me. I know that Central Sensitization Syndrome has a genetic origin and I would qualify for that as I was probably born with hypothyroidism. This is what made a more sensitive, physically and mentally. I was very healthy and active most of my life, so no one knew I had this medical problem. I was never tested by a doctor until I was 45. Men don’t usually have a thyroid problem seems to be the way doctors think. When I finally found doctors who were interested in helping me and they took the time to listen to my history, they saw that I had symptoms that should have razed red flags. What I do find disturbing is that so many doctors don’t no anything about Central Sensitization Syndrome. They also know very little about Thyroid disease. On top of that they know very little about pain.

FYI.... Did y'all know that pudendal is Latin for shame! Just thought I'd share that snippet... Dang!!!