1. < MAC & Bronchiectasis

Anyone from Canada?

Posted by amn17 @amn17, Sep 19, 2018

I would like to connect with anyone from Canada...

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Note from the Moderating Team
In addition to connecting with fellow Canadians here on Mayo Clinic Connect, you can also reach out to the

Bronchiectasis/NTM Organization of Canada
Esther Steinberg, Lead
Canada@ntminfo.org

See the contact information for Canada and other country support groups here: https://ntminfo.org/local-support-groups/

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

rampa | @rampa | Dec 28, 2018
In reply to @margiebanks "@rampa Very sorry to hear about your son, so young. There are a few people on..." + (show)
@margiebanks

@rampa Very sorry to hear about your son, so young. There are a few people on here from Canada, most recently I saw @amn17 from Vancouver. If you're using a computer you can also use the search bar on this site by typing in "Vancouver bronchiectasis" and press the hourglass to the right which will take you to other members with that criteria. If you're using a smartphone, type in your search subject and press "go" which is on the lower right corner of the keyboard on your phone. There's actually 2 search bars when I pull up the site and I have to use the second one, still press "go" on my phone. Hope I didn't confuse you. Best of luck to you and your family.

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Thanks Margie

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rampa | @rampa | Dec 28, 2018
In reply to @amn17 "@rampa Im in vancouver" + (show)
@amn17

@rampa Im in vancouver

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Hi amn17,

Does being in coastal & moderate temperature help you? If you dont mind me asking, how often do you get infected?

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1 reply
amn17 | @amn17 | Dec 29, 2018
In reply to @rampa "Hi amn17, Does being in coastal & moderate temperature help you? If you dont mind me..." + (show)
@rampa

Hi amn17,

Does being in coastal & moderate temperature help you? If you dont mind me asking, how often do you get infected?

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@rampa Yes Vancouver has clean air because its very green and clean. I don't get infected much really due to environment. Good city, good choice. Does your son has NTM or just bronchiectasis?

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1 reply
rampa | @rampa | Dec 29, 2018
In reply to @amn17 "@rampa Yes Vancouver has clean air because its very green and clean. I don't get infected..." + (show)
@amn17

@rampa Yes Vancouver has clean air because its very green and clean. I don't get infected much really due to environment. Good city, good choice. Does your son has NTM or just bronchiectasis?

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Good to hear that you dont get infected often. Hoping my son feels better too once we are there. My son has bronchiectasis. BTW what is NTM?

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1 reply
amn17 | @amn17 | Dec 29, 2018
In reply to @rampa "Good to hear that you dont get infected often. Hoping my son feels better too once..." + (show)
@rampa

Good to hear that you dont get infected often. Hoping my son feels better too once we are there. My son has bronchiectasis. BTW what is NTM?

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@rampa It's Non tuberculosis mycobacteria a bacterial lung disease and has different strains of bacteria like Mac, etc. Usually if you have Bronchiectasis you might have other lung diseases but not sure in your case. Would be good to get checked when he is here.

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Mentor
Terri Martin, Volunteer Mentor | @windwalker | Jan 5, 2019
In reply to @rampa "Hi, My son was diagnosed with bronchiectasis when he was 9 years old; he is now..." + (show)
@rampa

Hi, My son was diagnosed with bronchiectasis when he was 9 years old; he is now 15 years. We currently live in Bangalore, India and he had a rough year with multiple infections & psedomonas. Our Pulmonologist here has advised us to move to any place with better air quality & less population.We have decided to move to Vancouver, BC in April. Anyone on this group from Vancouver?

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@rampa Hello, and welcome to our group. I have not had amember report such a young person as your son with bronchiectasis. There is another member here in Vancouver, she is @amn17. I am curious, what made you choose Canada to move to?

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juni | @juni | Dec 5, 2023

Hi, recently been diagnosed with Bronchiectasis. Is anyone from Atlantic Canada? I'm from Nova Scotia.

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kaymr | @kaymr | Apr 5, 2024
In reply to @amn17 "@megan123 Im in Vancouver." + (show)
@amn17

@megan123 Im in Vancouver.

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I am in Vancouver area..would love to connect!

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kaymr | @kaymr | Apr 5, 2024

I am in the Vancouver area - Squamish, B.C. I am interested in connecting with anyone from BC..it seems the treatment in Canada - West Coast is different from the US..re mild bronchiectasis, no MAC..my pulmonologist prescribes low dose Symbicort.

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kathyhg | @kathyhg | Apr 6, 2024

I am in Ontario, near Toronto. I have bronchiectasis and mac, both diagnosed just over 5 years ago.

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