Anyone have tips on sun protection?

Posted by jolinda @jolinda, Sep 11, 2018

I've known that for a long time that transplant patients need to be especially careful when it comes to sun protection because we are more susceptible to skin cancer. In just the last month I have learned about two tips that were new to me:
1. At my annual Dermatologist appointment I learned that I should be reapplying sunscreen every few hours throughout the day. Yikes, I didn't realize this!
2. A fellow kidney transplant patient told me he purchased specialty sun protection clothing for wearing outside. Who knew?
I am wondering if any of you have other tips or tricks for sun protection that are just as valuable. Please share!

MODERATOR'S NOTE
The knowledge exchange shared in this discussion helped to create this article written for the Mayo Clinic app. Knowledge for patients by patients and beyond Mayo Clinic Connect.
– Transplant recipients share their best sun safety tips https://www.mayoclinic.org/CPT-20514169

Interested in more discussions like this? Go to the Transplants Support Group.

@judyth

I found out how strong sun rays are thru car windows when I drove to NM from MN in late fall a few years ago! I was stunned at how dark my arms were!! I now always cover my body in long sleeves, lotion and put up detachablble/see-thru screens on the side windows!! I had skin cancer on my nose that left a deep snaky scar.

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@judyth - one of the links that I posted earlier today, actually mentions that issue, and notes how the sun affects the left side for the driver.
I hope that you are doing well.

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@gingerw

@jolinda I am glad to have brought that to light. Some background on that from my story. In 1988 I was diagnosed w/ systemic lupus, and had severe light sensitivity. My rheumatologist prescribed tinted windows. Here in CA, windows on driver's and front passenger doors must remain clear. I have had tinted windows for 30 years, and have had numerous traffic stops for my windows. The only actual citation I received, was fought in court, along with a lot of documentation. My basic argument was that not allowing my tinted windows sentenced me to living like a vampire, and robbing me of any semblance of normal life. The judge threw the case out; the officer was livid. Now w/ multiple skin cancers, my tinted windows have been a factor to protect me, along w/ sunscreen. My malignant melanoma BTW, was on right forearm, and took flap surgery w/ 32 stitches. I lost muscle, tissue, and nerves, so it is an everyday reminder, right in my face, of what can happen.
Ginger

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I am so sorry to hear about your experience. You have helped more people than you will ever know by sharing your story.
I send you a hug.

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@jolinda

Ever since @gingerw mentioned getting sun through the car windows I've found myself being very aware of this. It's actually incredible how much time I spend driving around with sun directly on me. Has anyone else noticed this too? Maybe I need and SPF shirt in the car with to slip on from time to time as added protection? Thanks @gingerw for bringing this to my attention, who knows it may save me a skin cancer problem down the road (pun intended)!

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@jolinda, I like the Coolibar UVA clothing. I think it is made in MN. And it is soft and quite fashionable. There are specifications for all sorts of activities (swimming, active/moisture wick/casual/dressy/shawls and accessories) Right now there are a lot of items on sale for end of season. http://www.coolibar.com

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@estrada53

After my heart transplant, I was told by a Phoenix Mayo dermatologist that I had 45-260% more chance of getting skin cancer than other folks. That certainly made me consider everything I was doing. I have become a "hat" woman and rarely wear sleeveless shirts unless I'm outside very early in the morning. I check the UV index during the day if I plan to be out of the house and dress appropriately. I also use a facial foundation/moisturizer that contains a 40 SPF. Neutrogena makes a sheer sunscreen 55 SPF that is very lightweight and not smeary on the skin. You can pick it up at Costco. I think most brand name sunscreens are safe to use. I remember my mother smattering us with zinc oxide during summer because we spent the entire time outside for three months while growing up. You can always use that. I live in Tucson and exercise in my pool usually after 4 or 5 pm. I do use a rash guard shirt. I think it has that name to protect against any abrasion that could cause a rash, including sun rash. I am so grateful to have this time to live life and I promised my surgeon I would take care of this new heart.

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@estrada53, I like the neutrogena products also!

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@jodeej

@contentandwell @gingerw @rosemarya do you put on sunscreen every time you go outside, no matter for how long? My husband and I have gone on walks and etc and he hasn't applied any since it was just for a short time. He hasn't had any color, much less a burn. I'm just wondering if we should be more diligent.

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@jodeej, You and your husband are new to all of these Life Changes after Transplant - You will soon realize that healthy practice become a habit. And they will be just like brushing your teeth- or washing hands - part of your normal daily routine.

My theory is - "When in doubt, take the precaution". I don't have any problem at all with being super vigilant about my self care.

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@rosemarya

I found some interesting information that I would like to share in this conversation. I think that these will show that we are heading in the right direction:-) What do you think?

Sun Hazards in Your Car
https://www.skincancer.org/prevention/are-you-at-risk/sun-hazards-in-your-car

How Do I Protect Myself from UV Rays -
https://www.cancer.org/cancer/skin-cancer/prevention-and-early-detection/uv-protection.html

Best sunscreen: Understand sunscreen options -
https://www.mayoclinic.org/healthy-lifestyle/adult-health/in-depth/best-sunscreen/art-20045110

Mayo Clinic Q and A: Sunscreen Best Practices -
https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-q-and-a-apply-sunscreen-generously-and-frequently-for-full-protection/

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@rosemarya I had to be a rebel. My malignant melanoma was on right forearm, and was amelanotic, meaning non-colored. It took me going to three drs to convince one to do a biopsy. Then it was such a surprise they wrote a paper on it. All my car windows are tinted ;))
Ginger

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@gingerw

@rosemarya I had to be a rebel. My malignant melanoma was on right forearm, and was amelanotic, meaning non-colored. It took me going to three drs to convince one to do a biopsy. Then it was such a surprise they wrote a paper on it. All my car windows are tinted ;))
Ginger

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@gingerw that is terrifying! I am so glad you pushed the subject. Please tell us more. If it wasn't a strange color how did you know something was wrong?

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@jolinda

@gingerw that is terrifying! I am so glad you pushed the subject. Please tell us more. If it wasn't a strange color how did you know something was wrong?

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@jolinda I am red haired and blue eyed. Over the course of my life there were a couple of serious burns, plus years of working outside in all kinds of weather. Sun protection was not touted by society nor medical professionals at that time. In early 2008 I had a spot on right forearm that would get angry red for a few days, then return to slight discoloration and sometimes itching. Since I had had basal cell skin cancers for years, I asked first my primary, then his Nurse Practitioner about it, but they were more concerned w/ a spot on my face. The area was getting larger with irregular borders. When I went to dermatologist for biopsy on spot on face, I convinced him to do one on my arm also, even though all 3 said "it's nothing". Now I sport a 32 stitch scar shaped like a dog bite, loss of nerves and tissue, and am reminded everyday that I am my own best advocate, and need to speak up. I just knew there was something wrong.
Ginger

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@gingerw

@jolinda I am red haired and blue eyed. Over the course of my life there were a couple of serious burns, plus years of working outside in all kinds of weather. Sun protection was not touted by society nor medical professionals at that time. In early 2008 I had a spot on right forearm that would get angry red for a few days, then return to slight discoloration and sometimes itching. Since I had had basal cell skin cancers for years, I asked first my primary, then his Nurse Practitioner about it, but they were more concerned w/ a spot on my face. The area was getting larger with irregular borders. When I went to dermatologist for biopsy on spot on face, I convinced him to do one on my arm also, even though all 3 said "it's nothing". Now I sport a 32 stitch scar shaped like a dog bite, loss of nerves and tissue, and am reminded everyday that I am my own best advocate, and need to speak up. I just knew there was something wrong.
Ginger

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@gingerw I'm so sorry to hear you have such a significant scar but Thank God you got out with your life! I am glad you shared the details, I am redheaded and have fair skin too and every year I have a growing "age spot" that they say is nothing. I will be much more aggressive at my next check up. Thanks for the dose of courage!

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@gingerw

@rosemarya I had to be a rebel. My malignant melanoma was on right forearm, and was amelanotic, meaning non-colored. It took me going to three drs to convince one to do a biopsy. Then it was such a surprise they wrote a paper on it. All my car windows are tinted ;))
Ginger

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@gingerw - Thank goodness that you were super vigilant and that you advocated fro yourself!

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