Is this advice from your dr.?

@jodeej, Please don't do any adjusting of meds. Your husband's transplant team is the only one to do this. If you have any questions talk to them.
From personal experience, my immunosuppressant levels were adjusted frequently in the early months and years of my transplant. Now, 9 years post transplant, I have labs every 3 months, and the tacrolimus (prograf) level is carefully monitored.

@jodeej I can’t believe how long I went without this occurring to me. I believe the least amount of any drug we can take is best, there are definite long term effects to all of them. It was easier and more convenient to take them with food but I feel good that I can now take a lower dose.
JK

@dogwood928 I cleared it with my doctor and they put me back on weekly monitoring for a few weeks.
JK

@jodeej @rosemarya absolutely never make changes without checking with your doctor.
Rosemary, do you take your tacrolimus with, or without food? If without, how do you time it?
JK

@rosemarya I wouldn't adjust the dosage, just maybe when Tim eats in regards to when he takes his meds.

@contentandwell, You have brought up an interesting perspective. And, I know that you would have consulted with your doctor because I have come to know that you are a very dedicated transplant patient! I didn't mean to imply otherwise; my intention was to stress to any readers the importance of consulting with medical team before any changes.

I take my tacrolimus and my cellcept at 12 hour intervals. I have already eaten breakfast before my 8 AM dose, and also have had my dinner before my 8 PM dose. I have to confess that I don't remember what I was told about "with or without" food. All that I can remember for certain is that at some point early in my post transplant period, my team said to continue to do what I am doing. So that is what has worked for me for 9+ years.

I have several purse/pocket pill containers and I always take a does with me if I am going to be away for the day.

Here is something else -
I get my anti rejection meds thru the Mayo Specialty Pharmacy, and they will do a periodic survey to monitor my compliance to taking my immunosuppressants. One question I always get is, "How many times in the past (time period) have you been either 2 hours late or early with your immunosuppressant medicines?"

@jodeej, Whatever is decided. My tip is to make it something that fits his lifestyle. Remember that he will be on antirejetion meds for rest of his life.
This would be something good to ask at the 4 month checkup.

Hi, @dogwood928, Welcome to the Transplant Group. I don't think that I have met you before. (forgive me if I am incorrect).
I received a combined liver and kidney transplant in 2009 at Mayo Rochester. I absolutely love your online name - it reminds me of the beautiful dogwood trees that bloom in my home state in the springtime !
Are you a transplant recipient, or a caregiver?

@rosemarya we've talked to them about possibly needing to adjust the timing of taking his meds. Here will have to be to work by 7:00 a.m.when he returns, so we need to decide what will be the best time for him to take them. My concern is that if he's busy at work at 8:00 that he won't stop what he is doing to take them and then forget.