Tingling in arms and legs - will this get worse? Can I still function?

Posted by mary505 @mary505, Aug 12, 2018

My symptoms began a year and a half ago. I had Sciatica pain, foot drop and foot tingling - all on left side. Physical therapy greatly improved the foot drop and pain was gone after 2 months. But tingling has spread - it's now in both hands, arms, legs and feet.

MRIs have shown I have disc degeneration and herniated discs in both neck and lower back. Before the arms started tingling, I had seen surgeon who recommended surgery. I have not done that and I'm concerned about permanent nerve damage. Will this get worse? Will that prevent me from doing normal things - like driving or holding things?

Thank you for any information you can provide!

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Hello @mary505 . Please, before you consider anything done for your condition make sure you try all the alternatives possible. No steroid or nerve block injections, no good, they don’t cure anything.
Good look to you !!!

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I suggest you try platelets lysate injections first

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@mary505

First, welcome to the forums. I am new to this myself and, in a short time, have found that the people here are very supportive, caring, and encouraging.

I am sorry to hear about what you're going (through). While I have no way of knowing what will happen regarding your condition, I do get a sense of how this is affecting you. I started to experience intermittent burning/tingling sensations in my feet last month. It negatively impacted my eating and sleeping. I was a mess. The mental battle was the worst part. I sought help from a therapist to deal with the worry/anxiety. Frankly, the worry physically and mentally drained me. I have, for the most part, reached a point where I have accepted the situation. The worry is still there and does affect me at times, but not as bad as it did 30 days ago.

You didn't mention how your experience is impacting your life other than physically. If you are dealing with issues regarding worry/anxiety or this is having a negative effect on your life in other areas I would highly suggest seeking help from a therapist or your doctor. It's not easy to wait to see a doctor, run the tests, get a diagnosis, and then see what can be done to resolve the problem (if possible). As Tom Petty sang, "The waiting is the hardest part." It's handling the time while waiting that can be very hard.

There is a member of the forum named John that I've found to be extremely helpful. He tells people to learn what they can about their condition and be their own advocate. I'm sorry if I wasn't helpful regarding your medical condition, but hope I was of some assistance if it's been bothering you in other ways.

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@sinjin

@mary505

First, welcome to the forums. I am new to this myself and, in a short time, have found that the people here are very supportive, caring, and encouraging.

I am sorry to hear about what you're going (through). While I have no way of knowing what will happen regarding your condition, I do get a sense of how this is affecting you. I started to experience intermittent burning/tingling sensations in my feet last month. It negatively impacted my eating and sleeping. I was a mess. The mental battle was the worst part. I sought help from a therapist to deal with the worry/anxiety. Frankly, the worry physically and mentally drained me. I have, for the most part, reached a point where I have accepted the situation. The worry is still there and does affect me at times, but not as bad as it did 30 days ago.

You didn't mention how your experience is impacting your life other than physically. If you are dealing with issues regarding worry/anxiety or this is having a negative effect on your life in other areas I would highly suggest seeking help from a therapist or your doctor. It's not easy to wait to see a doctor, run the tests, get a diagnosis, and then see what can be done to resolve the problem (if possible). As Tom Petty sang, "The waiting is the hardest part." It's handling the time while waiting that can be very hard.

There is a member of the forum named John that I've found to be extremely helpful. He tells people to learn what they can about their condition and be their own advocate. I'm sorry if I wasn't helpful regarding your medical condition, but hope I was of some assistance if it's been bothering you in other ways.

Jump to this post

Thank you for your reply. This condition has sort of taken over my life. I am concerned that if this progresses to permanent nerve damage that I’ll lose ability to perform basic functions. But don’t know where to turn next to get more info/help.

I don’t think I need therapy, but will keep that in mind. Just looking for next steps. I have been going to clinic that is using traction, PT, Chiro adjustments but no improvement after 2 months.

Have been told to go to PT that specializes in neurology. May try that next. But wondered if there were other recommendations?

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@marinelastef

Hello @mary505 . Please, before you consider anything done for your condition make sure you try all the alternatives possible. No steroid or nerve block injections, no good, they don’t cure anything.
Good look to you !!!

Jump to this post

Thank you. I'm trying to learn what the alternatives are.....

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@nkhan1958

I suggest you try platelets lysate injections first

Jump to this post

Thank you. I've never heard of this but will certainly look into it!

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Hi you stated that a surgeon said you needed surgery. I can only speak from experience, so if you are worried about getting worse go get a second opinion for surgery. I had 2 neck surgeries and if I could do it all over again I would not have waited for the 2nd. I have nerve damage so bad in my arms n hands, its horrible. I would get a 2nd opinion about the surgery and go from there. Don't wait.

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Hi @mary505,
Welcome to Connect. I am happy to see that others have responded to your post and shared their health experience and suggestions. I can understand your fears about will it get worse. It's a normal reaction to an uncertain future. As a volunteer mentor with no medical training or background, myself and others can't offer medical advice. We can share our own personal experiences and treatments that have worked for us.

I agree with @sdemaria that if a surgeon said you needed surgery to fix it and you are worried it's going to get worse if you don't do something that helps, why not seek a second opinion for the surgery or from another neurologist. I don't think anyone likes or wants surgery but sometimes it is the last option on the table and it would be good to either rule it out or confirm that is what is needed.

I'm glad you shared your post on Connect and asked questions. It's one of the first steps in learning to be your own advocate. The more you know about your health, the better questions you ask your doctor which hopefully will help provide a better treatment plan.

Hoping you find some answers soon.

John

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Thanks John, I was a victim of my first neck surgery. I had a screw sticking out and the surgeon told me it was phantom pain. Finally, I went to 2nd surgeon and found this out. I now suffer from pain everyday in my arms n hands n fingers. But my neck shoulders n head are pain free. So I highly recommend she gets a 2nd opinion.

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@johnbishop

Hi @mary505,
Welcome to Connect. I am happy to see that others have responded to your post and shared their health experience and suggestions. I can understand your fears about will it get worse. It's a normal reaction to an uncertain future. As a volunteer mentor with no medical training or background, myself and others can't offer medical advice. We can share our own personal experiences and treatments that have worked for us.

I agree with @sdemaria that if a surgeon said you needed surgery to fix it and you are worried it's going to get worse if you don't do something that helps, why not seek a second opinion for the surgery or from another neurologist. I don't think anyone likes or wants surgery but sometimes it is the last option on the table and it would be good to either rule it out or confirm that is what is needed.

I'm glad you shared your post on Connect and asked questions. It's one of the first steps in learning to be your own advocate. The more you know about your health, the better questions you ask your doctor which hopefully will help provide a better treatment plan.

Hoping you find some answers soon.

John

Jump to this post

Thank you, John

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