Frustrated & Done

@lauraleaisme Hi Welcome to this site you can get alot of good info here Im a retired nurse and have alot of back problems from L2fracture thay has given me both bowel and bladder ,and nerve problems ,bulging disc fused L5S1 plus fi bromyalgis I do alot of naturel stuff to help me Haveyou tried water Aerobics its easier on your joints,ice can give you comfort as well as a hot shower moist heating pad ,I recently started CBD cream and rub on trigger points for my fibromyalgia Epsom salts wring out a washcloth and apply to muscles ,vinegar in water does same for muscles Id like to invite Gailb to gi ve you her experiences These are just some of things that help me I am on 1TrAmadol 50 mg or 2if needed.

My story is almost exactly like yours. I have the same neck and back issues. Doing two therapies, nothing is working. I went to have extensive blood work done to see where all of the inflammation was coming from and now they think it’s Lupus. I’ll know for sure next week. If I do, that will be 6 Autoimmune diseases. I started with MS 18 years ago. Have you been tested for Lupus?

Yes. I have seen rheumatologist and have extremely high ANA but al other blood work comes out ok. I see this doctor next month and if all tests come back normal she said I don’t have to come back. Lupus came back negative as all the other testing. I have a lot of inflammation also just no answers.

Thanks for your suggestions. I use all the things you do and get short term results. I ice several times a day, moist heat and baths, and stretching, and changing positions. Doctors say sorry I don’t know what is wrong, can’t help you. I had an OT tell me she could no longer treat me because she was not comfortable due to nerve issues in my neck and at the same time others say there is nothing wrong, or it shouldn’t hurt that much. Very frustrating.

@lauraleaisme Im sorry Dr,s cant give you any answers I was reading an interesting article on WebMD that talked about the Epstein -Barr. Virus In my 20,s I developed a bad case on Mononucleosis caused by this virus I had the rash with it ,extreme fatigue white spots in mouth,throat ,fever ,these where symptoms Dr did blood work and my count was 1600 she put me on bedrest for a month hugh doses of Vitamins which I still take a vit-min every day but often have wondered if this virus which lies dorment in our bodies , is the cause of so many of our problems today According to WebMD which I research on alot EBV is a herpes virus the one that causes coldsores ,shingles ? Just throwing this out there You can have them do a blood test for this .Ginger-turmeric tea is wonderful for inflammation .As a retired nurse I like to help people ,not physically now as Im 75 but with research or knowledge I have.

Thanks.

Thank you so much. I feel so hopeless right now. Lots of frustration with doctors!

So sorry. I know you are frustrated.

It is so good you got yourself off the meds. Have you tried a pain rehabilitation program? A friend of mine went through Mayo's three-week program and increased his quality of life quite a bit, enabling him to even travel etc. It is worth trying this if your insurance covers it. Mayo has a 2-day program also (though if it was possible, I'd sure prefer the 3-week one).

Thanks. I am currently in PT. It has been 4 months and I am no better. They are working under the concept of central sensitivity. I am ready to stop going. Mayo has a video about central sensitivity but do not know any more about it. I live in Ohio and do not have money for overnight accomidations. Not sure where to turn or to just take a break from every treatment.