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lauraleaisme
@lauraleaisme

Posts: 8
Joined: Jun 23, 2018

Frustrated & Done

Posted by @lauraleaisme, Fri, Aug 10 1:47pm

I have had chronic pain in my neck and back for 3 1/2 years. I have been to 14 different doctors, providers, and therapy. Currently I go to occupational therapy for myofascial release and physical therapy for central sensitivity. The occupational therapy helps some. But I am questioning the physical therapy for almost 4 months I am no better off than when I started. I have pain when I sit, when I stand, and when I walk. I rotate my position every 30 minutes so I don’t get more pain. I am at the point where enough is enough. With no answers and continued pain. I had been prescribed opioid pain meds and have been taking them for three years. I did not want to get addicted or overdose so I wean myself off of them. It was hard and lots of with drawl but I am currently on no pain meds. I had been taking 12 different medicines every day. The pain meds made it worse. I am not sure where to go from here but I’m struggling with driving to appointments and the gas in my car since I’ve had no income for three and half years. I also have fiber myalgia, IBS, headaches, short term memory problems that have been documented, Arthritis, hip pain, depression, and anxiety. I have gained a lot of weight due to not working or moving over the past 3 1/2 years. Any thoughts, recommendations, or support would be welcome.

REPLY

@lauraleaisme Hi Welcome to this site you can get alot of good info here Im a retired nurse and have alot of back problems from L2fracture thay has given me both bowel and bladder ,and nerve problems ,bulging disc fused L5S1 plus fi bromyalgis I do alot of naturel stuff to help me Haveyou tried water Aerobics its easier on your joints,ice can give you comfort as well as a hot shower moist heating pad ,I recently started CBD cream and rub on trigger points for my fibromyalgia Epsom salts wring out a washcloth and apply to muscles ,vinegar in water does same for muscles Id like to invite Gailb to gi ve you her experiences These are just some of things that help me I am on 1TrAmadol 50 mg or 2if needed.

My story is almost exactly like yours. I have the same neck and back issues. Doing two therapies, nothing is working. I went to have extensive blood work done to see where all of the inflammation was coming from and now they think it’s Lupus. I’ll know for sure next week. If I do, that will be 6 Autoimmune diseases. I started with MS 18 years ago. Have you been tested for Lupus?

@mary1121

My story is almost exactly like yours. I have the same neck and back issues. Doing two therapies, nothing is working. I went to have extensive blood work done to see where all of the inflammation was coming from and now they think it’s Lupus. I’ll know for sure next week. If I do, that will be 6 Autoimmune diseases. I started with MS 18 years ago. Have you been tested for Lupus?

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Yes. I have seen rheumatologist and have extremely high ANA but al other blood work comes out ok. I see this doctor next month and if all tests come back normal she said I don’t have to come back. Lupus came back negative as all the other testing. I have a lot of inflammation also just no answers.

@lioness

@lauraleaisme Hi Welcome to this site you can get alot of good info here Im a retired nurse and have alot of back problems from L2fracture thay has given me both bowel and bladder ,and nerve problems ,bulging disc fused L5S1 plus fi bromyalgis I do alot of naturel stuff to help me Haveyou tried water Aerobics its easier on your joints,ice can give you comfort as well as a hot shower moist heating pad ,I recently started CBD cream and rub on trigger points for my fibromyalgia Epsom salts wring out a washcloth and apply to muscles ,vinegar in water does same for muscles Id like to invite Gailb to gi ve you her experiences These are just some of things that help me I am on 1TrAmadol 50 mg or 2if needed.

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Thanks for your suggestions. I use all the things you do and get short term results. I ice several times a day, moist heat and baths, and stretching, and changing positions. Doctors say sorry I don’t know what is wrong, can’t help you. I had an OT tell me she could no longer treat me because she was not comfortable due to nerve issues in my neck and at the same time others say there is nothing wrong, or it shouldn’t hurt that much. Very frustrating.

@mary1121

My story is almost exactly like yours. I have the same neck and back issues. Doing two therapies, nothing is working. I went to have extensive blood work done to see where all of the inflammation was coming from and now they think it’s Lupus. I’ll know for sure next week. If I do, that will be 6 Autoimmune diseases. I started with MS 18 years ago. Have you been tested for Lupus?

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@lauraleaisme Im sorry Dr,s cant give you any answers I was reading an interesting article on WebMD that talked about the Epstein -Barr. Virus In my 20,s I developed a bad case on Mononucleosis caused by this virus I had the rash with it ,extreme fatigue white spots in mouth,throat ,fever ,these where symptoms Dr did blood work and my count was 1600 she put me on bedrest for a month hugh doses of Vitamins which I still take a vit-min every day but often have wondered if this virus which lies dorment in our bodies , is the cause of so many of our problems today According to WebMD which I research on alot EBV is a herpes virus the one that causes coldsores ,shingles ? Just throwing this out there You can have them do a blood test for this .Ginger-turmeric tea is wonderful for inflammation .As a retired nurse I like to help people ,not physically now as Im 75 but with research or knowledge I have.

@mary1121

My story is almost exactly like yours. I have the same neck and back issues. Doing two therapies, nothing is working. I went to have extensive blood work done to see where all of the inflammation was coming from and now they think it’s Lupus. I’ll know for sure next week. If I do, that will be 6 Autoimmune diseases. I started with MS 18 years ago. Have you been tested for Lupus?

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Thanks.

Liked by lioness

@mary1121

My story is almost exactly like yours. I have the same neck and back issues. Doing two therapies, nothing is working. I went to have extensive blood work done to see where all of the inflammation was coming from and now they think it’s Lupus. I’ll know for sure next week. If I do, that will be 6 Autoimmune diseases. I started with MS 18 years ago. Have you been tested for Lupus?

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Thank you so much. I feel so hopeless right now. Lots of frustration with doctors!

Liked by lioness

@mary1121

My story is almost exactly like yours. I have the same neck and back issues. Doing two therapies, nothing is working. I went to have extensive blood work done to see where all of the inflammation was coming from and now they think it’s Lupus. I’ll know for sure next week. If I do, that will be 6 Autoimmune diseases. I started with MS 18 years ago. Have you been tested for Lupus?

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So sorry. I know you are frustrated.

Liked by lioness

It is so good you got yourself off the meds. Have you tried a pain rehabilitation program? A friend of mine went through Mayo's three-week program and increased his quality of life quite a bit, enabling him to even travel etc. It is worth trying this if your insurance covers it. Mayo has a 2-day program also (though if it was possible, I'd sure prefer the 3-week one).

@lucie2

It is so good you got yourself off the meds. Have you tried a pain rehabilitation program? A friend of mine went through Mayo's three-week program and increased his quality of life quite a bit, enabling him to even travel etc. It is worth trying this if your insurance covers it. Mayo has a 2-day program also (though if it was possible, I'd sure prefer the 3-week one).

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Thanks. I am currently in PT. It has been 4 months and I am no better. They are working under the concept of central sensitivity. I am ready to stop going. Mayo has a video about central sensitivity but do not know any more about it. I live in Ohio and do not have money for overnight accomidations. Not sure where to turn or to just take a break from every treatment.

Liked by Parus

I went thru it by myself and it nearly killed me My doctor had put me on Morphine. So much for him knowing anything about RA. Well I got tired of being tired and quit when I ran out of pills. My doctor was not happy with me that I had not called him for help. One week after I had quit, three trips to ER. Ended up with Infectious Gall Bladder. Surgery on that took longer due o high infection. THIS IS WHY I want Marijuana. I am sick of the stupid power that is here in Texas. Refusing Marijuana. FINALLY went to a Hemp store yesterday. On first floor right near my Orthopedic doctor who had shot up my neck. Wait till I share this one with you. Anyway new store.Got 500 Mil of Pain Lotion. Not a 100% but it works. Store owner said the Fed had already been to his store. They are under a microscope. To many doctors and pill pushers going to loose their commission income when we quit the drugs and use MJ.

Something NEW. My doctor gave me shots in my neck. Suppose last 4 to 6 hours. NOT. According to dr, Feds now want him to do these shots at TWO different appts and have patient fill out a diary. IF I pass, they will give me Steroids in my neck and back. I still have to go through the two trial trips on my back before I get any relief. This is all to control our society. The rich probably never go through this.

@oregongirl That is so rediculus cant spell today. That's it in a nut shell Dr,s and pharmacy are worried they will lose there income. Glad you found some help hope that store stays open I wouldn't go back for neck shots if they only work for that long. I use a lot of different muscle rubs beside CBD cream I like a product from NOW its called Glucosamine MSM @arnica for joint areas its a liposome technology Arnica gives me relieve as well as the tea Ginger-turmeric tea from Trader Jo,s have to do what we can as the prescription drugs or naturel don't last only give us relieve unfortunately guess this is the price we pay for living our lives and doing whatever we thought was fun now we are hurting does water therapy help you ? I have to get back into it as it did me then it became to hard for me to get there but I found one close to me ,have to have warm water therapy.

Lioness. It's not that shot only last maybe ,2 hrs, but that by law they have to give me low dose short term twice before they are lowed to use high dose last maybe 6 months and eligble to try for more. Who makes these laws

@lioness

@oregongirl That is so rediculus cant spell today. That's it in a nut shell Dr,s and pharmacy are worried they will lose there income. Glad you found some help hope that store stays open I wouldn't go back for neck shots if they only work for that long. I use a lot of different muscle rubs beside CBD cream I like a product from NOW its called Glucosamine MSM @arnica for joint areas its a liposome technology Arnica gives me relieve as well as the tea Ginger-turmeric tea from Trader Jo,s have to do what we can as the prescription drugs or naturel don't last only give us relieve unfortunately guess this is the price we pay for living our lives and doing whatever we thought was fun now we are hurting does water therapy help you ? I have to get back into it as it did me then it became to hard for me to get there but I found one close to me ,have to have warm water therapy.

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Meanwhile I have my dental issues. Dentist quit and left me with pain. 8000 I pd for him to do this to me. I may have to hire an atty.

@oregongirl We need to get more proactive and send email,s to legislature ,congress, President Trump he advocates for the whole world wonder if he would for us ? We do what we have to do the thing I worry about is what steroids do to our body kidneys,liver? I sometimes think of the way other places in the world treat there elderly much better then here Did you ever look into those websited I gave you ? Charlottes Web? try to have a blessed day Id say go to beach but Texas doesn't have any unless your around the Gulf.

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