Frustrated & Done

Posted by lauraleaisme @lauraleaisme, Aug 10, 2018

I have had chronic pain in my neck and back for 3 1/2 years. I have been to 14 different doctors, providers, and therapy. Currently I go to occupational therapy for myofascial release and physical therapy for central sensitivity. The occupational therapy helps some. But I am questioning the physical therapy for almost 4 months I am no better off than when I started. I have pain when I sit, when I stand, and when I walk. I rotate my position every 30 minutes so I don’t get more pain. I am at the point where enough is enough. With no answers and continued pain. I had been prescribed opioid pain meds and have been taking them for three years. I did not want to get addicted or overdose so I wean myself off of them. It was hard and lots of with drawl but I am currently on no pain meds. I had been taking 12 different medicines every day. The pain meds made it worse. I am not sure where to go from here but I’m struggling with driving to appointments and the gas in my car since I’ve had no income for three and half years. I also have fiber myalgia, IBS, headaches, short term memory problems that have been documented, Arthritis, hip pain, depression, and anxiety. I have gained a lot of weight due to not working or moving over the past 3 1/2 years. Any thoughts, recommendations, or support would be welcome.

@lioness

@oregongirl We need to get more proactive and send email,s to legislature ,congress, President Trump he advocates for the whole world wonder if he would for us ? We do what we have to do the thing I worry about is what steroids do to our body kidneys,liver? I sometimes think of the way other places in the world treat there elderly much better then here Did you ever look into those websited I gave you ? Charlottes Web? try to have a blessed day Id say go to beach but Texas doesn't have any unless your around the Gulf.

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No beach except on gulf. ISH and hot. When I lived in Oregon I took my dogs and off to beach.

Time for my nap soon. Love my aft nap

@lucie2

It is so good you got yourself off the meds. Have you tried a pain rehabilitation program? A friend of mine went through Mayo's three-week program and increased his quality of life quite a bit, enabling him to even travel etc. It is worth trying this if your insurance covers it. Mayo has a 2-day program also (though if it was possible, I'd sure prefer the 3-week one).

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The Cleveland Clinic has a pain rehabilitation program too. https://my.clevelandclinic.org/departments/neurological/depts/neurological-restoration/chronic-pain-rehab-program Maybe you need a combination of approaches?

@oregongirl

Time for my nap soon. Love my aft nap

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@oregongirl , I do but played Scrabble all afternoon fun so didn't have aft nap

@oregongirl

Lioness. It's not that shot only last maybe ,2 hrs, but that by law they have to give me low dose short term twice before they are lowed to use high dose last maybe 6 months and eligble to try for more. Who makes these laws

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@oregongirl Id like to say what I think but would get in trouble The only thing that people can turn to are well know forms like Mayo,Cleveland clinic ,John Hopkins those Dr,s that have a good reputation from others ,alternative therapy .Seems like the old remedies are the best sometimes.

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