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Frustrated & Done

Spine Health | Last Active: Aug 15, 2018 | Replies (20)

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@mary1121

My story is almost exactly like yours. I have the same neck and back issues. Doing two therapies, nothing is working. I went to have extensive blood work done to see where all of the inflammation was coming from and now they think it’s Lupus. I’ll know for sure next week. If I do, that will be 6 Autoimmune diseases. I started with MS 18 years ago. Have you been tested for Lupus?

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Replies to "My story is almost exactly like yours. I have the same neck and back issues. Doing..."

Yes. I have seen rheumatologist and have extremely high ANA but al other blood work comes out ok. I see this doctor next month and if all tests come back normal she said I don’t have to come back. Lupus came back negative as all the other testing. I have a lot of inflammation also just no answers.

@lauraleaisme Im sorry Dr,s cant give you any answers I was reading an interesting article on WebMD that talked about the Epstein -Barr. Virus In my 20,s I developed a bad case on Mononucleosis caused by this virus I had the rash with it ,extreme fatigue white spots in mouth,throat ,fever ,these where symptoms Dr did blood work and my count was 1600 she put me on bedrest for a month hugh doses of Vitamins which I still take a vit-min every day but often have wondered if this virus which lies dorment in our bodies , is the cause of so many of our problems today According to WebMD which I research on alot EBV is a herpes virus the one that causes coldsores ,shingles ? Just throwing this out there You can have them do a blood test for this .Ginger-turmeric tea is wonderful for inflammation .As a retired nurse I like to help people ,not physically now as Im 75 but with research or knowledge I have.

Thanks.

Thank you so much. I feel so hopeless right now. Lots of frustration with doctors!

So sorry. I know you are frustrated.