Bronchiectasis: New Diagnosis
New to your group. Non-smoker. Pneumonia x6 in 12 years, double pneumonia twice. Was diagnosed with chronic bronchitis and COPD for past 15 years, now pulmonologist based on x-rays and MRI has diagnosed no COPD, yes bronchiectasis. Take advair 250/50 twice a day. Past ten days I am increasingly gurgling, wheezing, some chest pain. I have recently moved to Florida which I like but am having long wait times to get into see a family care NP who can hopefully refer me to a pulmonologist. I walk 20-30 minutes a day. Any ideas how to manage this now. Am worried about getting pneumonia again. I went to one walk-in clinic at a reputable hospital. They literally did nothing except take x-rays. Didn't even talk to me. Just billed $2000+ for x-rays. Do I try another walk-in clinic. I feel very alone right now with this chronic medical problem.
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@kpost2 Albuterol made my heart race too. My dr changed that prescription to 'Levalbuterol' it is albuterol minus the racy heart and shakes. Are ypu nebulizing sodiym chloride (saline) at all? It really helps most of us with lung clearance.
I had three days of sputum induction this week, which meant the nurse administered a saline nebulizer, then we sat and waited for me to cough. A tiny bit. I don't even know if it was enough for AFB samples. So that must be an individual isefulness sort of thing.
It seems like my productive cough magically disappears about 3 days before sputum collection time. Before I do the saline neb, I use Mucinex to thin the secretions and drink LOTS of water. Sometimes a levalbuterol neb before the saline helps too.
Which Mucinex do you use?? Thanks.
@pfist Hi Shari. Do you live near the Mayo clinic?
@kpost2 Hi. I just looked up privigen. I see it is to boost your immune system.
@tdrell You live near the Mayo there?
@kpost2- Good morning. I'm with you on Albuterol. I hate the side effects. I feel like in one of those old fashion shaking machine. But they work and their effects become less over time. I have a tendency to stop meds that I don't like because I want to feel "normal". But that's really being short sighted for me. I have had to be patient and "put up with things" for a short while in order to feel better in the long run. There is probably a barrier that you could put up for your eyes. or close them and rest. It only lasts a short time and it helps over time. I do hope that you will reconsider. It helped prevent a bronchitis into developing into a full blown pneumonia for me and let me stay at home.
@windwalker- Good morning! I had no idea that there was an Albuterol minus the shaky side effects! I'll check into that. Do you know if the inhalers have that too?
@danielad- Good morning. You have made me smile. I love your attitude! We all need to do research about better care. When I found out that I had lung cancer we researched who my surgeon would be, possible outcomes for my cancer and anything else that we could think of. I find it part of gaining control of things that we can and helps lessen fear. So good for you and thank you for sharing all of this wonderful information.
I like your pulmonologist. She definitely is being cautious with your health. I hope that your latent TB stays at bay. Hope that this spring is kind to all of us!