Does anyone have help for cyclical vomiting?

Posted by bonniek @bonniek, Jul 22, 2018

My daughter is 39 and has episodes of vomiting that last for up to 2 weeks, at first it can be 10/ times an hour for the first 24-36 hrs then it eases but she still vomits up to 2 weeks.

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I have had similar occurrences for over a year, severe vomiting and nausea but mine lasts a day or two then I'm fine. This has occurred 1 or 2 times per month, never having any symptoms to let me know its coming.I have been to a Gastro Doctor, have had every test possible, nothing shows up abnormal in any tests. As of today it has not returned, my last episode was June 19, this has been the longest period vomit free since it began. I wish you luck finding help for your Daughter. Thanks

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My daughter had issues with cyclic vomiting as a child, but did out grow it. Have you heard of the Cyclic Vomiting Syndrome Association? cvsaonline.org may be able to help figure it out/rule it out as well. Good luck!

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Welcome to Connect @bonniek @joefro @okeefe38. According to this information from Mayo Clinic, "The underlying cause of cyclic vomiting syndrome is unknown. Some possible causes include genes, digestive difficulties, nervous system problems and hormone imbalances." You can read more details here: https://www.mayoclinic.org/diseases-conditions/cyclic-vomiting-syndrome/symptoms-causes/syc-20352161

I'd like to introduce you to @pinkfaith1979 @wendy2001 and @lhelbling whose children have also experienced continuous vomiting; I'm certain they will have some more insights to share. You can read the discussion here:
– my 11 yr old has had stomach pain and throwing up for a month https://connect.mayoclinic.org/discussion/my-11-yr-old-has-had-stomach-pain-and-throwing-up-for-a-month/

Would you share what lifestyle changes have been made to manage this condition? Does medication help? Are there other symptoms like headaches or migraines that accompany the vomiting?

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Hi, I found this site by trying to investigate symptoms I have had for better than 1 year now, it seems almost futile at this point to even put a name on the condition I have. For about 1 year now maybe at 4 to 6 week intervals I get first a rumbling from gas in my stomach, belching helps little, the taste and smell of this gas is always the same so I know what to expect next, Profuse vomiting , not just regular vomiting but this is projectile vomiting, meaning run to bathroom or it just lets loose no stopping it or holding back, this vomiting usually happens and returns maybe every hour all night long, 2 days ago 6/19 I had an episode during the day about 3 PM and continued thru the night, I got little sleep as I was up 9 times throwing up, also I get very bad diarrhea while this is happening, the smells are always the same every episode, same scenario every time.
I have had extensive testing after seeing a Gastrointestinal Doctor, Blood tests, ultra sound checking liver,Gall Bladder, appendix I had Upper GI, had Biopsy of esophagus and Stomach, had stomach empty study done, last week I had the a CT scan of my lower intestines, all test did not show anything abnormal anywhere, no blockages in the Intestines.Nothing ! . My follow up appointment is in September with the GI Doctor , I already sent the Doctor a message and told her I can not keep on like this and need some results soon. Can anyone help ? any Ideas ? Thanks

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@joefro

Hi, I found this site by trying to investigate symptoms I have had for better than 1 year now, it seems almost futile at this point to even put a name on the condition I have. For about 1 year now maybe at 4 to 6 week intervals I get first a rumbling from gas in my stomach, belching helps little, the taste and smell of this gas is always the same so I know what to expect next, Profuse vomiting , not just regular vomiting but this is projectile vomiting, meaning run to bathroom or it just lets loose no stopping it or holding back, this vomiting usually happens and returns maybe every hour all night long, 2 days ago 6/19 I had an episode during the day about 3 PM and continued thru the night, I got little sleep as I was up 9 times throwing up, also I get very bad diarrhea while this is happening, the smells are always the same every episode, same scenario every time.
I have had extensive testing after seeing a Gastrointestinal Doctor, Blood tests, ultra sound checking liver,Gall Bladder, appendix I had Upper GI, had Biopsy of esophagus and Stomach, had stomach empty study done, last week I had the a CT scan of my lower intestines, all test did not show anything abnormal anywhere, no blockages in the Intestines.Nothing ! . My follow up appointment is in September with the GI Doctor , I already sent the Doctor a message and told her I can not keep on like this and need some results soon. Can anyone help ? any Ideas ? Thanks

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@joefro there is a story you can read I found here. It wont let me post a link...type in google search ---- hubpages cyclic vomiting in adults and children. Had a friend who had cvs and they had me read this story.

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@joefro

Hi, I found this site by trying to investigate symptoms I have had for better than 1 year now, it seems almost futile at this point to even put a name on the condition I have. For about 1 year now maybe at 4 to 6 week intervals I get first a rumbling from gas in my stomach, belching helps little, the taste and smell of this gas is always the same so I know what to expect next, Profuse vomiting , not just regular vomiting but this is projectile vomiting, meaning run to bathroom or it just lets loose no stopping it or holding back, this vomiting usually happens and returns maybe every hour all night long, 2 days ago 6/19 I had an episode during the day about 3 PM and continued thru the night, I got little sleep as I was up 9 times throwing up, also I get very bad diarrhea while this is happening, the smells are always the same every episode, same scenario every time.
I have had extensive testing after seeing a Gastrointestinal Doctor, Blood tests, ultra sound checking liver,Gall Bladder, appendix I had Upper GI, had Biopsy of esophagus and Stomach, had stomach empty study done, last week I had the a CT scan of my lower intestines, all test did not show anything abnormal anywhere, no blockages in the Intestines.Nothing ! . My follow up appointment is in September with the GI Doctor , I already sent the Doctor a message and told her I can not keep on like this and need some results soon. Can anyone help ? any Ideas ? Thanks

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Hi @bradleymom1967
The Connect platform doesn't allow new members to post links until they have posted 10 or more posts. We do this to prevent spammers from flooding the community. I believe this is the story that you wanted to post for @joefro

Cyclic Vomiting Syndrome (CVS) Is a Rare Disease in Adults and Children - Parents May Want to Read Our Story https://hubpages.com/health/Cyclic-Vomiting-Syndrome-In-Young-Children-

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Hi! I have been vomiting on an off and on basis for about 10 years. I had a hiatal hernia repair that helped a little. Nausea and vomiting continued. After 4 gastric emptying studies, it was determined that I have gastroparesis. The constant vomiting caused esophagitis and subsequent vomiting blood. I am scheduled to have an innovative procedure called G-POEM on 9/26 that has an 80% success rate and will hopefully resolve the vomiting. I’m seriously optimistic and am looking forward to the procedure.

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Wishing you all success, @coquifoife. I'm tagging @aishia @ed32 @blackoutthesun @evgenimat and Mentor @kdubois – I hope they join in with their insights about peroral endoscopic myotomy (POEM).

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