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Lymphoma

Posted by dillysmom25 @dillysmom25, Jul 22, 2018

Recently my son was found to have enlarged lymphnodes in neck abdomen and groin. Also mass in colon. They removed 1 lympnode and sent him back to jail. He is in a lot of pain. Should they be doing more????

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Profile picture for shaker1956
shaker1956 | @shaker1956 | Aug 26, 2018
In reply to @travelgirl "@shaker1956 I have follicular non hoghkin lymphoma stage III without any current symptoms. So they have..." + (show)
Profile picture for Jackie, Alumna Mentor @travelgirl

@shaker1956 I have follicular non hoghkin lymphoma stage III without any current symptoms. So they have me on a watch and wait regiment.. Every six month blood work and once a year a CT Scan. Every check-up has the wording of Lymphoma re-staging. I been under surveillance for almost three years now.
You should really find out the type of Lymphoma as there are if im not mistaken 47 types of NHL and several types of regular lymphoma.
I believe they are all treated differently.
I hope your feeling better soon.
Would you be willing to share what the Dr says after your next visit?
I'm seing the Dr. This week as well for re-staging, blood work and CT Scans. I will be reporting what he tells me in a few days.
I wish you the best.
Jackie

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Hey TravelG. Thanks for the reply. I guess everyone dies feel different when it comes to some types of Cancer. I will just have to wait a few more days and see what they have in store for me. I’m told they take a bllod sample, make you wait an hour so they can analyze it and then the Doc sits diwn with you with a plan. I do exercise a lot. I walk my dog everyday as well as I cycle at least 10km’s. But I find my energy level is not where it was a month ago. I also start playing hockey next week so I’m really looking forward to that. Enjoy your day.....

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Profile picture for ginpene
ginpene | @ginpene05 | Aug 26, 2018
In reply to @travelgirl "@shaker1956 I have follicular non hoghkin lymphoma stage III without any current symptoms. So they have..." + (show)
Profile picture for Jackie, Alumna Mentor @travelgirl

@shaker1956 I have follicular non hoghkin lymphoma stage III without any current symptoms. So they have me on a watch and wait regiment.. Every six month blood work and once a year a CT Scan. Every check-up has the wording of Lymphoma re-staging. I been under surveillance for almost three years now.
You should really find out the type of Lymphoma as there are if im not mistaken 47 types of NHL and several types of regular lymphoma.
I believe they are all treated differently.
I hope your feeling better soon.
Would you be willing to share what the Dr says after your next visit?
I'm seing the Dr. This week as well for re-staging, blood work and CT Scans. I will be reporting what he tells me in a few days.
I wish you the best.
Jackie

Jump to this post

That's exactly how the doctors at "my" clinic do it. I am always reassured when my doc does it just like somebody else....

REPLY
Profile picture for shaker1956
shaker1956 | @shaker1956 | Aug 26, 2018
In reply to @travelgirl "@shaker1956 I have follicular non hoghkin lymphoma stage III without any current symptoms. So they have..." + (show)
Profile picture for Jackie, Alumna Mentor @travelgirl

@shaker1956 I have follicular non hoghkin lymphoma stage III without any current symptoms. So they have me on a watch and wait regiment.. Every six month blood work and once a year a CT Scan. Every check-up has the wording of Lymphoma re-staging. I been under surveillance for almost three years now.
You should really find out the type of Lymphoma as there are if im not mistaken 47 types of NHL and several types of regular lymphoma.
I believe they are all treated differently.
I hope your feeling better soon.
Would you be willing to share what the Dr says after your next visit?
I'm seing the Dr. This week as well for re-staging, blood work and CT Scans. I will be reporting what he tells me in a few days.
I wish you the best.
Jackie

Jump to this post

Well it sure will take the guessing out of it. And hopefully onto feeling better!!!!!! Tired of the crappy feeling!!!!!

REPLY
Profile picture for Jackie, Alumna Mentor
Jackie, Alumna Mentor | @travelgirl | Aug 26, 2018
In reply to @travelgirl "@shaker1956 I have follicular non hoghkin lymphoma stage III without any current symptoms. So they have..." + (show)
Profile picture for Jackie, Alumna Mentor @travelgirl

@shaker1956 I have follicular non hoghkin lymphoma stage III without any current symptoms. So they have me on a watch and wait regiment.. Every six month blood work and once a year a CT Scan. Every check-up has the wording of Lymphoma re-staging. I been under surveillance for almost three years now.
You should really find out the type of Lymphoma as there are if im not mistaken 47 types of NHL and several types of regular lymphoma.
I believe they are all treated differently.
I hope your feeling better soon.
Would you be willing to share what the Dr says after your next visit?
I'm seing the Dr. This week as well for re-staging, blood work and CT Scans. I will be reporting what he tells me in a few days.
I wish you the best.
Jackie

Jump to this post

@shaker1956 I will touch back with you on thursday to see what the Doc says.
Hang in there it gets better.
Jackie

REPLY
Profile picture for shaker1956
shaker1956 | @shaker1956 | Aug 26, 2018
In reply to @travelgirl "@shaker1956 I have follicular non hoghkin lymphoma stage III without any current symptoms. So they have..." + (show)
Profile picture for Jackie, Alumna Mentor @travelgirl

@shaker1956 I have follicular non hoghkin lymphoma stage III without any current symptoms. So they have me on a watch and wait regiment.. Every six month blood work and once a year a CT Scan. Every check-up has the wording of Lymphoma re-staging. I been under surveillance for almost three years now.
You should really find out the type of Lymphoma as there are if im not mistaken 47 types of NHL and several types of regular lymphoma.
I believe they are all treated differently.
I hope your feeling better soon.
Would you be willing to share what the Dr says after your next visit?
I'm seing the Dr. This week as well for re-staging, blood work and CT Scans. I will be reporting what he tells me in a few days.
I wish you the best.
Jackie

Jump to this post

Wow. I really gotta start proofreading before I press the post reply button. Lolol

REPLY
Profile picture for shaker1956
shaker1956 | @shaker1956 | Aug 26, 2018
In reply to @travelgirl "@shaker1956 I have follicular non hoghkin lymphoma stage III without any current symptoms. So they have..." + (show)
Profile picture for Jackie, Alumna Mentor @travelgirl

@shaker1956 I have follicular non hoghkin lymphoma stage III without any current symptoms. So they have me on a watch and wait regiment.. Every six month blood work and once a year a CT Scan. Every check-up has the wording of Lymphoma re-staging. I been under surveillance for almost three years now.
You should really find out the type of Lymphoma as there are if im not mistaken 47 types of NHL and several types of regular lymphoma.
I believe they are all treated differently.
I hope your feeling better soon.
Would you be willing to share what the Dr says after your next visit?
I'm seing the Dr. This week as well for re-staging, blood work and CT Scans. I will be reporting what he tells me in a few days.
I wish you the best.
Jackie

Jump to this post

Thanks Jackie. Will let you know Thursday. Enjoy your evening

REPLY
Profile picture for mukundjpatel45
mukundjpatel45 | @mukundjpatel45 | Jun 21 1:20am

Hi,
My son had MRI and ct scan and doctor give us appointment for biopsy on next week. The conclusion of report is below.
“Differentials include a tumour of a minor salivary gland such as a pleomorphic adenoma or a
(Non-Hodgkin) Lymphoma”
So is it treatable and is it happen at 14 years age? Please advise me please. We r so worried.

REPLY
2 replies
Profile picture for aoifet
aoifet | @aoifet | Jun 21 6:56am

Hi, sorry you are having to deal with this and I hope best for you and your son.
"differentials" usually means the possibilities, and it will take a biopsy to determine it all. It sounds like an uncommon site for a young person, though regardless, if it is NHL, it is usually quite treatable. The toughest part right now is some waiting time. None of that makes this time any easier, for sure.
So I hope you have others that support you emotionally during this time, and likewise your son also.

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Mentor
Ginger, Volunteer Mentor | @gingerw | Jun 21 3:46pm
In reply to @mukundjpatel45 "Hi, My son had MRI and ct scan and doctor give us appointment for biopsy on..." + (show)
Profile picture for mukundjpatel45 @mukundjpatel45

Hi,
My son had MRI and ct scan and doctor give us appointment for biopsy on next week. The conclusion of report is below.
“Differentials include a tumour of a minor salivary gland such as a pleomorphic adenoma or a
(Non-Hodgkin) Lymphoma”
So is it treatable and is it happen at 14 years age? Please advise me please. We r so worried.

Jump to this post

@mukundjpatel45 Welcome to Mayo Clinic Connect.

As @aoifet noted, waiting is hard to do. It's our nature to want answers right away, but there are steps to go through. As the biopsy is the next step. Let's wait to see what the biopsy report shows before we think about treatable tumors, okay? Will you let us know?
Ginger

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Profile picture for mcconachie
mcconachie | @mcconachie | Jun 22 6:12am
In reply to @mukundjpatel45 "Hi, My son had MRI and ct scan and doctor give us appointment for biopsy on..." + (show)
Profile picture for mukundjpatel45 @mukundjpatel45

Hi,
My son had MRI and ct scan and doctor give us appointment for biopsy on next week. The conclusion of report is below.
“Differentials include a tumour of a minor salivary gland such as a pleomorphic adenoma or a
(Non-Hodgkin) Lymphoma”
So is it treatable and is it happen at 14 years age? Please advise me please. We r so worried.

Jump to this post

@mukundjpatel45 try to put yourselves into “I don’t know “ mode until you have more concrete results. No point in worrying when you do not know . I know this is very difficult, step by step it takes time for results, it takes time for scheduling appointments no matter if it is urgent. I know this from experience so go into a low stress mode better for you, the patient and those around you. Not an easy task I know😘. Good luck

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