Rare cancer: ovarian clear cell carcinoma

Hi @carleenburch please note that I removed your email address. We recommend that you use private message to share personal contact information to protect yourself from getting unwanted spam.

Hi @carleenburch please note that I removed your email address. We recommend that you use private message to share personal contact information to protect yourself from getting unwanted spam.

Never mind I figured out how to private message her. Thanks for all you do!!

Glad you figured out how to private message, @carleenburch, and that you offered extra support to @mollybradley3. I'd also like to add that by sharing here on the public forum about ovarian clear cell carcinoma, we can all help many more people. OCCC is rare, so the pool of people to share with is small. I'm thrilled that you, Molly, @odette @kenwood1 @janice1106 have all connected here.

I also want to let you all know about a Video Q&A coming up next week, Feb 6 at 9:30 CT. Find out more here:
> Video Q&A about Women's Cancers https://connect.mayoclinic.org/webinar/video-qs-cancers/

Glad you figured out how to private message, @carleenburch, and that you offered extra support to @mollybradley3. I'd also like to add that by sharing here on the public forum about ovarian clear cell carcinoma, we can all help many more people. OCCC is rare, so the pool of people to share with is small. I'm thrilled that you, Molly, @odette @kenwood1 @janice1106 have all connected here.

I also want to let you all know about a Video Q&A coming up next week, Feb 6 at 9:30 CT. Find out more here:
> Video Q&A about Women's Cancers https://connect.mayoclinic.org/webinar/video-qs-cancers/

I am DX with clear cell stage 1c, grade 2. Had total hysterectomy. Had my 2nd chemo 2 days ago. Only side effects i have is a bit of numbness on my finger tips and toes. Doing yoga and walking for 40 min every day seems to help. Hope you get excellent care from your medical team.

Hi @miyonggilman, welcome to the OCCC group. Keep up the good work with doing physical activities when you're able. Have you ever attended yoga specially for people with cancer? Your cancer center may offer them.

How many chemo rounds will you have? What chemo regimen?

Just wondering how you are doing. I recently had an appointment and all was well, fortunately. Prior to an appointment, I experience a great deal of anxiety although it seems a bit more manageable as time goes by. My oncologist did not recommend joining a "support group" following treatment as my circumstances are so different, I guess. After feeling very isolated at times, I joined this group as well as other on-line sites. Although I have "met" several women who have similar circumstances to mine, many of them have serious challenges to face. I find that I empathize so much with them, I become distraught at times. Many of them are significantly younger (I am in my early 60s). I continue to pursue my understanding of OCCC which is rare, but research is being done. It is associated with endometriosis so I am very interested in this condition as it afflicts all of the women in my family.
We are actually visiting Arizona this winter as a possible retirement location as we have friends and relatives in the Tucson and Scottsdale areas. One of our criteria is excellent medical care which is available at the Mayo Clinic in Scottsdale. The warm weather is certainly appealing as well.
I hope that you are doing well.

Hi Odette,
This is Miyong in Tucson. I a snow bird from Wa St.
Been treated for occc at st Mary's for 2 months. Had surgery and on 2nd round of chemo. I love being in Tucson for winter.