Anyone out there diagnosed with Pudendal Neuralgia?

Well guys... I get to have a CT guided nerve block on Jan 21... Then I go to counseling with Dr Hibner on the 24th before the procedure on the 31st... Botox into the pelvic floor... A nerve block internally on either side of the pudendal nerve and also a diagnostic ultrasound to make sure all the veins are working well... I'm praying so hard that this will work... The doc says he's had a lot of success so I'll keep you all posted ❣️

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That would unfortunately be me.
I've had this problem for over 25 years. My pain is in the left tailbone and anus area. (How lovely).
Only relief has been Clozepam .5mg x2 per day along with Effexor which is an anti depressant. Her to help or talk. I'm back in this dreaded horse because of the opiod crisis and the doctor wanted me to get off Clozepam which I have been fir two weeks. I'm now just like it was day 1 with pain. I'm going back to Doctor to get back on them.

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I'm also a long time sufferer with pudental pain in my anus, and it's been there for 38 years. I've been on hydrocodone for more than 10 years...4 pills a day...and will ask my doctor about trying your Clozepam. Just got a Tenns unit and will also try it, although most Connect members have had little luck with them.

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Well guys... I get to have a CT guided nerve block on Jan 21... Then I go to counseling with Dr Hibner on the 24th before the procedure on the 31st... Botox into the pelvic floor... A nerve block internally on either side of the pudendal nerve and also a diagnostic ultrasound to make sure all the veins are working well... I'm praying so hard that this will work... The doc says he's had a lot of success so I'll keep you all posted ❣️

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Hello,
I crushed the left branch of the Pudendal N. in 1995. It took 3 years for a diagnosis and until July of 2001 before I had Pudendal release surgery that finally gave me some relief. Dr Stanley Antolak, while he was on the Urology staff at the Mayo Clinic at that time was the surgeon. His office is in St. Paul, Minnesota, phone number is 763-229-2266. You will find a compassionate and one of the most knowledgeable physicians in the world about Pudendal Nerve injuries. There are many different treatments used now. Please feel free to contact me here or by private message to discuss the complexities of this terrible problem.
Darrell Burns

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How were you diagnosed? I developed pudendal nerve pain after a-severe colon infection or so we think. I had many digestive issues prior. Then after multiple on on and off again treatment for small intestinal bacterial overgrowth. I developed cdiff colitis After treatment for that with antibiotic I developed left side burning, tingling in left side of private parts and upper left leg. Going to a pelvic pain center but really need a diagnosis. Could you elaborate on your experience with this doctor?

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To be honest I was having pain for quite a few years, misdiagnosed by my regular gynecologist, referred to a specialized gynecologyst who did a biopsy of my genital area and I have an autoimmune disease called lichen planus... He thought that was the answer but the treatment didn't stop the pain. He prescribed Neurontin which worked wonderfully for the first month so he diagnosed me with neuralgia. He didn't say what kind of neuralgia and then the pain started to come back... I'm still on 1200mg three times a day. Narcotics do work but he wouldn't give me more than 20 Norco because the of medical board... He was worried about his license. He told me to find a pain doctor... Every pain specialist refused me because they didn't deal with "that kind of pain" I set about researching my symptoms and came up with Pudendal Neuralgia myself and also discovered Dr Hibner in the process!!! It took me three months of fighting for past medical records and referrals from my insurance company before I finally got an appointment. The tears I have cried over the last five years are unbelievable... So I have a double whammy.... I have to see the other guy every three months because Apparently the autoimmune can develop scar tissue and close up my vagina!!!!!! 😳😳😳
So last week I saw Dr Hibner... He did an MRI which indicated no nerve entrapment which is good but he did say that because of the pelvic surgeries I'd had in the past the nerve was irritated and was causing the neuralgia. I'm all set for a CT guided spinal nerve block in a few weeks and then the following week he's going to inject botox into my pelvic floor and also do nerve blocks either side of the pudendal nerve from the inside of my pelvis. He's also given me strict instructions to see a specialty physical therapist.
He was thorough and also so kind and he really is passionate about his work. Patients come from all over the US to see him and also from other countries too. You can web search him and find interviews and info on his views
Good luck with your treatment and research into new doctors. I'm sorry you're having this pain too.. It's miserable and debilitating. Have you tried lidocaine ointment 10%? It's a prescription but it helps immensely with the genital pain... Coccyx pain and sit bone pain obviously not but some relief is better than none.

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My new Dr. has ordered diphenhydramine for help with sleep. I have Pudendal neuralgia & fibromyalgia. Has anyone had any help or negative results with ZZZQuil?

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