Mysterious shortness of breath: What has helped you?
I will try to make this as short as possible, but this has been going on for over 5 years, so it might be farily long.
Beginning in summer of 2012, I began having shortness of breath (SOB) with no other symptoms. I felt a constant need to yawn, and every few breaths wouldn't satisfy the SOB. I would take a deep breath, and felt like it would get "stuck" before satisfying the air hunger feeling. About every 3-5 deep breaths would satisfy it, only for it to return a minute later.
I got an endoscopy and other tests done, which revealed that I had some esophageal erosion due to acid reflux and a slight hiatal hernia and was diagnosed with GERD. I had always have bad heartburn, so I was prescribed with Prilosec, which I have been taking daily since them. I've tried stopping it a few times but the reflux always comes back a lot worse.
Lung tests and x-rays were normal. Heart tests normal. Blood test revealed a slight anemia but otherwise pretty normal.
I did some research reading forums where someone suggested taking vitamin B-12. Strangely, I took it and the SOB disappeared almost instantly. However, it only lasted a few days for it to return just as bad. I then started taking an iron supplement, which again made the SOB disappear quickly- same thing; symptom returned days later.
After further research, I came across a breathing exercise method called the Buteyko method. Essentially you do a lot of breath holding to build up CO2 and reduce breathing as the theory is that I had chronic hyperventilation causing too much CO2 to exit my body. After applying the method and reducing my breathing, the SOB disappeared after only 2 days and I felt completely normal. I continued the method a few more days then no longer felt the need to pursue the exercises. I was normal for a whole year when the SOB once again returned with some chest tightness. I applied the method again and the symptom went away, this time with a little more effort; after about 3 weeks. I included physical exercise which also helped with my breathing.
After that, I was normal for about 2 years. I mistakenly stopped or at least slowed down exercise and the SOB returned once again. I applied the method and began running for exercise but the SOB kept getting worse. It got so bad, I had multiple panic attacks and the feeling of completely empty lungs with the inability to satisfy it with deep breaths. I had to stop exercise altogether, apply the Buteyko method and do breathing exercises very carefully with very light and slow exercise. This helped, but it took many weeks for the SOB to improve. Then, it was almost normal when over a year ago as I was running, I couldn't get a deep breath to satisfy exercise-induced SOB. I have had SOB continuously since then (a year and a half).
I once again started doing breathing exercises and slowly building up physical exercise, but I can't do any prolonged cardio activity because the SOB gets to a point where deep breathing will not satisfy it. While the breathing exercises have helped, they have had very little effect compared to previous efforts. It seems that every time the symptom returned, greater effort yields few results.
I suspect there is something, some underlying cause that is causing the SOB that has alluded me this entire time.
So for the past few months to a year, the SOB is worse on some days, better on others, but never gone. There's no rhyme or reason or pattern for it. It's just there, sometimes affecting my sleep. I sometimes can't get a deep breath to satisfy it every now and then, but for the most part, a big gulp of air will satisfy it. But it returns seconds to minutes later. It's as though every breath doesn't deliver what it's supposed to, the SOB builds up, and then I have to take a big gulp of air to get rid of the feeling, pattern repeats. My breathing pattern is normal, however. I don't feel like anything physical is happening, but sometimes it feels like my airways and nostrils are slightly inflamed due to allergies, but when I don't feel inflammation the SOB is still there.
Recent lung function tests show normal- I don't have asthma, or any other problems with my lungs. Heart tests are normal though I did have about a two week bout of heart palpitations which came and went. Haven't had any for a while- it just mysteriously started happening then stopped. Blood tests are normal, though tests always show a slight elevation of biliruben which my doc thinks is Gilbert's disease.
I don't have sleep apnea (normal test), bloody oxygenation is normal, heart rate normal.
I recently saw local naturopath (since mainstream docs aren't able to help) who immediately suspected a liver problem when I described my SOB, possibly liver inflammation. He used an electrodermal testing machine to test his theory which did seem to show a problem with my liver and gallbladder. He gave me digestive enzymes and a gallbladder formula to help clear a bile duct clog, thus reducing liver inflammation. He also determined with the machine that I have an egg sensitivity so I've been avoiding eggs.
Been taking this and avoiding eggs for a couple of months, but there has been no noticeable improvement. Everything else is normal. Emotionally I'm normal- no anxiety, depression, etc. The SOB seems to be the only symptom of something, but always comes back worse, until a year and half ago when it came back and has remained since. I feel like I shouldn't have to do breath holding exercises every day just to maintain my breathing well enough to do every day things.
Does anyone have any idea of a possible underlying cause?
2021/2022 UPDATE:
Since my original post about 3-1/2 years ago, a lot has happened, so I’d like to update the post to share with others who come across this what I’ve done since then.
I have maintained a weekly Buteyko method breathing exercise regimen where I do a few of these breathing exercises 3-4 times a week in the morning. This, in combination with daily light to moderate exercise (specifically weight lifting, with 1 or 2 days a week of walking and light jogging), I feel has kept the air hunger symptoms tolerable and manageable. I have mostly good days with some not-so-good days, but doing a breathing exercise and knowing that it’ll get better again helps me get through those times.
I also have sinus inflammation which can exacerbate the symptoms, but I’ve also managed this, which in turn reduces the severity of the air hunger symptoms.
So, while I haven’t found a cure nor is the problem completely gone, I have been able to maintain normalcy in daily life and manage the symptoms through the strategies I described.
This discussion remains active, alive and well through the comments section where others who have similar symptoms have shared what has helped them as well as suggestions for possible solutions to explore.
Interested in more discussions like this? Go to the Lung Health Support Group.
@qbug- Good morning. Do you have any idea what started your SOB? Was there any particular incident, or is it just the progression of OCD and most people wind up with it?
I've had it before. I had it in 2014 for about a month. Went to the ER and it was deemed anxiety. It went away on it's own. I also had it in January of this year from stress and it disappeared after Propranolol. This time I had a huge panic attack in April and that's where it stemmed from.
@qbug- Hi! Wondering how you are feeling.
Hi guys!! New update and what i discovered.
The last time i posted on this issue, i stated that i took flagyl and got huge relief for one day and then it came back. The past few weeks have been hectic for me as it got worse. These are what I discovered:
First, my eating habit is very poor.
2, I was having chest heaviness especially after eating. It feela like I had a sore/wound in my osoephagus.
3. I have had 2 refluxes while sleeping in the past.
4. At a point when i drink water, it was like the water passed through my heart. Which means a wound in the throat.
I consulted people and went to the doctor. They all said it's ulcer. I agreed with them cos of my past experiences with refluxes and acidity.
In order to confirm my ulcer, i went to do blood test which confirmed I had H.pylori bacteria. I have started using the right antibiotics and I am getting huge relief. I also identified some food triggers like pepper, acidic food like oranges etc makes life worst. I have cut them off until my esophagus heals.
In summary, if you know you have a poor eating habit, then this mysterious shortness of breath is linked to GERD, Ulcer, reflux esophagitis and the other of its families.
Omeprazole/proton pump inhibitor also played huge role.
At the end i bought the complete ulsakit drug which contains omeprazole and other two antibiotics which works better than flagyl for matters regarding stomach and intestine.
I hope this helps someone outhere.
It's time to change your eating habit buddy. From your previous experiences with refluxes and esophagitis, eliminate pepper and acidic food and spicies. Eat well at least three times a day and on time. Do this till your esophagus/ulcer wound heals
You can as well go do the H.pylori test for confirmation
@joefocus, I appreciate getting the update and am really glad you found some answers. Surprisingly, a fellow member @ kidprodigy had a similar experience only a few days ago with getting an H. pylori infection diagnosis. You may wish to join the discussion and share experiences here:
- The Right Diagnosis: H. Pylori infection https://connect.mayoclinic.org/discussion/the-right-diagnosis/
This will most certainly help someone out there. What changes have you made to your diet?
That's great to hear. For now, i have cut off pepper in every form. Pepper is damaging to an open sore/wound. I have cut off spicies/spicy food too.
I'm from west Africa where we eat soup made with pepper all the time. To avoid eating that, I now eat jute mallow and okra(lady finger) as my soup with no salt or spicies.
I cut off citrus fruits too.
Bananas and other alkaline fruits are great alternative.
With these experiences, I'm planing going full vegetarian or never going back to eating with articificial spicies again.
Merry
Thank you for your post
I had reoccurring feeling of air leaving my chest and curling into a faint. Emergency room doc tested me. He said had a sodium deficiency. I told him every doc in my life said stay away from salt. For 20 yrs I ate no processed foods, no fast food, never touched a salt shaker, ate popcorn and corn on cob without salt.
He said cant do that. I said then docs should quantify their directives because some of us follow to the letter.
My question to you: I need th o know of there exists an electrolyte water WITHOUT SULFATES/SULFITES as I'm allergic. Water must have significant sodium level.
Nooooobody knows. Thank you. Pauli
@ptaylorboyd- Welcome to Mayo Clinic Connect. I'm glad that you found us. I don't have a sodium deficiency that is bad enough to warrant taking extra salt. However, I'm glad that you asked this question because if I need it I know where to look. I can't recommend any particular one but if you google electrolyte water WITHOUT SULFATES/SULFITES you will find some.
I just found this: Another possible cause for SOB! The ER doctor did well by you! I really hope that it works for you.
http://chemocare.com/chemotherapy/side-effects/hyponatremia-low-sodium.aspx
Did your doctor tell you how much sodium and in what form to take?