Looking for other pancreas only transplant recipients

@2011panc & @donnan I’ve enjoyed reading your posts. We have some things in common. It is nice to know others understand. Hypoglycemia unawareness is the worst, right? Thank God I’ve not had this much since the transplant. The blood sugars used to bounce from 20’s to 600’s and back with a double digit A1C until after transplant it was 5.3. I live in the twin cities metro area of MN. My transplant was done at U of MN. The pretransplant evaluation, education and transplant itself were fantastic but in the next 11 years I felt the follow up was less than desirable. Two years ago I felt like I was starting to decline & loose ground. I had a pretransplant evaluation at U of MN and at Mayo in Rochester. My insurance covered both. The two experiences were very different. I’ve chosen Mayo and plan to have a future kidney transplant there when that becomes necessary. My labs are done locally every 3 months. I found they became less frequent as post transplant time went on. My local team of providers sees me regularly, monitors everything and communicates well with Mayo. I go for an annual pretransplant review at Mayo. The U of MN team is no longer in contact with me. I appreciate your statements of faith. I am a believer as well and have added both of you to my prayers. My name is Cheryl.

@cehunt57, @2011panc & @donnan , I want to drop in and say how happy I am that you all have connected!

You have successfully accomplished within a few short days one of the reasons that Mayo Connect exists: " Mayo Clinic Connect is an online community where you can share your experiences and find support from people like you." (Mayo Connect Home Page)

Hugs, Hope, and Health,
Rosemary

I’m finding it very interesting and will heil others as much as possible

Meant to type help others

@donnan This is the place to connect with knowledge gained by experience that slips through the criteria used to print information. We are honest, candid & transparent which is a good thing for everyone in the loop.

@Donna LMBO I took it as bringing others on board like when one hails a cab.

I like that too. I’m glad I found Mayo Clinic Connect.

@donnan Thank you

@gman007, I want to invite you to post your concern about your nausea and chronic pancreatitis here.
@donnan, @cehunt57 , @2011panc, I want to invite you to meet my friend, Gary. He is not a transplant patient, but I wonder if you might have something from your pancreas experiences that might be helpful.

Gary, You are welcome to take the microphone !
Rosemary

Although I'm not a pancreas transplant, I have had many years of pancreatitis. I've been blessed that it has subsided. It all started when my gallbladder went bad, at the same time my pancreas troubles started. After many stays at weeks at a time in the hospital and stents placed and removed my pancreas has since settled down. Currently I'm working on a kidney transplant due to PKD.