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It's not all about the MELD Score
Transplants | Last Active: Nov 14, 2023 | Replies (217)Comment receiving replies
My husband has a MELD Score 30. Even though his MELD is considered to be high and possibly first on the transplant list he is not physically sick. It has been a couple of years since he has been hospitalized with HE and Ascites. Yes he is in a lot of pain most days and he push through it. He does drive, keep the yard cut and just about anything he wants to do. So I guess the MELD does not mean the sickest. Just a little confused about the MELD and what it really means as far as your overall health and placement on the transplant list.
Replies to "My husband has a MELD Score 30. Even though his MELD is considered to be high..."
@rosemarya also I apologize for errors in my posts. Sometimes I depend too much on spell check lol
@gaylea1, I finally took the opportunity to look at diamond crystal art. I can understand the fascination with it! I used to do counted cross stitch and it was hard to put down because I always wanted to see what it was going to look like. The good thing is that you do not have to be in a hurry (you can't be in a hurry) when you work on it. I think it will be lovely when it is finished.
I never used to get more than 2 hours of sleep at a time, either. And my belly was so swollen with ascites that I could only sleep those 2 hours if propped up. So I completely understand your current misery.
Also, do not be concerned about errors! I have funny incident to share as a result of spell check on my iPhone. A couple of years ago, when I was at Mayo and had just completed my annual transplant checkup, I texted my brother from a restaurant that the doctor told me that 'my liver and kidney are happy'. Gotta love spell check because it sent that 'My lover and kidney are happy!' My husband and I almost choked when he sent his reply;-)
I hope that you are feeling as okay as is possible for now.
Hugs,
Rosemary
I am happy to say that I am nine months post transplant with no complications. I had Asophagial varasies ten plus years ago and nearly bled out. I developed Acidies 7 months into apstaning from Alcohol consumption and learned during one of two parasyntethys hospitalizations that I had a meld score of 27. I was told by my liver specialists that I had end stage Liver disease. He referred me to a transplant surgeon. Before I could be evaluated for a liver transplant. I contracted E-Coli and my Meld core caped at 40. I was told I was in the 45 range. I was transferred to a transplant hospital were I was put on the transplant list and received a gift of life within three days. Just the other day I opened a letter from the hospital informing me my Meld score is 40 and I will not be leaving the hospital without a liver transplant.10 months late. GOD BLESS!
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@rosemarya I am so happy to hear you're playing the violin again. What a beautiful instrument. I do weary quickly but I take shirt rests. My sleep is much to be desired. I am unable to sleep more than 2 hours at a time. Diamond art is a new craft you'll see it advertised a lot on FB. I'm not really a crafty person but I'm going to try my hand at this. It's like paint by number except you use coloured "diamonds" or crystals. They're create quite an effect. I'm starting a pug for my daughter. I am so glad you are doing well. I have thought about journaling as I took journalism in college but am finding it hard to keep my mind disciplined right now. That's why I'm doing random arts. I try and okay the piano when I can.