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Anyone with Meniere's Disease been prescribed Betahistine?
Ear, Nose & Throat (ENT) | Last Active: Jun 29 8:37am | Replies (217)Comment receiving replies
Vertigo, nausea, unable to see correctly and severe ringing in the ears. When an episode occurs I must lay down as it's too difficult to walk. The reason I asked about the Betahistine is I had heard on NPR an interview with a Dr. David Kaylie MD FAC an associate Professor of surgery head and neck and Communication Sciences at Duke University speak of Betahistine as a med that they had had success with for patients with Meniere's. Also that it has been used for Meniere's in Europe for decades. My ENT dr. was not familiar with it nor was my family dr.. Am hoping someone that has taken it can pass on an opinion and also how to find a doctor that is aware of this medication.
Replies to "Vertigo, nausea, unable to see correctly and severe ringing in the ears. When an episode occurs..."
Very interesting that you saw negative info about it as Dr. Kaylie experienced much success with Betahistine. I am most interested to hear from those that have used it.
My husband is on betahistine and Lasix for his meniers didn't find that it did to much but again maybe it did. With the side effects of the different medications one never knew what was real or side affect. He wasn't able to function "normally" for awhile he went days in bed in fetal position not being able to keep anything down as he was so dizzy. At times when I took him to emerg as he got dehydrated he felt a bit better with iv fluids but it seemed like it just had to wait for it to pass....... so frusterating as mentally u just feel helpless not being able to do normal daily activities (even getting out of bed and get dressed ) just started a return to work after not being able to work for 2 yrs. Hang in there you got this!!
I take it and it seems to help
It's not approved in the US
I'm in the USA and take it although I don't actually have vertigo - have been in remission from that for over a decade. It is not FDA approved but you are allowed to import it from Canada or the UK. My doctor writes a prescription and sends it to North Drug Store in Canada. It's not cheap/not outrageous, but if it works for you would be well worth it. Tell your regular hearing doctor about it and ask them if they know about getting prescriptions from Canada. I like North because they always make sure I get offered the cheapest option - sometimes from Canada, sometimes from UK.
I started off with a serve case of vertigo little over three months with dizziness, balance and head pain. I have been to the ENT three times, my primary doctor and still can’t get any answers. Also, I had MRI and CT scan on my head and they came back normal. My legs feel like I am moving buy I am still. If I turn my head , I get dizzy . Now, I am going to physical therapy for balance but I don’t see any improvement. It’s so frustrating. Most of my doctors is at Duke and still can’t find any answer. Now, I am trying another primary doctor in another health care system trying to find some answers.
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Had not heard of Betahistine, but will be interested in any comments. From what I am able to learn on the internet, it does not seem to be very effective even though widely used.