1. < Transplants

Lactulose question

Posted by jodeej @jodeej, Apr 8, 2018

I've seen that several of you have taken lactalose (not sure how you spell it) while awaiting transplant. My husband is having some HE symptoms, but wants to work as long as possible. Is it possible to take lactalose and still work? I don't want him to take it, go to work, and then have bathroom issues.

Interested in more discussions like this? Go to the Transplants Support Group.

Mentor
Rosemary, Volunteer Mentor | @rosemarya | Apr 22, 2018
In reply to @kltchrmn "I take Lactulose and Xifaxan. I’m also on diuretics. For me, the Lactulose makes it easier..." + (show)
@kltchrmn

I take Lactulose and Xifaxan. I’m also on diuretics. For me, the Lactulose makes it easier to go. Before I started Lactulose, I had really bad constipation.

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@kltchrmn, I just now saw your message pop up, and I want to say, "Welcome" to Mayo Clinic Connect. We are happy that you have joined this conversation and have shared from your own experience.

I want to invite you to look at, read, and join into any of our discussions in any of the GROUPS-PAGES- EVENTS-CHAMPIONS listed on top of this page. And in the grey box, bottom left of page you will find a link "Get Started on Connect" if you want to learn more about how to use Connect. Of course, we are here to help you with that, too!

Are you a transplant patient?
Rosemary

REPLY
jodeej | @jodeej | Apr 22, 2018
In reply to @rosemarya "@jodeej , JoDee, Since you are in Rochester, you might find some resources at the Barbara..." + (show)
@rosemarya

@jodeej , JoDee, Since you are in Rochester, you might find some resources at the Barbara Woodward Lips Patient Education Center. The center is located in the Siebens Building, Subway Level, near the Siebens elevators and the Mayo Clinic Store and the Patient and Visitor Cafeteria. The library receptionist can help you locate hard copy materials. And there is a research librarian who might be able to help you locate information or resources.
https://www.mayoclinic.org/patient-visitor-guide/education-centers/patient-education-minnesota
Rosemary

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@rosemarya we missed the weather, thankfully! I did not make it to the patient education center. With Tim's ammonia levels being normal I didn't try to get there. One of the hospitals here has a resource center so I may contact them to see what they can get me for information.

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Mentor
Rosemary, Volunteer Mentor | @rosemarya | Apr 22, 2018
In reply to @amyintucson "I use both Xifaxan and Lactulose. I think everyone's costs are different depending on insurance -..." + (show)
@amyintucson

I use both Xifaxan and Lactulose. I think everyone's costs are different depending on insurance - I pay $175 for a 90 day supply of Xifaxin and Lactulose is $10 for a 30 day supply. If I stop taking either one, while my digestive system may feel better, my husband can see the difference in my concentration.

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@amyintucson, I love that term, "lurking" in this context! That is what I did before I joined. I was looking for someone 'like me' after my transplant in 2009. I have a liver/kidney transplant. (Primary Sclerosing Cholangitis -PSC) I transplanted at Mayo Rochester. We have patients from many areas, and I am constantly learning and being inspired by all of our members.

Waiting is difficult. "Day by day" and "One step at a time". All of our members are part of this journey and we are sharing and encouraging each other as we move along. We look forward to walking with you.
Rosemary

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kltchrmn | @kltchrmn | Apr 22, 2018
In reply to @kltchrmn "I take Lactulose and Xifaxan. I’m also on diuretics. For me, the Lactulose makes it easier..." + (show)
@kltchrmn

I take Lactulose and Xifaxan. I’m also on diuretics. For me, the Lactulose makes it easier to go. Before I started Lactulose, I had really bad constipation.

Jump to this post

Pre-transplant at Mayo Rochester.

REPLY
Moderator
Colleen Young, Connect Director | @colleenyoung | Apr 22, 2018
In reply to @rosemarya "@jodeej , JoDee, Since you are in Rochester, you might find some resources at the Barbara..." + (show)
@rosemarya

@jodeej , JoDee, Since you are in Rochester, you might find some resources at the Barbara Woodward Lips Patient Education Center. The center is located in the Siebens Building, Subway Level, near the Siebens elevators and the Mayo Clinic Store and the Patient and Visitor Cafeteria. The library receptionist can help you locate hard copy materials. And there is a research librarian who might be able to help you locate information or resources.
https://www.mayoclinic.org/patient-visitor-guide/education-centers/patient-education-minnesota
Rosemary

Jump to this post

@jodeej, as a Mayo Clinic patient, you can request a librarian to search information for you. I’m writing to you while I’m out and about. When I get back to my home office, I’ll send you information on how to do this.

REPLY
Mentor
Rosemary, Volunteer Mentor | @rosemarya | Apr 22, 2018
In reply to @kltchrmn "I take Lactulose and Xifaxan. I’m also on diuretics. For me, the Lactulose makes it easier..." + (show)
@kltchrmn

I take Lactulose and Xifaxan. I’m also on diuretics. For me, the Lactulose makes it easier to go. Before I started Lactulose, I had really bad constipation.

Jump to this post

@kltchrmn
Here are some discussions that you might find informative.
https://connect.mayoclinic.org/discussion/liver-pre-transplant-question/
https://connect.mayoclinic.org/discussion/are-there-any-other-pre-liver-transplant-caregivers-out-there/
https://connect.mayoclinic.org/discussion/transplant-evaluation-what-to-expect/
Rosemary (liver/kidney at Mayo Rochester 2009. (9 years ago today!)

REPLY
JK | @contentandwell | Apr 24, 2018
In reply to @kltchrmn "I take Lactulose and Xifaxan. I’m also on diuretics. For me, the Lactulose makes it easier..." + (show)
@kltchrmn

I take Lactulose and Xifaxan. I’m also on diuretics. For me, the Lactulose makes it easier to go. Before I started Lactulose, I had really bad constipation.

Jump to this post

@rosemarya I hope you had a happy transplantiversary. Do you do anything special to celebrate? I have only had one transplantiversary so far and it happened to be on the day that my son-in-law's parents had a pre-wedding Hindu ceremony for the couple. My son-in-law did give me a beautiful toast at the luncheon afterward, which was nice. I even took a tiny sip of champagne -- very tiny.
JK

REPLY
Mentor
Rosemary, Volunteer Mentor | @rosemarya | Apr 25, 2018
In reply to @kltchrmn "I take Lactulose and Xifaxan. I’m also on diuretics. For me, the Lactulose makes it easier..." + (show)
@kltchrmn

I take Lactulose and Xifaxan. I’m also on diuretics. For me, the Lactulose makes it easier to go. Before I started Lactulose, I had really bad constipation.

Jump to this post

@contentandwell, Thanks, JK. It is always a very emotional day for me. Early on someone told us to be sure to celebrat the blessed event every year by doing something special, like you might remember a birthday.
We went out for a nice quiet dinner. And we raised our iced tea and lemonade in a toast!
Rosemary

REPLY
Moderator
Colleen Young, Connect Director | @colleenyoung | May 4, 2018
In reply to @amyintucson "I use both Xifaxan and Lactulose. I think everyone's costs are different depending on insurance -..." + (show)
@amyintucson

I use both Xifaxan and Lactulose. I think everyone's costs are different depending on insurance - I pay $175 for a 90 day supply of Xifaxin and Lactulose is $10 for a 30 day supply. If I stop taking either one, while my digestive system may feel better, my husband can see the difference in my concentration.

Jump to this post

Hi @amyintucson, Just checking in. How are you doing?

REPLY
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