Ascending Aortic Dilation - Ascending Aortic Aneurysm
I was diagnosed in 2012 with ascending aorta dialation of 4.1 cm. In 2013 no change. Finally went back to dr in 2017 and echo showed 4.3 cm. 2 months later dr made me have a chest scan which read 4.5 cm. which is correct? Echo or scan? Dr wants me to have another in 6 months. Very stressful.
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@Drew944 I think you need to just take a deep breath and not be so scared. I am sure your cardio has you monitored for the rate the aneurysm is growing and that is the critical issue. If your aneurysm is as slow growing as mine is, it may be 20 + years or more before you need surgical repair. And by then, they may have an entirely different way of repairing it.
I suggest you talk to your cardio about how fast this is growing and knowing it is not growing at a fast rate might give you some peace of mind. I am sure your cardio has suggested limiting how much you lift and that must be tough when you have such little children. But you can sit and they can crawl into your lap and you can have the same cuddling without the lifting. When necessary, I do lift things that perhaps I shouldn't but so far, the aneurysm is hardly growing at all. I have been warned to NEVER shovel snow so I don't and I don't do any work/exercise outside in the cold of winter.
Think positively. Knowing you have this is better than having it and not knowing it is there. I understand your fear and how devastated you must feel but don't let your fear steal your enjoyment of life. I wish you well.
Thank you!
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1 ReactionI thank you all so much for your wonderful support and kind words, I support you all too. TBD on the growth as stable actually lower reading from June to September so think won’t have another until June next year but maybe sooner if I can get it. Switching from Kaiser to Blue so I can choose. Working on living without the fear. Been told by cedars and mayo that since monitored and can be repaired if needed at 98-99% that we should be fine and that risk is like or better than anything else we do. Best to all
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2 Reactions@annejam No, I have not had surgery for repair of the aneurysm. My cardio told me to limit what I lift. I am sure the 25 lb limit is conservative and I am sure I occasionally lift more such as lifting my suitcase off the rack before proceeding to roll it where I need it to be. I am just careful to stay in the general range of 25 lbs.
How do you know that you should not lift over 25lbs? You have not had surgery yet?
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1 Reaction@degarden_girl, I totally agree with the advice you gave @Drew944. When I was first diagnosed, we were immediately thankful that at least we knew and we could be proactive with my care. My son also has this very same thing. He is 37 years old, with a 5, 2 and 6 month old. He is monitored every year and follows his cardiologists recommendations. He doesn't dwell on his diagnosis, and lives life to the fullest and most importantly enjoys and loves those little ones. Like @dgarden_girl said, don't let your fear steal your enjoyment of life.
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1 ReactionI just returned from my first visit with the cardio/thoracic surgeon. He gave me good news that my ascending aortic aneurysm is 3.9 and technically not at the 4.0 stage for a true aneurysm. But I will get the echo cardio gram and another CAT scan in a year to see if it is stable. He assured me that there really is only a 3% chance of it rupturing at this level. And of course as the centimeters increase so does the chances. But they still do not do surgery until 6 cm because there is a greater risk of rupture than the surgery. So I am content to just get my yearly screenings and he said there is a great chance that I will never be operated on but you have to be vigilant with your check ups. And not lift over 30 pounds, but continue to do aerobic exercise !
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1 ReactionThat's wonderful, @maryswims, I'm so pleased for you!
Sounds like very good news for you. Just always follow up with the screenings and stay active. Stay positive too, I really believe that helps.
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1 ReactionHas anyone discovered effective techniques or treatments to keep the size of the aneurism stable?
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