I don’t believe there is an absolute “cure” but I’ve known people who had surgery and haven’t had any more seizures. One guy seizure free for 25 years and another for 45 years. They probably consider themselves cured but who knows, some people go decades between seizures. I always felt Epilepsy is controlled not cured. I don’t remember any docs or researchers mentioning a “cure”
Hi yeye2020. I would say yes. I have come across people who had surgery done and are now free from seizures for many years and no longer on medication. That is cure for me. My 18 year old daughter who has been epileptic for 12 years, just had a modified hemispherectomy done. She is now recovering but unable to have physio due to terrible pain in her right hand and foot. Has anyone had or heard anyone who has undergone this procedure?
Hi yeye2020. I would say yes. I have come across people who had surgery done and are now free from seizures for many years and no longer on medication. That is cure for me. My 18 year old daughter who has been epileptic for 12 years, just had a modified hemispherectomy done. She is now recovering but unable to have physio due to terrible pain in her right hand and foot. Has anyone had or heard anyone who has undergone this procedure?
Colleen Young, Connect Director | @colleenyoung | May 6, 2018
Hi @yeye2020, welcome to Connect. I agree with @jakedduck1 that most medical professionals refrain from using the word cure. Instead they will use phrases like seizure-free or well-managed epilepsy.
@yeye2020, what type of epilepsy or seizures does your son have?
Hi yeye2020. I would say yes. I have come across people who had surgery done and are now free from seizures for many years and no longer on medication. That is cure for me. My 18 year old daughter who has been epileptic for 12 years, just had a modified hemispherectomy done. She is now recovering but unable to have physio due to terrible pain in her right hand and foot. Has anyone had or heard anyone who has undergone this procedure?
Hi yeye2020. I would say yes. I have come across people who had surgery done and are now free from seizures for many years and no longer on medication. That is cure for me. My 18 year old daughter who has been epileptic for 12 years, just had a modified hemispherectomy done. She is now recovering but unable to have physio due to terrible pain in her right hand and foot. Has anyone had or heard anyone who has undergone this procedure?
Hi @ndapanda ,
My son had a hemispherectomy done in February 2017. He is now 7 years old , and he still claims about pain in his foot eventually. Just after surgery he was able to have physio, but then his right hand started to be painful . He usually gets cramp and pain in his foot . I Really think it is some side effects of the surgery, some kind of neuropathy ... I don’t know if I was helpful here...
Best wishes for your daughter! Health and Peace.
With love
Pat
Hi yeye2020. I would say yes. I have come across people who had surgery done and are now free from seizures for many years and no longer on medication. That is cure for me. My 18 year old daughter who has been epileptic for 12 years, just had a modified hemispherectomy done. She is now recovering but unable to have physio due to terrible pain in her right hand and foot. Has anyone had or heard anyone who has undergone this procedure?
Hi Patrassi,
Yes, they did suggest that it is temporary. We are now doing physio for arm and leg and hand is in a splint. It is going fine but the pain is the problem
Hi yeye2020. I would say yes. I have come across people who had surgery done and are now free from seizures for many years and no longer on medication. That is cure for me. My 18 year old daughter who has been epileptic for 12 years, just had a modified hemispherectomy done. She is now recovering but unable to have physio due to terrible pain in her right hand and foot. Has anyone had or heard anyone who has undergone this procedure?
Connect
Connect
Like
Helpful
Hug
I don’t believe there is an absolute “cure” but I’ve known people who had surgery and haven’t had any more seizures. One guy seizure free for 25 years and another for 45 years. They probably consider themselves cured but who knows, some people go decades between seizures. I always felt Epilepsy is controlled not cured. I don’t remember any docs or researchers mentioning a “cure”
-
Like -
Helpful -
Hug
2 ReactionsHi yeye2020. I would say yes. I have come across people who had surgery done and are now free from seizures for many years and no longer on medication. That is cure for me. My 18 year old daughter who has been epileptic for 12 years, just had a modified hemispherectomy done. She is now recovering but unable to have physio due to terrible pain in her right hand and foot. Has anyone had or heard anyone who has undergone this procedure?
Hi Anna @ndapanda,
I'm bringing @patrassi into this discussion. Her son had a hemispherectomy and may be able to share their experience with you.
Anna, did the surgeons suggest that the pain in her right hand and foot is temporary?
Hi @yeye2020, welcome to Connect. I agree with @jakedduck1 that most medical professionals refrain from using the word cure. Instead they will use phrases like seizure-free or well-managed epilepsy.
@yeye2020, what type of epilepsy or seizures does your son have?
-
Like -
Helpful -
Hug
1 Reaction@ndapanda and @patrassi I just realized that the 2 of you have already connected here: https://connect.mayoclinic.org/discussion/brain-surgery/
-
Like -
Helpful -
Hug
1 ReactionHi @ndapanda ,
My son had a hemispherectomy done in February 2017. He is now 7 years old , and he still claims about pain in his foot eventually. Just after surgery he was able to have physio, but then his right hand started to be painful . He usually gets cramp and pain in his foot . I Really think it is some side effects of the surgery, some kind of neuropathy ... I don’t know if I was helpful here...
Best wishes for your daughter! Health and Peace.
With love
Pat
Hi Patrassi,
Yes, they did suggest that it is temporary. We are now doing physio for arm and leg and hand is in a splint. It is going fine but the pain is the problem
You were helpful, thank you very much. That gives me hope!
Hello my name is Susan, I'm 51 and had a implant to stop my grand mal seizures now I need to stop my pedimal ones.
What type of implant did you have? RNS, Vegal nerve?