Transplant Evaluation - What to expect

I go back to Rochester on the 16th and 17th. Of March for follow up and more testing... I'm still waiting for a transplant

@racing212 I hope the tests go well and your wait for a transplant isn’t too long. It really can be so wearying.
JK

I'm in the hospital now due to HE episode

@racing212 I am sorry this has happened to you, but on the bright side if you are able to still communicate coherently it must be a relatively minor episode. There is no way I would have been able to communicate well when I was having an HE episode.
I hope your stay will be brief.
JK

@racing212 Oh, dear. Take care and hoping your recover from this quickly.
Ginger

Thank you... Sounds like I'll be out tomorrow

@racing212, It is going to get crowded in your room because we are all there with you! I hope that you are comfortable.

I have gone to hospital for elevated fevers, but not for HE. What led younto where you are now? Did you go to ER first? What signs/symptoms were you having? Has this been reported to your transplant team at Mayo? (answer when you feel better)

I was in the ER Saturday night with excruciating hip pain due to weight bearing on the leg that has pitting edema from fluid buildup and the doctor at the local ER acted like I was faking just to get pain meds and did a lot of tests but didn't consider any of those findings and told me to take Tylenol and Advil although I told him more than once I couldn't due to liver failure. Prior to my diagnosis in December, I was an auditor and had Blue Cross and after I had to quit working because of 2 admits for HE with complete amnesia....I applied for disability and haven't gotten it yet and I'm having major financial difficulties....I was approved for medicaid but that meant I had to change all my doctors, and wait for referrals. My evaluation was approved by Humana Medicaid prior to the end of my Blue Cross since there was a 1 month overlap. I now won't have my first appointment with a gastro doctor until April 6 after my evaluation. I will be losing my home and car and saved my last check to move with. I'm 30 miles to the nearest medical facility prior to moving and 100 miles to Mayo Clinic Jax. Friends donated to cover my hotel and food for the evaluation trip or I wouldn't be able to go so lots on my plate and much frustration at the moment.

Being the hospital is no fun. My meld score was not very high initially but the secondary issues were tough to deal with. At one point, my amonia level was up to 400 and my doctors were shocked i was coherent. Goes to show how different our bodies react.

Hope to hear hear that you are doing better, perhaps even with a new liver.

I had ammonia level of 90 when I had HE and complete amnesia....very scary! It sounds funny now but it wasn't then. When the ambulance came the paramedic asked me who the president was and I said Forrest Gump 🙂