Thyroid? Or something else? Constant internal shakiness

@jeweles63. Please keep us posted. My heart goes out to you for dealing with for so long

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Hello @jewles63, You haven't posted in awhile and I was wondering how you are doing with your neuropathy and other symptoms. Are you still on Gabapentin for your neuropathy pain symptoms? Have your doctors found anything else on the heart palpitations or internal vibrations?

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Hello @jewles63, You haven't posted in awhile and I was wondering how you are doing with your neuropathy and other symptoms. Are you still on Gabapentin for your neuropathy pain symptoms? Have your doctors found anything else on the heart palpitations or internal vibrations?

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Hello @joyg and @buddah, Welcome to Mayo Clinic Connect. It sounds like you both have upcoming doctors appointments. I hope they will be able to come up with a diagnosis and treatment plan for each of you. If possible, can you share an update with us after your appointment?

I did find some articles that may provide some more information for you.

What causes internal vibrations?
-- https://www.medicalnewstoday.com/articles/322217.php

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Hello John or whom ever I can get ahold of. I’ve been reading bout this situation here bout if thyroid could be the cause of tremors I’m having. I have hoshimoto. I recently googled “what could be causing my body to have vibrations?” And the link came up also what you had replied to a lady. Mentions Parkinson’s. On the site they call this as tremors. I call it vibrations. W this CoVid19, my husband was layed off work n his insurance expired that midnight. Been since last March. So I’ve not been able to go to my Dr with cost of $80 just to see my Dr. cash only. But I think I’m at the point to lay out the $. My husband is 63 now n I’m 60. My mom died w Parkinson’s n Heart failure. I also have RSD. But even though this is the same feeling as having my Spinal Cord stimulator turned on it’s not that. I’ve not been able to use it past 3-4 yrs as the battery died. Had it put in 2007. I been having bad occipital nerve pain on my left side. I saw a neurologist nearly 2 yrs ago n was swollen on those nerves back of my head. Had nerve block which was more than painful n aggravated that area more. Took 8 months or more just to get it able to live with. But the past 5-6 months I’ve been having these vibrations n my left side. Started like buzzing n bottom of my foot. Now it’s up all my left side n goes up to back of my neck n round part of my head. When I lay on my back I can feel it all through out my body all way up my butt cheeks n belly. It’s like trying to shake off n I can’t. It’s also buzzing n my right foot up my leg. N back of both my arms. It’s like involuntary waving of my arms cause it’s nerve racking n I’m trying to shake it off.I hold out my hands n front of me n the hey both tremble some w the right side more. I’m right handed. So I’m wondering if it could be Parkinson’s related as my mom died w it. Also another issue. I’m really broken. But I also have POTS Disease. Midodrin not helping. N I really can’t afford to see the heart Dr right now so I asked Siri n she directed me here. But w my Orthostatic problem I’m not able to be up very long. I go to the kitchen n I’m bout to drop after 10 min of cuttin up a chicken. My BP drops n my heart races up high. BP has gotten to 65/40. N when I take a shower I can’t stand no longer than 5 min till it happens again n when I do get out I end up puking. Every time I puke. It’s been 10 days n I’m needing a shower as I’m getting ranked w my own sweat which is another issue I’m continually sweating like a cotton picker. I do anything n I start sweating like crazy then chills. I’m sweating n freezing cold at the same time. I’m always sweating. I can’t wear a coat. N it’s cold in Michigan right now. So since Christmas I’ve been laying down a lot Thinkin maybe might make me bet but it’s just worse. What does any of this info lead to your mind? I’ve fallen few times n passed out from this. So any sort of idea that you can relate any of this to, I’d sure appreciate your perspective.

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Hi, I have had some of these same symptoms for over a year and about 4 doctors later I’m still not any closer to finding out why this is happening. It started out with chest pain lasting about 15 minutes that sent me to a doctor, after running some blood tests and a normal ecg he diagnosed me with Hasimotos and sent me for an ultrasound of my thyroid. I started levthyroxin and multiple nodules were found and my thyroid was enlarged, but we will keep an eye on it. (He said)! Still getting chest pain I was sent to a cardiologist where after lots of tests was found to be normal (lol) ! Now I have a vibration throughout my body that is driving me nuts.. Sent to a neurologist that found neuropathy in my legs and feet and started another medication for that. Still get the chest pain about once or twice a month and vibrate like a cell phone . I’m at a loss...and another ultrasound scheduled this week!

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Hi jewles63, I just read your message and I relate to you and your symptoms. I had my thyroid Iodine treatment in 1984 and now I do not have a thyroid gland at all. I also take levothyroxine prescribed to me by an Endocrinologist. She has upped my dose recently as my thyroid is too low and my parathyroid is far too high. I do have a cyst on my parathyroid gland. She also took me off taking Calcium tablets every day. I too, also get the shakes through my whole body and no Dr. has ever told me what this could possibly be. I almost fall all the time, so I stay home a lot. I am not sure if I have ever told the specialist. Perhaps she would help with this problem. I am going to call her. I also want to tell you that for about five years I suffered so much pain in my chest that I couldn't breathe properly. I saw many specialists including having many heart tests done, Holter monitor, treadmill test done while laying on a bed with dye. I forget now what this is called. It takes hours to do it and I have had it done twice. I have been told that my heart is fine and that perhaps I have Costochondritis. After so many years of suffering, I cried to my Dr. and told her that I couldn't stand the pain any longer and she gave me a script for Amitriptyline, and guess what? My pain has totally gone away. I take two pills at bedtime and no more pain. It is truly a blessing for me. I am not sure if you have the same type of pain as I do, but it was always in my chest where my breastbone is. I stopped going anywhere because of this pain. Now I have Bursitis in my shoulders and am in so much pain every day. Getting older sucks big time.

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I used to have the horrid night sweats and heart palpitations too. I take a heart regulating med called Metoprolol. I had the tilt table test at Mayo and they said I had POTS (Postural Orthostatic Tachychardia Syndrome) meaning when I adjust posturally my heart rate changes. I had the dizziness to the point where I would actually have to catch myself to keep from falling as well. Ever since I have been on the med I haven't had any issues at all. My night sweats stopped when I got on a good dose of Thyroid medication. It is a good sign for me to pay attention to because if it starts again I know my meds are off and to go see my Endocrinologist to check my levels. A random doctor that wasn't even mine stopped to look at my chart one day and asked if I had been tested for Graves. That sent me to an Endocrinologist (The only specialty I had not seen) and he ran the specific blood tests for Graves, Addisons, and Hashimoto's. I swear when I went back for the results and he said I 100% had Hashimoto's I stood up right there and did the dance of joy that I had a disease! Because it turns out I wasn't imagining things or faking symptoms. It finally had a name and if it had a name I could do something about it before it killed me. A regular thyroid level will not show you whether you have it or not. You have to test specifically for those three things. SO see an Endocrinologist and when you make the appt ask if they specialize in Graves or Hashimoto's. It makes a difference. If you have it you will start on meds that will take a little adjusting to get a good level to control everything that is happening but I swear there is an end game!.I can go outside in the daytime without dying in minutes from heat intolerance. I can work a part time job now instead of being home bound. I sleep an entire night through without waking up. I haven't fallen or had a significant dizzy spell in almost 2 years. My heart palpitations have stopped completely.Removing the thyroid is NOT for everyone. If you have HD it can be managed with medication. Mine had just been undiagnosed and active for 7 1/2 years so there was just too much damage to almost everything inside my body for me to be able to manage it with just meds. I wish you luck! I don't hope that you have HD but I hope that you have HD, (You understand that. ) Most people do not know this but your Thyroid LITERALLY tells every cell in your body what to do so when it is broken everything goes haywire in your body. If it gets to the point of removal I can point you to the best doctor at Mayo in Jacksonville, Florida, to do it. He has done more than 2500 Thyroidectomy's and is the chair of the department. I went to the top guy and I am so glad that I did. It could not have turned out to have a better result for me. First step you have to go see an Endocrinologist to have the blood test. The results can literally change your life.

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I suffer from Graves disease and am looking to possible thyroid removal. Would you please share the name of the doctor at the Mayo clinic in Jacksonville that has performed more than 2500 Thyroidectomy's? Thank you so much!

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