Thyroid? Or something else? Constant internal shakiness
Going on 2months now everyday non stop. Sometimes mild and im able to ignore it but over the hours of day it becomes more severe and causing my heart rate to go up and my blood pressure to go very high (170/99) its episodic. Ive been to hospital for it 3 times for it and received no treatment as my vitals slowly return to normal. Xanex helps me feel calm but does not help the shakiness just helps me not get upset about it. Am only 28 years old and hypothyroid. I have never had symptoms like this in my entire life just started out of nowhere. Iam in good sTate of mind and aware of what's happening when the episodes happen. So far my doctors are clueless.
Interested in more discussions like this? Go to the Diabetes & Endocrine System Support Group.
Thx
Recently switched to lyrica. And referred to mayo
Apparently all replies are going to my junk folder ( that I very rarely check) so I apologize for the extreme delay .
Hello John or whom ever I can get ahold of. I’ve been reading bout this situation here bout if thyroid could be the cause of tremors I’m having. I have hoshimoto. I recently googled “what could be causing my body to have vibrations?” And the link came up also what you had replied to a lady. Mentions Parkinson’s. On the site they call this as tremors. I call it vibrations. W this CoVid19, my husband was layed off work n his insurance expired that midnight. Been since last March. So I’ve not been able to go to my Dr with cost of $80 just to see my Dr. cash only. But I think I’m at the point to lay out the $. My husband is 63 now n I’m 60. My mom died w Parkinson’s n Heart failure. I also have RSD. But even though this is the same feeling as having my Spinal Cord stimulator turned on it’s not that. I’ve not been able to use it past 3-4 yrs as the battery died. Had it put in 2007. I been having bad occipital nerve pain on my left side. I saw a neurologist nearly 2 yrs ago n was swollen on those nerves back of my head. Had nerve block which was more than painful n aggravated that area more. Took 8 months or more just to get it able to live with. But the past 5-6 months I’ve been having these vibrations n my left side. Started like buzzing n bottom of my foot. Now it’s up all my left side n goes up to back of my neck n round part of my head. When I lay on my back I can feel it all through out my body all way up my butt cheeks n belly. It’s like trying to shake off n I can’t. It’s also buzzing n my right foot up my leg. N back of both my arms. It’s like involuntary waving of my arms cause it’s nerve racking n I’m trying to shake it off.I hold out my hands n front of me n the hey both tremble some w the right side more. I’m right handed. So I’m wondering if it could be Parkinson’s related as my mom died w it. Also another issue. I’m really broken. But I also have POTS Disease. Midodrin not helping. N I really can’t afford to see the heart Dr right now so I asked Siri n she directed me here. But w my Orthostatic problem I’m not able to be up very long. I go to the kitchen n I’m bout to drop after 10 min of cuttin up a chicken. My BP drops n my heart races up high. BP has gotten to 65/40. N when I take a shower I can’t stand no longer than 5 min till it happens again n when I do get out I end up puking. Every time I puke. It’s been 10 days n I’m needing a shower as I’m getting ranked w my own sweat which is another issue I’m continually sweating like a cotton picker. I do anything n I start sweating like crazy then chills. I’m sweating n freezing cold at the same time. I’m always sweating. I can’t wear a coat. N it’s cold in Michigan right now. So since Christmas I’ve been laying down a lot Thinkin maybe might make me bet but it’s just worse. What does any of this info lead to your mind? I’ve fallen few times n passed out from this. So any sort of idea that you can relate any of this to, I’d sure appreciate your perspective.
Hello @champton, Welcome to Mayo Clinic Connect. I'm sorry to hear that your husband has been laid off of work and you also lost your health insurance. I can't begin to imagine how hard that must make it for you and your husband. As members of Connect we can only share our experiences and not give medical advice or diagnosis.
@hopeful33250 may be able to share her thoughts about the possibility of Parkinson's. Mayo Clinic has some lifestyle and home remedy information related to abnormal excessive sweating (Hyperhidrosis) that you may find helpful.
- Hyperhidrosis - Diagnosis & treatment: https://www.mayoclinic.org/diseases-conditions/hyperhidrosis/diagnosis-treatment/drc-20367173
You might want to see what help is available in your area for low cost health care if you don't qualify for Medicaid.
- How to find low-cost health care in your community: https://www.healthcare.gov/community-health-centers/
You mentioned not being able to take a shower because you can't stand more than a few minutes. Have you thought about any alternatives like using a washcloth while sitting close to a sink or bathtub?
I think the relationship with your doctor is a team effort - not one sided towards the doctor.
You bring your history to the table - the doctor brings medical information.
So - for your side - Is there anything you have changed in your environment . food, drink, sleep habit, exercise, spice, .
It could be a very small thing that your body might react to.
next a thorough blood test to see if anything is out of balance.
3rd - do an internet search of your symptoms - there are a lot of natural thinks you can try.
hope you feel better
Hi jewles63, I just read your message and I relate to you and your symptoms. I had my thyroid Iodine treatment in 1984 and now I do not have a thyroid gland at all. I also take levothyroxine prescribed to me by an Endocrinologist. She has upped my dose recently as my thyroid is too low and my parathyroid is far too high. I do have a cyst on my parathyroid gland. She also took me off taking Calcium tablets every day. I too, also get the shakes through my whole body and no Dr. has ever told me what this could possibly be. I almost fall all the time, so I stay home a lot. I am not sure if I have ever told the specialist. Perhaps she would help with this problem. I am going to call her. I also want to tell you that for about five years I suffered so much pain in my chest that I couldn't breathe properly. I saw many specialists including having many heart tests done, Holter monitor, treadmill test done while laying on a bed with dye. I forget now what this is called. It takes hours to do it and I have had it done twice. I have been told that my heart is fine and that perhaps I have Costochondritis. After so many years of suffering, I cried to my Dr. and told her that I couldn't stand the pain any longer and she gave me a script for Amitriptyline, and guess what? My pain has totally gone away. I take two pills at bedtime and no more pain. It is truly a blessing for me. I am not sure if you have the same type of pain as I do, but it was always in my chest where my breastbone is. I stopped going anywhere because of this pain. Now I have Bursitis in my shoulders and am in so much pain every day. Getting older sucks big time.
Thanks for the info, I have a neurologist appointment in June @ Shands , Mayo doesn’t except my insurance. Waiting 8 months for an appointment truly sucks... my current neurologist referred me to see if he’s missing something because I no have no reflex in my arms and am falling too often. As for my heart I was finally was diagnosed @ Shands with micro vascular disease aka small vessel disease . And yes getting old ain’t for the weak...
I suffer from Graves disease and am looking to possible thyroid removal. Would you please share the name of the doctor at the Mayo clinic in Jacksonville that has performed more than 2500 Thyroidectomy's? Thank you so much!
Hi @moman, welcome to Mayo Clinic Connect. @blulilbaby shares more about her thyroidectomy in this discussion including praise from Dr. Casler at Mayo Clinic in Florida:
- Thyroidectomy https://connect.mayoclinic.org/discussion/thyroidectomy/?pg=1#comment-341124
If you are considering Mayo Clinic, here's the contact information to request an appointment: http://mayocl.in/1mtmR63
Moman, how are you currently managing your Graves' disease?