Watching a Meningioma Brain Tumor

I tripped and fell again today, another accidental fall. I’m experiencing some mild concussion symptoms again (headache, dizziness) but haven’t called my doctor. It does make me think about the meningioma again.

I tripped and fell again today, another accidental fall. I’m experiencing some mild concussion symptoms again (headache, dizziness) but haven’t called my doctor. It does make me think about the meningioma again.

What now keeps me somewhat on track is that I was only on the operating table for 1.5 hrs..- incision closed with 34 staples - main chewing muscles on the left side of my face - oh, I can go on and on. I was not informed about so many elements of my "short" brain surgery! My balance is ruined BUT then my cogntive abilities are very good and getti g back to where I was before I had the deadly seizure.
I have been grieving about the tumour and now I am in the angry phase of this process.
And I have not even touched upon the severe depression I endured for several months fter having my brain opened up.
Hard, hard decision to be reached without family or support.

Hi, @kkenn, and welcome to Mayo Clinic Connect.

You may be interested in this Mayo Clinic information on meningioma: https://www.mayoclinic.org/diseases-conditions/meningioma/symptoms-causes/syc-20355643.

You mentioned that after sending you for an MRI, the doctor you saw about newly acquired migraines did not think your migraines were caused by the meningioma in the falx and parasagittal regions with which you were recently diagnosed. Hoping that some of the other members in this discussion might have some thoughts about the migraines and also may have some insights for you as someone who is newly diagnosed with a meningioma. Please meet @robinem @cindyt63 @sandra511@wendyah @wkindel and others.

Did your doctor talk about what might be causing the migraines, @kkenn?

Hello @kkenn

I would like to add my welcome, along with Lisa's, @lisalucier, to Mayo Connect. I looked at the National Institute of Health website that discusses this type of surgery. Here is the link to the article,
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4831269/
Have you had any paresis or symptoms other than the migraines?

I had a 9cm brain tumor removed 6 weeks ago. It is wrapped around my carotid artery and optic nerve on my left side. The neurosurgeon could only remove 85% of the tumor. I have lost vision in my left eye due to the tumor. My jaw is still really bothering me where they had to cut and remove tumor. I can't open my mouth wide and having a hard time eating. I have a lot of pain when I eat. Is this normal and just part of healing? It hurts in my tmj area temple area. I am good to a neuro-opthamologist October 15th to see what else to except with my eye. The neurosurgeon said I will eventually go completely blind in left eye so I hope to learn more on October 15th of what to expect.

Hi @mrector, welcome to Connect. It takes time to heal after surgery. However, I would hope that some of the pain in your jaw would start to subside. Have you talked to your surgeon about it? It would also be good to mention it at your upcoming appointment with the neuro-opthamologist.

You may also be interested in this discussion on Connect:

- Optic Nerve Meningioma patients https://connect.mayoclinic.org/discussion/optic-nerve-meningioma-patients/

@lisalucier @hopeful33250
I went to the doctor today and was diagnosed with a concussion. The headaches continue so I’m supposed to limit my activity for a few days. I know this is very minuscule in comparison to what many of you are facing. I simply wanted to let you know that I did go to the doctor.

I've had some ringing in my left ear recently.