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robinem
@robinem

Posts: 2
Joined: Feb 08, 2018

Watching a Meningioma Brain Tumor

Posted by @robinem, Feb 8, 2018

I’ve just been diagnosed with a 2cm meningioma tumor on the right front of my head. I am 59 years old and the surgeon has told me I will need to “do something” with my tumor someday since I am younger. What is the benefit of waiting?

REPLY

@mrector after meeting with Dr. Riemer he ordered another MRI to rule out the possibility of an aneurysm due to the impact of the ICA. I meet with his partner the day before surgery as both doctors will be involved during the surgery. Can you share with me what to expect after surgery, ie, while still in the hospital and then after going home. I hope you are continuing to heal and gaining strength. I think it would be helpful if we all lived close as to have group meetings to help each other through this. I lost my daughter 1.5 years ago to blood clots (she had pancreatic cancer).

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@kmart

@mrector after meeting with Dr. Riemer he ordered another MRI to rule out the possibility of an aneurysm due to the impact of the ICA. I meet with his partner the day before surgery as both doctors will be involved during the surgery. Can you share with me what to expect after surgery, ie, while still in the hospital and then after going home. I hope you are continuing to heal and gaining strength. I think it would be helpful if we all lived close as to have group meetings to help each other through this. I lost my daughter 1.5 years ago to blood clots (she had pancreatic cancer).

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@kmart I am praying for you. I'm sorry for your loss of your daughter.
After surgery I was in ICU for 2 days. My left eye swelled shut after surgery and face was swollen. I was on morphine so I don't remember a lot. I don't remember being in pain. When I came home I took Tylenol for any pain I had. I was very weak so I stayed with my mom for a few days. I had no energy and slept a lot. After about 7 weeks after surgery I started feeling like me again. My energy level is still not great but I also have a bad back, so that doesn't help. My vision is getting worse in my left eye but my neurosurgeon said that would happen. I will have MRIs every 6 months for the rest of my life to monitor the remaining tumor and if it grows I will have radiation therapy. If you have any specific questions please ask and I will try to answer them. I'll post a picture of me almost 2 days after surgery so you can see. It looks worse than it felt

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@mrector

@kmart I am praying for you. I'm sorry for your loss of your daughter.
After surgery I was in ICU for 2 days. My left eye swelled shut after surgery and face was swollen. I was on morphine so I don't remember a lot. I don't remember being in pain. When I came home I took Tylenol for any pain I had. I was very weak so I stayed with my mom for a few days. I had no energy and slept a lot. After about 7 weeks after surgery I started feeling like me again. My energy level is still not great but I also have a bad back, so that doesn't help. My vision is getting worse in my left eye but my neurosurgeon said that would happen. I will have MRIs every 6 months for the rest of my life to monitor the remaining tumor and if it grows I will have radiation therapy. If you have any specific questions please ask and I will try to answer them. I'll post a picture of me almost 2 days after surgery so you can see. It looks worse than it felt

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I wish we lived closer too I would love to have a group where we could meet and talk about the recovery and what to expect in the future. This is definitely a life changing experience

@mrector

@kmart I am praying for you. I'm sorry for your loss of your daughter.
After surgery I was in ICU for 2 days. My left eye swelled shut after surgery and face was swollen. I was on morphine so I don't remember a lot. I don't remember being in pain. When I came home I took Tylenol for any pain I had. I was very weak so I stayed with my mom for a few days. I had no energy and slept a lot. After about 7 weeks after surgery I started feeling like me again. My energy level is still not great but I also have a bad back, so that doesn't help. My vision is getting worse in my left eye but my neurosurgeon said that would happen. I will have MRIs every 6 months for the rest of my life to monitor the remaining tumor and if it grows I will have radiation therapy. If you have any specific questions please ask and I will try to answer them. I'll post a picture of me almost 2 days after surgery so you can see. It looks worse than it felt

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Wow, you sure have been through a lot. Stay strong and proactive as you sound like someone that can conquer whatever challenge you are presented with. I do have questions that if you can answer I will greatly appreciate. 1. When do they shave the head? A day after surgery did they allow you to wear your own clothes? How quickly did they get you up after surgery? How did you handle the steroids? How long were you on steroids? Is it strictly pain in the incision area? How long did it take for the pain to subside? You mentioned that you were on morphine and don't remember a lot. I was given morphine when I had a total knee replacement and it made me very sick. Were you nauseated? If so, for how long? Thanks so much. Where did you have your surgery?

Liked by mrector

@kmart

Wow, you sure have been through a lot. Stay strong and proactive as you sound like someone that can conquer whatever challenge you are presented with. I do have questions that if you can answer I will greatly appreciate. 1. When do they shave the head? A day after surgery did they allow you to wear your own clothes? How quickly did they get you up after surgery? How did you handle the steroids? How long were you on steroids? Is it strictly pain in the incision area? How long did it take for the pain to subside? You mentioned that you were on morphine and don't remember a lot. I was given morphine when I had a total knee replacement and it made me very sick. Were you nauseated? If so, for how long? Thanks so much. Where did you have your surgery?

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@kmart I shaved my head the Saturday before my surgery on Tuesday. If you don't want your whole head shaved the dr will shave the area he needs after you are put to sleep. I was allowed to use pajamas the third day after surgery after I was moved into a regular room. I was allowed to walk and sit in a chair the third day after surgery. I handled the steroids well. I took them in the hospital and took them for a week after I got home from the hospital. My pain was more like a headache. The insision and surrounding areas are numb from where they cut, so that doesn't really hurt. I was given morphine while I was in ICU and don't remember a lot about that time. I didn't know I was on morphine until my mom told me. When I was moved to a regular room I took Loratab by mouth when needed. I took Tylenol when I got home from the hospital when needed. At my preop appointment I told them that I usually get sick from anesthesia so they gave me medicine through my iv to help with that and I didn't get sick at all. I also told them at preop all the medications that I have had a bad reaction to after surgery so they avoided giving me those. Tell them at your preop appointment anything you have had a reaction to after surgery and they should be able to avoid those. I had to go to Columbia, SC for surgery, which is about two hours from my house. I will have to go to Columbia for all my future checkup appointments. I hope this helps some. Keep me posted and I am praying for you!

@mrector you have been so very helpful and I am very grateful for your responses. You have provided me with very important information.

@kmart

@mrector you have been so very helpful and I am very grateful for your responses. You have provided me with very important information.

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@kmart if you have any more questions I will do my best to answer them…

I have a question…I am 3 1/2 months postop and have been having headaches just about every day for a couple of weeks. Headache is mainly on my left side where I had surgery. Should I be concerned about this or am I overreacting??

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