Watching a Meningioma Brain Tumor

Posted by robinem @robinem, Feb 8, 2018

I’ve just been diagnosed with a 2cm meningioma tumor on the right front of my head. I am 59 years old and the surgeon has told me I will need to “do something” with my tumor someday since I am younger. What is the benefit of waiting?

First, be thankful that it has been found early. It is a benign tumor. I was not as fortunate. I had a nasty fall and hit my head. I went to the ER to be checked out because I hit a heavy cabinet with my face. Xrays showed the large tumor and I was quickly referred to a surgeon. I was told that if I had waited much longer I would have had a stroke that would have left me in a very bad state. Surgery was scheduled and the tumor and most of the tendrils attached to it were removed. Some of the tendrils were in places that would have been dangerous to remove. I have titanium rods in my skull now. The surgery was in 2009 and since that time I have had increasing loss of long and short term memory. Last year, after many tests, I learned that I have mild cognitive impairment because the tumor was near and affected my frontal lobe area. I will never be able to recover my memory. I basically lost my executive functions for organization, multi-tasking, etc. I am 63 years old and unable to be gainfully employed because I can't retain what is needed to do the job. I also have another tumor in the top front of the brain that is on the wait and see plan. The surgeon says that should it start to grow, lasers can be used to remove it before it gets big.

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Anyone ever try accupuncture for treatment of their meningioma? I am on "watch and wait" and would like to avoid syrgery! I'm 67 years old. I have slight headaches and dizziness. I have ringing in my ears that comes and goes. Worry seems to increase my symptoms. Golfing always helps! Thanks for all of ypur posts. Knowledge is power.

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@sandra511

Anyone ever try accupuncture for treatment of their meningioma? I am on "watch and wait" and would like to avoid syrgery! I'm 67 years old. I have slight headaches and dizziness. I have ringing in my ears that comes and goes. Worry seems to increase my symptoms. Golfing always helps! Thanks for all of ypur posts. Knowledge is power.

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Ringing ears is a symptom?

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Hello @ees1

Here is a link to an article about signs and symptoms of meningioma. Please click on the link to read all of the signs and symptoms.

https://www.mayoclinic.org/diseases-conditions/meningioma/symptoms-causes/syc-20355643

As you can see, ringing in the ear and loss of hearing are two of many symptoms.

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Good morning. I am looking for your help to find a support group that meets in my local area of Cocoa Beach, Florida. I am the caregiver to my husband who was diagnosed with a malignant GIST (stomach tumor) nearly three years ago. Three weeks ago we learned he has a meningistioma measuring 5x5x3cm that needs to be removed with surgery. I am struggling with this latest diagnosis and think I would benefit from group support. Thank you.

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@wendyah

Good morning. I am looking for your help to find a support group that meets in my local area of Cocoa Beach, Florida. I am the caregiver to my husband who was diagnosed with a malignant GIST (stomach tumor) nearly three years ago. Three weeks ago we learned he has a meningistioma measuring 5x5x3cm that needs to be removed with surgery. I am struggling with this latest diagnosis and think I would benefit from group support. Thank you.

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Hello @wendyah, welcome to Connect. You may notice that I moved your discussion and combined with a discussion titled, "Watching a meningioma brain tumor." I did this so that you would be introduced to the members discussion meningioma tumors, some of which are in a similar situation as you and your husband. While the members may or may not know of a in-person support group near Cocoa Beach, Florida, I think you will find the supportive nature here on Connect welcoming as well. There is also a Caregivers, group that has many thoughtful members discussing the difficulties of being in situations much like yourself, https://connect.mayoclinic.org/group/caregivers/.

@wendyah, are there any specific questions you would like to ask the members discussing meningioma?

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I have had one meningioma removed and one is still in place. The one removed was on the left side with numerous tendrils growing outward. The tumor was near the frontal lobe area. My surgery was in 2009 and the tumor was larger than expected and not all of the extensions could be removed. Almost from the time of recovery I had pains in my head that weren't headaches. Neurologist couldn't find any cause. I began to lose my long term memory and then my short term memory. Things got so bad that I began to think I had dementia or alzheimer's. After many tests and MRIs I learned I didn't have dementia or alzheimer's. I had mild cognitive impairment which basically means that I no longer have the executive functions of my brain. I can't organize things any more. I can only do one thing at a time and any interruption will cause me to totally forget what I was doing, why I was doing it and where I was doing it. When that happens I have to stop everything and try to piece together the details and start again. Sometimes I can and sometimes I can't. I have to use my gps to go every where even if I have been there a thousand times. I can no longer read a book, after a few paragraphs I can't remember what I've read and have to start all over. For someone who could read three or four books at one time, that has been hard to accept. I can no longer work.

The neurosurgeon said we could wait and see on the second tumor, it is small and hasn't grown in five years. He said that if it started to grow he could use lasers to remove it instead of the major surgery I went through.I now have titanium rods holding my skull together. It was a fluke that the first one was found. I feel and hit my head and knocked myself out. I went to the ER just to be sure I hadn't broken any bones around my left eye. Xrays showed the large tumor. The rest is history.

At 2mm your tumor is very small. I would make sure that you are seen once a year and an MRI done to check the status. If it starts growing insist that it be removed using the least invasive procedure. Wishing you the best.

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@JustinMcClanahan

Hello @wendyah, welcome to Connect. You may notice that I moved your discussion and combined with a discussion titled, "Watching a meningioma brain tumor." I did this so that you would be introduced to the members discussion meningioma tumors, some of which are in a similar situation as you and your husband. While the members may or may not know of a in-person support group near Cocoa Beach, Florida, I think you will find the supportive nature here on Connect welcoming as well. There is also a Caregivers, group that has many thoughtful members discussing the difficulties of being in situations much like yourself, https://connect.mayoclinic.org/group/caregivers/.

@wendyah, are there any specific questions you would like to ask the members discussing meningioma?

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Thank you I appreciate that. Is it dangerous to fly long distances (sixteen hours) with this kind of tumor?

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@wendyah

Thank you I appreciate that. Is it dangerous to fly long distances (sixteen hours) with this kind of tumor?

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I don't think you have anything to worry about with flying. This type is a very slow growing tumor. Chances are you have had yours for years and it was never noticed. If you are concerned, call your doctor and ask about flying. I'm sure he/she will be able to put your fears to rest. At the time mine was found I had flown across country and a couple of other trips within the US. I had no symptoms and when it was finally found, the doctor told me that just a little bit longer and I would have had a stroke. It was nearly the size of your fist.

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@wendyah

Thank you I appreciate that. Is it dangerous to fly long distances (sixteen hours) with this kind of tumor?

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I have flown all over the world with my 2 left frontal lobe tumors. I live in Hawaii and have a daughter and her family who live in London….so every time I visit them I am basically going halfway around the world. We used to travel a LOT and I never had any problem nor noticed any growth at my next scans. @wendyah

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@lindajean

I have flown all over the world with my 2 left frontal lobe tumors. I live in Hawaii and have a daughter and her family who live in London….so every time I visit them I am basically going halfway around the world. We used to travel a LOT and I never had any problem nor noticed any growth at my next scans. @wendyah

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Thank you. That makes me feel better 🙂

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@cindyt63

I don't think you have anything to worry about with flying. This type is a very slow growing tumor. Chances are you have had yours for years and it was never noticed. If you are concerned, call your doctor and ask about flying. I'm sure he/she will be able to put your fears to rest. At the time mine was found I had flown across country and a couple of other trips within the US. I had no symptoms and when it was finally found, the doctor told me that just a little bit longer and I would have had a stroke. It was nearly the size of your fist.

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Thank you. My husband has the tumor, but I am the researcher!

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Hi I've been recently diagnosed with a 2cm meningioma in the Falx and parasagittal regions. Neurosurgeon wants to wait and watch. I was seeing a Dr for newly acquired migraines. This was a new Dr and decided an MRI but not expecting anything. Neurosurgeon says he doesn't think the meniginoma is causing my migraines. I'm just at a loss!

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@robinem I was diagnosed early last September with a 2 cm meningioma on the front just left of center up against the big center vein (I can't remember the name of it). I am 63. My doctor said I could have it removed, but the risk of it being attached to that vein is pretty good and can complicate removal. I went for a second opinion to another neurosurgeon and a third opinion from a Neurologist that treats brain tumor patients and both of them agreed with the first doctor. I started with MRI's every 90 days and then every six months. The tumor has grown only 2mm, with room for error of 1mm. They are not concerned at this point. Friday I had my 4th MRI and will meet with my Dr. Thursday for results. Most of the time I just live like it isn't there. I too went in originally because of headaches, but turns out my headache in the middle of the night was caffeine withdrawal. (I quit Mt. Dew and the headaches quit). The only other symptom is I see auras. They last a few minutes when they come, which isn't often. So I guess I can live with it. I think my biggest concern is not knowing 100% if it is cancerous. The shape is like a grape with a tail, but no tendrils at this point so they are almost positive at this point it is not cancer. Having them go in through my skull scares me to death so I am ok with the watch and wait. I have read a lot on it and I guess it's a very common approach.

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@kkenn

Hi I've been recently diagnosed with a 2cm meningioma in the Falx and parasagittal regions. Neurosurgeon wants to wait and watch. I was seeing a Dr for newly acquired migraines. This was a new Dr and decided an MRI but not expecting anything. Neurosurgeon says he doesn't think the meniginoma is causing my migraines. I'm just at a loss!

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Hi, @kkenn, and welcome to Mayo Clinic Connect.

You may be interested in this Mayo Clinic information on meningioma: https://www.mayoclinic.org/diseases-conditions/meningioma/symptoms-causes/syc-20355643.

You mentioned that after sending you for an MRI, the doctor you saw about newly acquired migraines did not think your migraines were caused by the meningioma in the falx and parasagittal regions with which you were recently diagnosed. Hoping that some of the other members in this discussion might have some thoughts about the migraines and also may have some insights for you as someone who is newly diagnosed with a meningioma. Please meet @robinem @cindyt63 @sandra511@wendyah @wkindel and others.

Did your doctor talk about what might be causing the migraines, @kkenn?

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