Is chronic reactivated EBV different from chronic active EBV?

@christinemorse I hope you are feeling better. Have any of your doctors recommend treatment for the EBV?

I tested positive for EBV in 2016 despite the fact I had mono while a teenager. Quite frankly, most doctors do not understand this disease or shrug it off with the belief that mono only comes once. If any out there truly know of a good doctor that understands EBV can become reactivated. please let us know. I live in florida

darkmatter53, I too live in Florida and am always trying to find medical doctors who understand and treat EBV. I am currently seeing a Natural Medicine doctor who is treating me for EBV. I under went ultra violet treatments which works for a while and then I fell right back to my old ill self. Now I'm being treated with amino acid peptide shots. So far I don't feel any difference. Reply and let me know where you live. I did find a practice in Tampa that I was willing to travel to for treatments. I live in The Villages between Ocala and Leesburg.

Hi, I live in winter haven. I am going through the bad cycle right now. I am trying natural supplements but no improvement noted. I may request my doctor treat me with antivirals but he is a conservative doctor. thanks for your response. Regards, Frank

Hi Michelle, Please keep me posted on your condition and good luck with your treatments. I have lived with this stuff for 18 years now. Seems more like 40. Have they found any other infections with you?. So far the only thing they have found on me is the Epstein. And even then, some of my doctors say it is an old infection. Go figure. Anyway, good luck....regards, Frank

Frank, thanks for the reply. I have been tested for other viruses but EBV is the only one reported. I watch my diet closely and I take numerous supplements. I keep switching up the supplements and don't find any of them to help significantly but I keep trying. I have had nutrition panels done and then purchase what ever supplements the nutritionist tells me I lack. I've added zinc and a few others as well when I heard of their healing powers. I don't feel any different with any of these but maybe I would feel worse if I wasn't taking them.

Michelle, Yes it is frustrating. You might want to research the use on herpes antivirals for Epstein since they are all in the same family. I am going to try convincing my doctor. Good luck and let's keep in touch. regards, Frank

I’m a 40 year active male that had mono/ebv in college for about 10 months. Been relatively health (workout five days a week) work full time father of two) but have had four EBV reactivations since I was twenty. Currently on a month and a a half of extreme fatigue and malaise. I switched jobs so it was triggered by stress. This isn’t mental people it’s basically herpes 4 and the key is to push it back into hibernation not kill it. Super frustrating

Thanks for your response. Yes, I agree. It is bad enough to have to fight this thing and the doctors, too.

I have Hashimoto's, which is an autoimmune disorder that attacks the thyroid. I recently started seeing a naturepathic doctor who ordered a battery of tests. It turns out I have reactive EBV. There's a connection between EBV and autoimmune disorders like rheumatoid arthritis, Hashimoto's, and about 100 others. I also have chronically low vitamin D which is known to play a part in both reactive EBV and autoimmune issues.

My Dr has me on antiviral medication, an assortment of supplements that will not only help the antiviral medication but also help calm and relax my body to ease stress (a big trigger), a specific workout plan, and my diet has been overhauled. He has cut out all gluten, grains, dairy and sugar. His belief is that since the immune system is in the gut and I have autoimmune issues than I most likely suffer from something called leaky gut which some doctors believe triggers EBV. So far so good but the antiviral medication is very expensive even with my insurance ($200 a month).