Post Interferon Syndrome

Yep. I worked all the critical care departments, also OR and GI Lab. Lost my career, self identity, health, and my mind. I am not nuts but the depression and anxiety has reduced my coping mechanisms for sure. I hate self pity, but who else is gonna care, right? Nobody wants to hear it. Glad I found a place to vent.

I just found this site. I took interferon injections for 6 months, relapsed hep c, then one year of injections 3 mil units, 3 times a week. That was 1994-1996. Horrible suffering, for what? For years they denied long term effects. I could never return to nursing or any substantial work, I blamed myself and wihdrew from life. I knew it was the treatment, but who would listen. I suffer from most of the symptoms that I see others are suffering from. Neurologic peripheral and central, cardiac, muscle weakness, fatigue, sleep disorders, pain, psychiatric, vision. Not wanting to be the complainer, I withdraw. I want answers now. Thanks everyone for sharing. Things make sense now.

Its good to talk about it and would like to talk more about it
Steven

Like you and so so many more of us post treatment. I went back to my GP several times each year since 2006 and never got anywhere. I had a brain tumour removed in 2000 and after therapy etc regained my driving licence and back to work for a few years before the treatment. So obviously over the years I pinned all my symptoms etc onto that operation pre treatment. It's only since I found this site that everything makes sense. We must all be strong and hope an investigation will begin like the infected Blood one starting April 2019

Yep. I worked all the critical care departments, also OR and GI Lab. Lost my career, self identity, health, and my mind. I am not nuts but the depression and anxiety has reduced my coping mechanisms for sure. I hate self pity, but who else is gonna care, right? Nobody wants to hear it. Glad I found a place to vent.

Hello, I often sit n think how one person could feel this darn bad all of the time. the pain in my bones is overwhelming, fatigue that gives me no choice but to lie down several times a day, muscle spasms contort my body, my memory is really really bad...i don't see me being able to function at all in the next few yrs and there is no way out. my daughter is also a RN n i don't even think that she takes me seriously...no one does but uall on this site. i just started my my 37th antibiotic in just two yrs thanks to CVID with predominant B cell damage thanks to interferon/ribaviron. i am gonna start on CBD oil soon due to all of the great work that it has proven on the human body...this is scientific proof. has anyone ever hear of LDN therapy??? I have heard great things about this but doesn't seem to be available anywhere near me. God bless all of u going this hell.

Hello, I often sit n think how one person could feel this darn bad all of the time. the pain in my bones is overwhelming, fatigue that gives me no choice but to lie down several times a day, muscle spasms contort my body, my memory is really really bad...i don't see me being able to function at all in the next few yrs and there is no way out. my daughter is also a RN n i don't even think that she takes me seriously...no one does but uall on this site. i just started my my 37th antibiotic in just two yrs thanks to CVID with predominant B cell damage thanks to interferon/ribaviron. i am gonna start on CBD oil soon due to all of the great work that it has proven on the human body...this is scientific proof. has anyone ever hear of LDN therapy??? I have heard great things about this but doesn't seem to be available anywhere near me. God bless all of u going this hell.

I started the cbd oil 3 weeks ago after 10 years of suffering and I have noticed a massive difference I feel a better sense of life but I could be having a placebo effect will let you no in a few months

I feel for u my factor 2 mutation with protien s clotting disorder. Is horrible and on top of that I have Lyme and Nash nonaloholic so I feel you

I can't agree more. The treatment ended my nursing career too and was struck off the register for fatigue !