Post Interferon Syndrome

Posted by jerbobs @jerbobs, Jan 31, 2018

What is known?

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@marleneruth

Yep. I worked all the critical care departments, also OR and GI Lab. Lost my career, self identity, health, and my mind. I am not nuts but the depression and anxiety has reduced my coping mechanisms for sure. I hate self pity, but who else is gonna care, right? Nobody wants to hear it. Glad I found a place to vent.

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Its been horrendous 10 years of my life gone health getting worse the depression has been terrible the chronic fatigue wipes u out the memory issues its bad like yourself you could go on and on but am glad I found this site I realise am not alone

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@marleneruth

What you have shared helps me understand my life and frustrations and disappointments. Everything sounds similar. How many of us are out there? The vague "fibromyalgia " diagnosis is an insult to our intelligence. Our diagnosis should be post interferon syndrome. It should be recognized and acknowledged for its debilitating effects and pharmaceuticals need to take responsibility for it.

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I totally agree with you , I wonder if social media could help start spreading what this medication has destroyed life's

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@marleneruth

Yep. I worked all the critical care departments, also OR and GI Lab. Lost my career, self identity, health, and my mind. I am not nuts but the depression and anxiety has reduced my coping mechanisms for sure. I hate self pity, but who else is gonna care, right? Nobody wants to hear it. Glad I found a place to vent.

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Hi!!!!
So glad u found us!! I found this site almost a yr ago and it DOES put everything into perspective. I couldn't figure out why I felt so bad for so long until this site. I just don't know what to do anymore. Would like to talk to u more if ok with u!

Lisa

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@marleneruth

We do need help. I am willing to get involved. I will go to the FDA site, and start doing some research. A class action suit must or should exist somewhere. This drug treatment was an unethical experimental treatment and we have been disregarded like some animal lab test group.

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There was a class action law suit but it has been closed for a long time n they wouldn't even give me the time of day. Let's keep digging and I will get with uall asap if i come up with anything.

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@ldestella

Hi!!!!
So glad u found us!! I found this site almost a yr ago and it DOES put everything into perspective. I couldn't figure out why I felt so bad for so long until this site. I just don't know what to do anymore. Would like to talk to u more if ok with u!

Lisa

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Its good to talk about it and would like to talk more about it
Steven

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any time brother lol lot's of questions also...pls pm me for my number if ya want!!

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@ldestella

any time brother lol lot's of questions also...pls pm me for my number if ya want!!

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Am in the uk , send me a private email

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@elgosta

Am in the uk , send me a private email

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Welcome to send me a private message as well.

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Hi @elgosta and @ldestella,

You may notice that I removed your personal email from this public discussion. Posts to the discussion board are public, and we don't want you getting unwanted spam etc. We recommend sharing personal contact information by private message PM, as it is a secure, private option.
Here's how to send private message.
1. Click the member's @username.
2. Click the envelope icon in their profile.
3. Write a subject and your message.
4. Click Send Message.

Thanks so much for understanding.

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@kanaazpereira

Hi @elgosta and @ldestella,

You may notice that I removed your personal email from this public discussion. Posts to the discussion board are public, and we don't want you getting unwanted spam etc. We recommend sharing personal contact information by private message PM, as it is a secure, private option.
Here's how to send private message.
1. Click the member's @username.
2. Click the envelope icon in their profile.
3. Write a subject and your message.
4. Click Send Message.

Thanks so much for understanding.

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Sharon

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