Are there any other pre-liver transplant caregivers out there?

Caregiver is a difficult job! Make sure to give yourself some "me" time with friends, soaking bath or reading a book. You have to go through EVERYTHING your husband is going through, PLUS you are responsible for all of the medications, you have have to learn new terminology, you have to talk to the doctors, you have to be the advocate, the list goes on and on. Keep reaching out to find a caregiver buddy to lean on when you need it! You're doing a great job!

Hi everyone. My husband was just recently listed for liver transplant He is pretty low on the list right now but will get exception points after 6 month waiting period. He had the TACE procedure recently with partial response and course of action is now to do reimaging in 3 months. We are both very anxious about what can happen during this 3 month period as he was getting regular screenings prior to the HCC diagnosis and nothing was seen in the 3 months prior to the diagnosis. I agree this is all so overwhelming and would love to connect with others who understand what what we are going through as well. We also live 5 hours from transplant center and my husband will need to temp relocate once he is higher on the list. I will need to stay behind to continue working up until he is called for transplant and will join him. I am a planner so the uncertainty of when this will be makes it difficult. I’m thinking ahead and guess I will go to work everyday with a packed suitcase once he is higher on list? Are there any caregivers out there with current similar situation or post liver transplant recipient who experienced similar situation?

Hi everyone. My husband was just recently listed for liver transplant He is pretty low on the list right now but will get exception points after 6 month waiting period. He had the TACE procedure recently with partial response and course of action is now to do reimaging in 3 months. We are both very anxious about what can happen during this 3 month period as he was getting regular screenings prior to the HCC diagnosis and nothing was seen in the 3 months prior to the diagnosis. I agree this is all so overwhelming and would love to connect with others who understand what what we are going through as well. We also live 5 hours from transplant center and my husband will need to temp relocate once he is higher on the list. I will need to stay behind to continue working up until he is called for transplant and will join him. I am a planner so the uncertainty of when this will be makes it difficult. I’m thinking ahead and guess I will go to work everyday with a packed suitcase once he is higher on list? Are there any caregivers out there with current similar situation or post liver transplant recipient who experienced similar situation?

Hi JoDee. I'm Andrea. My husband is currently inpatient at Methodist. We are very close to being put on the transplant list. He was admitted here Thursday night due to taking a bad turn in his health status. We live in the Northwest metro, about 2 hours from Rochester.

Hi JoDee. I'm Andrea. My husband is currently inpatient at Methodist. We are very close to being put on the transplant list. He was admitted here Thursday night due to taking a bad turn in his health status. We live in the Northwest metro, about 2 hours from Rochester.

Hi everyone. My husband was just recently listed for liver transplant He is pretty low on the list right now but will get exception points after 6 month waiting period. He had the TACE procedure recently with partial response and course of action is now to do reimaging in 3 months. We are both very anxious about what can happen during this 3 month period as he was getting regular screenings prior to the HCC diagnosis and nothing was seen in the 3 months prior to the diagnosis. I agree this is all so overwhelming and would love to connect with others who understand what what we are going through as well. We also live 5 hours from transplant center and my husband will need to temp relocate once he is higher on the list. I will need to stay behind to continue working up until he is called for transplant and will join him. I am a planner so the uncertainty of when this will be makes it difficult. I’m thinking ahead and guess I will go to work everyday with a packed suitcase once he is higher on list? Are there any caregivers out there with current similar situation or post liver transplant recipient who experienced similar situation?

Hi everyone. My husband was just recently listed for liver transplant He is pretty low on the list right now but will get exception points after 6 month waiting period. He had the TACE procedure recently with partial response and course of action is now to do reimaging in 3 months. We are both very anxious about what can happen during this 3 month period as he was getting regular screenings prior to the HCC diagnosis and nothing was seen in the 3 months prior to the diagnosis. I agree this is all so overwhelming and would love to connect with others who understand what what we are going through as well. We also live 5 hours from transplant center and my husband will need to temp relocate once he is higher on the list. I will need to stay behind to continue working up until he is called for transplant and will join him. I am a planner so the uncertainty of when this will be makes it difficult. I’m thinking ahead and guess I will go to work everyday with a packed suitcase once he is higher on list? Are there any caregivers out there with current similar situation or post liver transplant recipient who experienced similar situation?

Caregiver is a difficult job! Make sure to give yourself some "me" time with friends, soaking bath or reading a book. You have to go through EVERYTHING your husband is going through, PLUS you are responsible for all of the medications, you have have to learn new terminology, you have to talk to the doctors, you have to be the advocate, the list goes on and on. Keep reaching out to find a caregiver buddy to lean on when you need it! You're doing a great job!