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Alternative (herb) medications
MAC & Bronchiectasis | Last Active: Nov 23, 2021 | Replies (73)Comment receiving replies
@charlie999 , Hello Charlie. I was diagnosed in 2005 with MAC and bronchiectasis. I opted to not go the route of the three strong antibiotic regimen due to worrieksonvile. s of harming my liver. I have been on an ongoing treatment over the last 5 yrs of using one a month. I take the antibiotic for 10 days each month and the antibiotics are alternated each month as to not build up a resistance to them. The two antibiotics used were doxycycline and ciprofloxacin. I did those two for three yrs. until I caught a. psudomonas. Then, the doxycycline was swithed to tobramycin. So far so good. I have not coughed in years, whereas, I used to cough non-stop and violently. The doctor that put me on this regimen is at the Mayo Clinic in JAX.
Replies to "@charlie999 , Hello Charlie. I was diagnosed in 2005 with MAC and bronchiectasis. I opted to..."
@sophie1019 I just read back over your previous posts. I am guessing you were taken off the cicktail due to intolerance. What's next for you? My doctor put me on a rotating monthly antibiotic that wasn't those harsh ones and it seems to work for me. There is also inhaled cipro now available. Do you have a copy of your suseptability test?
I tolerated the med very well. Besides talking oral meds, for nearly two years, I was on an iv drip from Oct 2017 just ending thursday this week. The doc stated that I still have a small cavity in my lung, BUT since I haven't been sick from mac for nearly two years, I am still working and exercising regularly, she ( the I'd doc) aND my pulmonary doc decided to take me off. Please pray for me as I do for you and all others on this forum.. the I'd doc told me if I started feeling bad to get on touch with her asap. I also took a CT scan but I don't have any results yet...
@irene5.....when do you go to NJH.?terrid
In the process of being referred from ID and then getting an appointment. I will let you know when I know.
Definitely will keep you in my thoughts and prayers. Thank you for keeping us in yours.
Thank you......
I will pray for you. We all need to pray for each other. Kind of like we are all a family joined in a very unfortunate way but keep each other supported.
@alleycatkate thanks for getting back . I would be glad to talk with you. Right now we are not home much because we are preparing our new house. We bought another house and we shall be moving within the next 3 weeks. You can send me your phone number through
the private email and will call you before we return to Canada in May. It would be a pleasure for me to talk to you. Nick52
What were your Alternative Meds?
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@sophie1019 Hi Sophie. Were you taken off the meds because the mac has been cleared or were they intolerable?