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MAC & Bronchiectasis | Last Active: Nov 23, 2021 | Replies (73)Comment receiving replies
Replies to "@charlie999 , Hello Charlie. I was diagnosed in 2005 with MAC and bronchiectasis. I opted to..."
@charlie999 glad to know that you a treating yourself with Natural meds. That is all I have used since 2010. I am doing really well. It is like medication trial and error but much less dangerous the natural then the chimical for our health.
Thanks, Nick. I am trying to put together a successful natural regimen. If you could outline your treatment procedure, I would really appreciate it. Can’t seem to find much info, so I am mostly in the blind right now. Super good to know that someone has a handle on this. May God guide you with His most abundant blessings. Thank you for any help. Charley
Susie, thanks for the reply. Really good to know someone else is doing well on alternatives. I plan on sticking it on out on naturals. Dont want to find out 5 years down the road that my liver is now shot, or both kidneys are gone. No one seems to have any idea of the long term damage of the big 3. I cough very little and breathing is good.
Good luck to you on your treatment.
God Bless,
Charlie
Hi...I have not had official diagnosis but the radiologist and my GP say it looks like MAC. I am spinning, reading everything about the treatment routine. I have an apt with a local pulmonologist in my tiny town next week for diagnosis but need to find someone that can treat and is fluid in treatment of MAC after I get confirmation of the disease. Are you able to give me your Dr.'s name in Jacksonville? I live in FL so a four hour drive is not too crazy, unless I am making it weekly. Thanks..I am just trying to get my ducks in a row as I am a little freaked by reading about the treatment and your Dr. sounds like he is taking a less scary approach. Thanks.
I think natural things are wonderful and certainly less problematic in terms of side effects. However, I don’t think there is any natural remedy out there for MAC. Go slowly and don’t panic. If you do not get answers from your pulmonologist there are a lot of great places to go to for treatment. You also need an infectious disease doctor if you don’t have one. Due to my unique set of circumstances, my ID doctor is sending me to Denver to National Jewish Health. Not a fan of flying out there, but if I need to I will! Good luck.
I am sorry you are going through this but, everyone here is very supportive.
You are always so supportive.
@windwalker ....above comment requesting Dr information at Mayo in Jacksonville. Thank you. Kate
@alleycatkate, I see Dr. Jack Leventhal in pulmonolgy dept at Mayo in Jacksonville.
Thanks much Windwalker. I will sure contact univ of Arizona. Trying to stay with natural meds if possible. Hope yours goes good.
Blessings
Charley