1. < Epilepsy & Seizures

Planning Visit for Epilepsy

Posted by Sam_Nova @sam_nova, Jan 11, 2018

Greetings,

I'm planning to make a trip to the Mayo Clinic to get reevaluated for my current condition. I been living with Epilepsy (Grand Mal Seizure) since I was 13 years old, now I'm 51. Over most of my life, I have been lucky where one medication (Dilantin) has controlled my seizures. Over the last three years I have been having seizures again, lately I had six seizures over the last five months. So I plan to fly out to a Mayo Clinic very soon, but would like more details from those that have been to the clinic. Here a list of questions.

Out of all the Mayo clinics out there, which one has the latest and most advance diagnosis tools for Epilepsy? I'm hoping with the latest diagnosis, they can isolate which part of my brain is giving me issues.

I'm been told that I would need to spend 5 to 7 business days. Just looking for a basic Idea what happens during this time, I understand that each person visit is different.

I'll have to stay at a Hotel for my visit. Are there places pretty close to the clinic? I'll will not be allow to drive.

During this test period, does a single Doctor work with you or is it more like a team of Doctors?

Anything else that you can think of would be very help.

Thank You

Interested in more discussions like this? Go to the Epilepsy & Seizures Support Group.

Sam_Nova | @sam_nova | Jan 13, 2018
In reply to @bonnieh218 "There are hotels within a few blocks of the Mayo in Rochester. Also hotels have shuttle..." + (show)
@bonnieh218

There are hotels within a few blocks of the Mayo in Rochester. Also hotels have shuttle buses that will take you back and forth from hotel to Mayo at no cost. There is also an airport shuttle.
I have had and continue to receive excellent care from the caring teams of doctors at Rochester. All the doctors work together as a team to find the best answers for you as an individual.
Good luck to you, feel confident in your choice to visit Rochester!

Jump to this post

Thanks for the input, try to get as close as possible with out being at the most expensive place.

REPLY
Sam_Nova | @sam_nova | Jan 13, 2018

I'm told that I would be there for 5-7 business days. If anyone done this, has it gone beyond the 7 business day plan? Trying to plan out the flight plans.

REPLY
1 reply
bonnieh218 | @bonnieh218 | Jan 13, 2018
In reply to @bonnieh218 "There are hotels within a few blocks of the Mayo in Rochester. Also hotels have shuttle..." + (show)
@bonnieh218

There are hotels within a few blocks of the Mayo in Rochester. Also hotels have shuttle buses that will take you back and forth from hotel to Mayo at no cost. There is also an airport shuttle.
I have had and continue to receive excellent care from the caring teams of doctors at Rochester. All the doctors work together as a team to find the best answers for you as an individual.
Good luck to you, feel confident in your choice to visit Rochester!

Jump to this post

I stay at the Brentwood Hotel. They have a Mayo Clinic discount making it a reasonable price. I have spent time walking around downtown checking out the hotels in the area. This is the one I’ve found at the most reasonable cost with very good accommodations. It’s a couple blocks away from the Clinic. They are connected to the Clinic via the subway system so you don’t have to walk outside if you don’t want to; here in MN that can be a challenge in the winter.

REPLY
bonnieh218 | @bonnieh218 | Jan 13, 2018

Unfortunately time spent there can be a challenge when planning flights. Depending on what I’ve needed to have done I have been there before for two weeks. After your initial visit they will be able to give you a better estimate of how long you may need to be there so you can adjust your plans.

REPLY
Jamie Olson | @jamienolson | Jan 13, 2018
In reply to @sam_nova "I'm told that I would be there for 5-7 business days. If anyone done this, has..." + (show)
@sam_nova

I'm told that I would be there for 5-7 business days. If anyone done this, has it gone beyond the 7 business day plan? Trying to plan out the flight plans.

Jump to this post

@sam_nova , you may find this link with other members experiences helpful. https://connect.mayoclinic.org/discussion/booking-travel-when-unclear-how-long-ill-be-there/

REPLY
Sam_Nova | @sam_nova | Jan 16, 2018

Thank you all for your feedback.

REPLY
View MoreView Less
Please sign in or register to post a reply.