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Confused About Diet for Stage 3 or 4 Chronic Kidney Disease (CKD)

Posted by wietop @wietop, Dec 13, 2017

I was diagnosed with Stage 3 CKD four years ago, but my doctor didn't tell me. When he retired and I had to find a new doctor is when I found out. I'm new to this and completely confused when it comes to diet. I am currently eating a sandwich for lunch, made with Ezekiel Low-Sodium bread, which is sprouted whole grain bread. In my research I have found some sites that say never eat whole grain bread, while others say you can eat it with no problem. My doctor has told me I don't need to change my diet, but, as you can imagine, my trust factor is pretty low right now. I'm trying to find some solid information about which breads I should avoid and which ones are okay.

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crazyelf | @crazyelf | Jul 20, 2019

Sounds kind of like me. I don't know how long I've had CKD. I go to the VA. I had Salmonella back in Oct 2018. I finally ended up in the hospital on Nov. 28 2018 with an UTI. My primary doctor had no idea what was wrong with me.
She noticed my Iron and Vitamin D going down a couple of years ago. I am 72 years old. She seen protein in my Urine in Nov. 2018 and didn't know what to do. WBC said clumps in Urine. Which means there's an infection. In May another Doctor said I had 37% Kidney function. Again Urine was filed with WBC and again no mention of UTI. VA don't know what they are doing.

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Colleen Young, Connect Director | @colleenyoung | Jul 27, 2019
In reply to @crazyelf "Sounds kind of like me. I don't know how long I've had CKD. I go to..." + (show)
@crazyelf

Sounds kind of like me. I don't know how long I've had CKD. I go to the VA. I had Salmonella back in Oct 2018. I finally ended up in the hospital on Nov. 28 2018 with an UTI. My primary doctor had no idea what was wrong with me.
She noticed my Iron and Vitamin D going down a couple of years ago. I am 72 years old. She seen protein in my Urine in Nov. 2018 and didn't know what to do. WBC said clumps in Urine. Which means there's an infection. In May another Doctor said I had 37% Kidney function. Again Urine was filed with WBC and again no mention of UTI. VA don't know what they are doing.

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Hi @crazyelf, what stage of chronic kidney disease do you have? How are you doing with managing it?

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maxwell123 | @maxwell123 | Jul 27, 2019
In reply to @kimberlyharris "I would say at your stage to watch protein intake. Limit red meat- eat mostly chicken..." + (show)
@kimberlyharris

I would say at your stage to watch protein intake. Limit red meat- eat mostly chicken or fish. Give up coffee. Also watch phosporus intake which is found in dairy, legumes, and organ meat. You want to be as easy on your kidneys as possible. I went all the way to stage5 before my transplant and found that lowering the phosphorus really helped how I felt and functioned. At stage 3 - symptoms weren't really obvious to me.

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I mostly agree. I suggest going vegan but certainly stay away from red meat and processed foods and get your protein from plant-based sources. Phosphorous and potassium intake should be guided by what your labs tell you. I am stage IV and my phosphorous and potassium are normal. In fact, while I was on dialysis they were never out of range. So, I'm hot sure blanket statements apply for everyone. Regarding coffee, we just disagree. Here is what NKF says about coffee -- http://bit.ly/2Yx6H2M. I drink about four cups a day with nothing added. In fact, this renal site suggests it can be helpful. http://bit.ly/2YrVmkM

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crazyelf | @crazyelf | Aug 25, 2019

Thank you. I have made homemade Tortillas that requires butter instead of lard. I've been wanting to make them with no salt butter. So I think I will try this for my husband.

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crazyelf | @crazyelf | Aug 25, 2019
In reply to @kamama94 "The cookbook is close to being finished. I would like to share it but don't think..." + (show)
@kamama94

The cookbook is close to being finished. I would like to share it but don't think I can post 90 pages of recipes here. If anybody wants a copy of the final rough draft I can send it to a regular email address. Please know this isn't the final form it will take. My primary has not vetted it yet or submitted it to the medical school for review. Also, please test any or all of the recipes and tell me if you thought the dish was terrible, okay or good. And feel free to correct my math and nutrient values.

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Send it to me via personal message.
I would love to have the cook book. Thank you so much.

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kalifdream | @kalifdream | Aug 25, 2019
In reply to @kamama94 "Both sites list many, many foods, including some name brands, and give sodium content, potassium, phosphorus,..." + (show)
@kamama94

Both sites list many, many foods, including some name brands, and give sodium content, potassium, phosphorus, and other minerals as well as calories, protein, fiber, etc. One of the sites lists low potassium foods and low phosphorus foods. I asked my nephrologist if I could trust the information and she said yes. This information has been invaluable to me since it has helped me learn which foods are kidney friendly and allowed me to calculate amounts and percentages of entire meals in terms of sodium, phosphorus and potassium especially, which CKD people want to limit. Occasionally there is a milligram of difference in a value between the two sites but all in all they complement each other. The search tools are great, you can look up so many things and doing so has helped me create some fairly tasty and satisfying recipes.

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How can I see those sites? They would really help me with diet.

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kamama94 | @kamama94 | Aug 25, 2019
In reply to @kalifdream "How can I see those sites? They would really help me with diet." + (show)
@kalifdream

How can I see those sites? They would really help me with diet.

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@kalifdream, just before you posted I posted a recipe collection to @crazyelf. It's free and your welcome to download it and use it.

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kalifdream | @kalifdream | Aug 25, 2019

Oh never mind! If I had read ahead I would have seen the web address.

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kitmus | @kitmus | Aug 25, 2019

Anyone have had an ileostomy and stage 4 ckd diet issues and recommended sources for advice. Am seeing. Nutritionist at kidney center. I am concerned about sodium, as I could deplete easily with no colon. Worth a trip to Mao, maybe?

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