New confused diabetic

Posted by vanin11 @vanin11, Nov 15, 2017

Hi, I am able to control my numbers with diet and exercise, what I am having difficulty with is my fasting numbers at 5 a.m. it's 6.6 and goes up a point every 45 mins ,thereafter. I am on metformin 2X a day 500 mg and app gliclazide 30 mg 1X a day, only been a week but still high numbers in A.M. Could this be early dawn or Simogyis and is the treatment different.Cant seem to get the G.P. or specialist to acknowledge it's only a problem in the A.M.Any similar experiences or advice?

Interested in more discussions like this? Go to the Diabetes & Endocrine System Support Group.

@lisalucier

Hello, @vanin11. Welcome to Mayo Clinic Connect. Thanks for sharing your concerns about your fasting numbers and a bit about yourself. I can certainly hear the frustration and concern in your post. We have wonderful members on Connect who share their experiences and empathize with one another.

Unfortunately, we cannot diagnose or offer medical advice on Mayo Clinic Connect, as this is a peer support online community. We are happy to introduce you to some other members who understand what you are going through, like: @dhernandz, @mrlee43, @gailb,@kamuela, @riveroaksfarm, @hopeful33250, @bonniewhite56, @contentandwell, @maurtura @dougmann, @archer8119, @johnbishop and @retiredteacher. Would you all have any thoughts for @vanin11 about the concern with seeing high fasting numbers in the morning?

We also can offer you the opportunity to get an opinion at Mayo Clinic, if that is of interest to you at this time.

Can you tell us a little about your diet and exercise routine that you've found helpful in controlling your numbers?

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Hi, @vanin11 -- we'd suggest going through the appointment request process at the link here, http://mayocl.in/1mtmR63, and then through that process you can get more information particular to any appointment(s) appropriate for your situation.

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@lisalucier

Hello, @vanin11. Welcome to Mayo Clinic Connect. Thanks for sharing your concerns about your fasting numbers and a bit about yourself. I can certainly hear the frustration and concern in your post. We have wonderful members on Connect who share their experiences and empathize with one another.

Unfortunately, we cannot diagnose or offer medical advice on Mayo Clinic Connect, as this is a peer support online community. We are happy to introduce you to some other members who understand what you are going through, like: @dhernandz, @mrlee43, @gailb,@kamuela, @riveroaksfarm, @hopeful33250, @bonniewhite56, @contentandwell, @maurtura @dougmann, @archer8119, @johnbishop and @retiredteacher. Would you all have any thoughts for @vanin11 about the concern with seeing high fasting numbers in the morning?

We also can offer you the opportunity to get an opinion at Mayo Clinic, if that is of interest to you at this time.

Can you tell us a little about your diet and exercise routine that you've found helpful in controlling your numbers?

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Hi, so far no one has answered me on how much an appointment would cost for the consult.

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@lisalucier

Hello, @vanin11. Welcome to Mayo Clinic Connect. Thanks for sharing your concerns about your fasting numbers and a bit about yourself. I can certainly hear the frustration and concern in your post. We have wonderful members on Connect who share their experiences and empathize with one another.

Unfortunately, we cannot diagnose or offer medical advice on Mayo Clinic Connect, as this is a peer support online community. We are happy to introduce you to some other members who understand what you are going through, like: @dhernandz, @mrlee43, @gailb,@kamuela, @riveroaksfarm, @hopeful33250, @bonniewhite56, @contentandwell, @maurtura @dougmann, @archer8119, @johnbishop and @retiredteacher. Would you all have any thoughts for @vanin11 about the concern with seeing high fasting numbers in the morning?

We also can offer you the opportunity to get an opinion at Mayo Clinic, if that is of interest to you at this time.

Can you tell us a little about your diet and exercise routine that you've found helpful in controlling your numbers?

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Hi @vanin11, It's because no one knows what the cost is off hand. I think that is what Lisa @lisalucier meant as the information you can get when you call and start the appointment process. That's where I would start. Maybe these links might help you?

Here is information about Mayo Clinic's Billing and Insurance which includes information about
Charitable Care and Financial Assistance at Mayo Clinic :
http://www.mayoclinic.org/patient-visitor-guide/billing-insurance
http://www.mayoclinic.org/patient-visitor-guide/billing-insurance/financial-assistance
Rochester Mayo Clinic Concierge Services
https://www.mayoclinic.org/patient-visitor-guide/minnesota/becoming-a-patient/concierge-travel-services
John

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@lisalucier

Hello, @vanin11. Welcome to Mayo Clinic Connect. Thanks for sharing your concerns about your fasting numbers and a bit about yourself. I can certainly hear the frustration and concern in your post. We have wonderful members on Connect who share their experiences and empathize with one another.

Unfortunately, we cannot diagnose or offer medical advice on Mayo Clinic Connect, as this is a peer support online community. We are happy to introduce you to some other members who understand what you are going through, like: @dhernandz, @mrlee43, @gailb,@kamuela, @riveroaksfarm, @hopeful33250, @bonniewhite56, @contentandwell, @maurtura @dougmann, @archer8119, @johnbishop and @retiredteacher. Would you all have any thoughts for @vanin11 about the concern with seeing high fasting numbers in the morning?

We also can offer you the opportunity to get an opinion at Mayo Clinic, if that is of interest to you at this time.

Can you tell us a little about your diet and exercise routine that you've found helpful in controlling your numbers?

Jump to this post

@vanin11 Vanin, no one has answered you because we don't know the answers. I went to Mayo-AZ for a consult. They told me I had to get a full work-up. It took over three months before I even was able to talk to a hematologist. I never did see a hepatologist, and these were the only two people I needed to see. I came away with nothing but a note that they could not rule out several forms of Lite Chain Amyoidosis "without further testing", and spent about $15,000 of my own and insurance money. I enjoyed the time in Phoenix, but otherwise the dollars were wasted.

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@lisalucier

Hello, @vanin11. Welcome to Mayo Clinic Connect. Thanks for sharing your concerns about your fasting numbers and a bit about yourself. I can certainly hear the frustration and concern in your post. We have wonderful members on Connect who share their experiences and empathize with one another.

Unfortunately, we cannot diagnose or offer medical advice on Mayo Clinic Connect, as this is a peer support online community. We are happy to introduce you to some other members who understand what you are going through, like: @dhernandz, @mrlee43, @gailb,@kamuela, @riveroaksfarm, @hopeful33250, @bonniewhite56, @contentandwell, @maurtura @dougmann, @archer8119, @johnbishop and @retiredteacher. Would you all have any thoughts for @vanin11 about the concern with seeing high fasting numbers in the morning?

We also can offer you the opportunity to get an opinion at Mayo Clinic, if that is of interest to you at this time.

Can you tell us a little about your diet and exercise routine that you've found helpful in controlling your numbers?

Jump to this post

Thanks so much,

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@lisalucier

Hello, @vanin11. Welcome to Mayo Clinic Connect. Thanks for sharing your concerns about your fasting numbers and a bit about yourself. I can certainly hear the frustration and concern in your post. We have wonderful members on Connect who share their experiences and empathize with one another.

Unfortunately, we cannot diagnose or offer medical advice on Mayo Clinic Connect, as this is a peer support online community. We are happy to introduce you to some other members who understand what you are going through, like: @dhernandz, @mrlee43, @gailb,@kamuela, @riveroaksfarm, @hopeful33250, @bonniewhite56, @contentandwell, @maurtura @dougmann, @archer8119, @johnbishop and @retiredteacher. Would you all have any thoughts for @vanin11 about the concern with seeing high fasting numbers in the morning?

We also can offer you the opportunity to get an opinion at Mayo Clinic, if that is of interest to you at this time.

Can you tell us a little about your diet and exercise routine that you've found helpful in controlling your numbers?

Jump to this post

Thanks, I'm from Canada so I'd b on my own, I can get no advice here.

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The Somogyi effect producing high fasting blood sugar is reportedly rare and seen more with type 1 than type 2 diabetes, and the Somogyi effect is not well understood. Insulin resistance together falling insulin levels and stimulation of gluconeogenesis and glycogenesis are likely factors. See https://emedicine.medscape.com/article/125432-overview#a1 If you have a condition that is rare and poorly understood, it might be difficult to find a doctor competent to diagnose it or to admit that they can't. The Hemoglobin A1C test gives an estimate of mean blood glucose level over a period of months by measuring the level of hemoglobin glycosylation. What kind of diet do you follow to control diabetes? I have long followed some variation of the Atkins diet, avoiding sugar and starches that push up one's blood glucose levels, to the extent possible. My A1C hasn't increased from where it was at about 10 years ago. I have also been taking 1500 mg longer acting metformin for nearly 10 years. There are endocrinologists who advise calorie restricted low fat / high carb (semi-starvation) diets and advise against low carb diets, which sounds insane to me. I recently saw an endocrinologist who contends that a calorie is a calorie and that fat makes you fat and that fat should be restricted in my diet. He said that a low carb diet is a very bad idea. It should be kept in mind that very little protein is burned directly. Most is first converted to glucose .

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@dougmann

The Somogyi effect producing high fasting blood sugar is reportedly rare and seen more with type 1 than type 2 diabetes, and the Somogyi effect is not well understood. Insulin resistance together falling insulin levels and stimulation of gluconeogenesis and glycogenesis are likely factors. See https://emedicine.medscape.com/article/125432-overview#a1 If you have a condition that is rare and poorly understood, it might be difficult to find a doctor competent to diagnose it or to admit that they can't. The Hemoglobin A1C test gives an estimate of mean blood glucose level over a period of months by measuring the level of hemoglobin glycosylation. What kind of diet do you follow to control diabetes? I have long followed some variation of the Atkins diet, avoiding sugar and starches that push up one's blood glucose levels, to the extent possible. My A1C hasn't increased from where it was at about 10 years ago. I have also been taking 1500 mg longer acting metformin for nearly 10 years. There are endocrinologists who advise calorie restricted low fat / high carb (semi-starvation) diets and advise against low carb diets, which sounds insane to me. I recently saw an endocrinologist who contends that a calorie is a calorie and that fat makes you fat and that fat should be restricted in my diet. He said that a low carb diet is a very bad idea. It should be kept in mind that very little protein is burned directly. Most is first converted to glucose .

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Thanks, interesting,
I can control my daytime levels with portion control, it's my fasting, when Get up that is high, by 8, it's slightly over 8.
Speaking of diet did u c my post about pasta? There r several published articles on line, even potatoes , and rice work better when chilled and reheated as well as rice.
My biggest issue is fasting levels which the Meds so far aren't bringing down.
And is over 7 level harmful for several hrs?

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@vdouglas

Hello @vanin11 , Welcome to the Mayo Clinic Connect.

I am diabetic, I take 1000mg Metformin 2 times and 3mg Glimiperide (2mg in the morning and 1mg before bed). I agree with everyone else, It is a battle. I'm not a doctor but from my experience your morning numbers would make me happy and I have controlled diabetes. You say your blood glucose goes up 1 point every 45 minutes which would tell me that your liver is thinking you are ready for an active day and it is pumping out Glycogen. Mine starts about 4:00 am. May I ask how high it gets before you eat a mid day meal? Do you have any low glucose readings and what time of the day?

Wishing you well,
Von @vdouglas

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Hello @vanin11 , thanks for responding and getting me all excited for Pasta. I really think it is great that you are concerned about your blood glucose levels, so many don't bother with it until their eyesight starts going bad and their feet become numb. You mentioned that your A1C was 8.3. I'm pretty sure those numbers are universally the same. If my A1C were 8.0, I would be a little concerned and focused on getting it down. I would never want my A1C higher than 7.0. That said you are not me and yours may have been 10 at one time and now you are down to 8.3 which would be a great improvement but I like my A1C to never be higher than 7.0.

One trick I have used successfully is eating dinner early then eat something that is nearly all protein before bed, along with a little bit of activity like a couple sit ups or jogging in place. When I wake up I will eat a hard boiled egg right away and maybe a little piece of toast.

You should have a doctor that is knowledgeable and concerned about your diabetic control. @lisalucier had previously made some very good recommendations. If you wish we could provide that information again.

I wish you luck with your battle, you can do it. Keep up the good work.
@vdouglas
Von

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@lisalucier

Hello, @vanin11. Welcome to Mayo Clinic Connect. Thanks for sharing your concerns about your fasting numbers and a bit about yourself. I can certainly hear the frustration and concern in your post. We have wonderful members on Connect who share their experiences and empathize with one another.

Unfortunately, we cannot diagnose or offer medical advice on Mayo Clinic Connect, as this is a peer support online community. We are happy to introduce you to some other members who understand what you are going through, like: @dhernandz, @mrlee43, @gailb,@kamuela, @riveroaksfarm, @hopeful33250, @bonniewhite56, @contentandwell, @maurtura @dougmann, @archer8119, @johnbishop and @retiredteacher. Would you all have any thoughts for @vanin11 about the concern with seeing high fasting numbers in the morning?

We also can offer you the opportunity to get an opinion at Mayo Clinic, if that is of interest to you at this time.

Can you tell us a little about your diet and exercise routine that you've found helpful in controlling your numbers?

Jump to this post

Hi @vanin11 it might be best to give them a call. I think these numbers will get the ball rolling for you. You can also get the information you need online at, https://www.mayoclinic.org/forms/international-patient-appointment
It won't cost you anything to provide the information needed and ask. @vdouglas Von

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