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Anyone tried Votrient (pazopanib)?

Posted by laurauhl @laurauhl, Mar 20 9:35am

Votrient was suggested for my dad’s leiomyosarcoma. The side effects look pretty scary. Would appreciate feedback from people who were on it - dose and side effects if any and outcome. Tumor shrinkage?

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bbbrit86 | @bbbrit86 | Aug 19 3:35pm
In reply to @thia1125 "I am so glad I came across this. I have Leiomyosarcoma and feel so alone as..." + (show)
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I am so glad I came across this. I have Leiomyosarcoma and feel so alone as it’s hard to find others that have it. I was recently put on pazopanib as all the other heavy duty chemos were either not working or I hit the lifetime limit. Basically for me the hope is this will work long enough for another treatment or trial to show up on the scene. By body handles chemo exceptionally well but the tumors are not responding. On this new one the biggest issue is blood pressure is skyrocketing and they are having trouble keeping it normal and also I can not be on omeprazole alas it interacts and so my gerd is quite out of control. Otherwise, so far, very few symptoms.

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@thia1125 hey I wanted to check in with you, I have leiomyosarcoma and I am getting put on Pazopanib, was wondering how this is working for you?

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ctflyr | @ctflyr | Aug 20 8:13am
In reply to @bbbrit86 "@thia1125 hey I wanted to check in with you, I have leiomyosarcoma and I am getting..." + (show)
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@thia1125 hey I wanted to check in with you, I have leiomyosarcoma and I am getting put on Pazopanib, was wondering how this is working for you?

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@bbbrit86....Hello....my Wife has been on Votrient and has had good response. Each person will react differently. It's best to start at a low dose initially and not the high dose....definitely not 800mg! My Wife started on 200mg and over time has increased to 600mg. Her side effects are manageable...mostly GI and altered taste. Best wishes for success with your treatment!!

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Colleen Young, Connect Director | @colleenyoung | Sep 1 1:23pm
In reply to @bbbrit86 "@thia1125 hey I wanted to check in with you, I have leiomyosarcoma and I am getting..." + (show)
Profile picture for bbbrit86 @bbbrit86

@thia1125 hey I wanted to check in with you, I have leiomyosarcoma and I am getting put on Pazopanib, was wondering how this is working for you?

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@bbbrit86, did you start treatment with pazpanib? How are you doing?

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juliska32 | @juliska32 | 2 hours ago
In reply to @ctflyr "@bbbrit86....Hello....my Wife has been on Votrient and has had good response. Each person will react differently...." + (show)
Profile picture for ctflyr @ctflyr

@bbbrit86....Hello....my Wife has been on Votrient and has had good response. Each person will react differently. It's best to start at a low dose initially and not the high dose....definitely not 800mg! My Wife started on 200mg and over time has increased to 600mg. Her side effects are manageable...mostly GI and altered taste. Best wishes for success with your treatment!!

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@ctflyr
I am going to start this medication soon. Did your wife have any hair color changes? I just started growing some hair basically peach fuzz, and concerned about the effects on my hair growth. Just want to go back to my old self 🙂

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ctflyr | @ctflyr | 1 hour ago
In reply to @juliska32 "@ctflyr I am going to start this medication soon. Did your wife have any hair color..." + (show)
Profile picture for juliska32 @juliska32

@ctflyr
I am going to start this medication soon. Did your wife have any hair color changes? I just started growing some hair basically peach fuzz, and concerned about the effects on my hair growth. Just want to go back to my old self 🙂

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@juliska32 Hi...my Wife had white hair before starting, so that wasn't a factor. Votrient is known to cause hair thinning and hair whitening, but each person reacts differently. May you be the exception!! Best wishes in your treatment journey!!

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