@becky53, We are happy to have you join us. Like you, I have experienced the blessings that come as a result of our supportive community. I think I might have mentioned that I am a liver/kidney transplant recipient. With that in mind, I have a special place in my heart and my prayers for anyone else going through scans and testing. I'll be sending prayers heavenward for your intentions.
Will you be traveling to Mayo? Let us know if we can be of any assistance related to that.
Rosemary
@becky53, Becky, I looked this up, and want to discuss it further. I have to be somewhere in 30 mins and need to shower, so I will get back to you this evening.
@becky53, Dear Becky, which Mayo Clinic are you going to? If you get an opportunity, try to attend a lung transplant support group there at the Mayo. I go every chance I get. It is reassuring to meet others who have already gone through a lung transplant and see how well they are doing in year 10 and upward. Hugs, -Terri
@becky53, Becky, I looked this up, and want to discuss it further. I have to be somewhere in 30 mins and need to shower, so I will get back to you this evening.
@becky53 these “connect” groups at mayo really are phenomenal. Mayo was not my transplant center, and I cannot say enough good about how mine (MGH in Boston) was but the support on connect is unique I think.
Are you considered high risk because of BMI? When I got listed my BMI was above 30 but I don’t believe I was considered high risk. Maybe BMI criteria is different for lung vs liver. I was transplanted about 14 months ago. By the time of my transplant my BMI was down to around 28 or 29. It’s lower now.
The last 14 months rate up there as the best of my life, so grateful to be alive and healthy.
JK
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@becky53
I'm so pleased to hear that your time on Mayo Connect has been helpful to you! I wish you well as you pursue medical treatment.
Will you keep in touch with us?
Teresa
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1 ReactionThanks Brunches!! And you as well...
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1 Reaction@becky53, We are happy to have you join us. Like you, I have experienced the blessings that come as a result of our supportive community. I think I might have mentioned that I am a liver/kidney transplant recipient. With that in mind, I have a special place in my heart and my prayers for anyone else going through scans and testing. I'll be sending prayers heavenward for your intentions.
Will you be traveling to Mayo? Let us know if we can be of any assistance related to that.
Rosemary
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4 ReactionsThank you RoseMary I'm not sure what is going to happen with my treatment until the 29th.This group is awsome!!
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4 Reactions@becky53, Dear Becky, which Mayo Clinic are you going to? If you get an opportunity, try to attend a lung transplant support group there at the Mayo. I go every chance I get. It is reassuring to meet others who have already gone through a lung transplant and see how well they are doing in year 10 and upward. Hugs, -Terri
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Hug
1 Reaction@becky53 these “connect” groups at mayo really are phenomenal. Mayo was not my transplant center, and I cannot say enough good about how mine (MGH in Boston) was but the support on connect is unique I think.
Are you considered high risk because of BMI? When I got listed my BMI was above 30 but I don’t believe I was considered high risk. Maybe BMI criteria is different for lung vs liver. I was transplanted about 14 months ago. By the time of my transplant my BMI was down to around 28 or 29. It’s lower now.
The last 14 months rate up there as the best of my life, so grateful to be alive and healthy.
JK
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Like -
Helpful -
Hug
1 Reaction