New to Humira

Posted by helloshelly7969 @helloshelly7969, Sep 30, 2017

Hello, just started using Humira along with Methotrexate,prednisone and folic acid to combat RA and OA. Hoping for what to expect other than what the doctor reported. Thanks for your sharing and support!

Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.

Hello @helloshelly7969 - I have PMR and can share that prednisone was the magic pill for me. My first occurrence of PMR over 10 years ago I was put on 20 mg dosage of prednisone and it took me 3 years to taper off. My PMR went into remission for six years and then my PMR came out of remission a year ago last August. I was put back on a dose of 20 mg prednisone which again took care of the pain. I'm now at 5 mg and will trying to lower the dose to 4-1/2 mg next week. The only side effect I have had from the prednisone is some weight gain. The first occurrence it was a real problem for me. The second time around I've learned and changed my eating habits and eat more healthy.

I'm tagging a few other Connect members who have mentioned Humira in their posts - @marylou705, @barens2, @jay_baruch, are you able to share any experience with taking Humira?

John

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@johnbishop

Hello @helloshelly7969 - I have PMR and can share that prednisone was the magic pill for me. My first occurrence of PMR over 10 years ago I was put on 20 mg dosage of prednisone and it took me 3 years to taper off. My PMR went into remission for six years and then my PMR came out of remission a year ago last August. I was put back on a dose of 20 mg prednisone which again took care of the pain. I'm now at 5 mg and will trying to lower the dose to 4-1/2 mg next week. The only side effect I have had from the prednisone is some weight gain. The first occurrence it was a real problem for me. The second time around I've learned and changed my eating habits and eat more healthy.

I'm tagging a few other Connect members who have mentioned Humira in their posts - @marylou705, @barens2, @jay_baruch, are you able to share any experience with taking Humira?

John

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Thank you for your reply and sharing. My experience so far with Humira seems to be similar to when I started Methotrexate. Fatigue and a little depression has been my experience but hopeful that as with Methotrexate these symptoms will stop in time.

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I have also just started on Humira. I Take Prednisone PRN. I am experiencing such fatigue and muscle weakness. I have PsA, but my brother has RA.

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@marylou705

I have also just started on Humira. I Take Prednisone PRN. I am experiencing such fatigue and muscle weakness. I have PsA, but my brother has RA.

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I hear ya. My family asked me what I had for dinner and I realized that I have lost my appetite. Hopefully these will pass soon. See my doc on Monday. Maybe she will have an idea that will help. I will let you know. Rest your mind and breathe, that is my go to during this fatigue. Take care.

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@johnbishop

Hello @helloshelly7969 - I have PMR and can share that prednisone was the magic pill for me. My first occurrence of PMR over 10 years ago I was put on 20 mg dosage of prednisone and it took me 3 years to taper off. My PMR went into remission for six years and then my PMR came out of remission a year ago last August. I was put back on a dose of 20 mg prednisone which again took care of the pain. I'm now at 5 mg and will trying to lower the dose to 4-1/2 mg next week. The only side effect I have had from the prednisone is some weight gain. The first occurrence it was a real problem for me. The second time around I've learned and changed my eating habits and eat more healthy.

I'm tagging a few other Connect members who have mentioned Humira in their posts - @marylou705, @barens2, @jay_baruch, are you able to share any experience with taking Humira?

John

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John, I just responded.

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My daughter just started using Humira. I would just like to know how long it has taken people to feel that it is working and how could they tell?

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Hi, @sandyjr - what you are asking about how long it takes to tell if a new medication is working and how one can tell is a wise question to be asking. I always want to know this, personally, when I start a new medication.

I'm hoping members like @marylou705 @helloshelly7969 @johnbishop and others will have some input for you on this.

I'd also like to point you to some Mayo Clinic information on this medication that might be useful https://www.mayoclinic.org/drugs-supplements/adalimumab-subcutaneous-route/description/drg-20066817.

How is it going for your daughter so far with the adalimumab injection (Humira), sandyjr?

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@sandyjr

My daughter just started using Humira. I would just like to know how long it has taken people to feel that it is working and how could they tell?

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Hi, @sandyjr – I don't have any experience with Humira (adalimumab) but I did find a Medical News Today article that addresses your question.

From the article below - "According to the manufacturer, Abbvie, some people see benefits after 2 weeks, while others may need to take it for 3 months or longer to see an improvement."
Medical News Today -- Humira (adalimumab) and its uses: https://www.medicalnewstoday.com/articles/248215.php

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@sandyjr

My daughter just started using Humira. I would just like to know how long it has taken people to feel that it is working and how could they tell?

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@sandyjr Good morning. You’ve asked a good question. It can be really difficult to tell if a medicine is working unless you can see or feel a difference or if there is an improvement or not in how you feel. If you don’t mind telling us, why is your daughter on Humira?

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She has Crohn’s disease. In September 2018 her Crohn’s, which was in remission, became an issue. She has had several tests and is taking medicine. She had surgery August 2019 and has been on to Entyvio since last spring. It seems to not have worked and now the doctors are trying her on Humira. Since the surgery which corrected her intestinal problem, she has lost all her hair and she now has gout. That was in addition to losing about 35 pounds. I am hopeful that this medicine will help and I was also hoping to hear that someone had experienced a quick response… LOL.

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