Life after HCM Surgery

Posted by positivity @positivity, Sep 29, 2017

I want to share my experience with my HCM and the surgery. I'm 42 year old male and was diagnosed with HCM at age 30. Initially metoprlol worked great for me as gradient (100 to 20) dropped significantly. I used to get cardiologist check up and ultrasound every year and last year I started having more symptoms. Gradient stayed high (85) and climbing stairs and walking became difficult. My cardiologist recommended a surgeon and I met him and he shocked me by recommending a heart transplant. After few days of being in denial stage, me and my wife decided to contact Mayo clinic. We went to Mayo clinic in April 2017 for consultation and met Dr. Oommen and Dr. Shaff.

Finally on Sept 15th 2017 We decided to get the myectomy surgery done. Everything went well and had to stay 5 days after Surgery in hospital and flew back (3 hr flight) on 11th day. We stayed in hotel for few days after hospital discharge. In the hospital I had nausea and taking medication was a big issue. I used to throw up a lot, i had to try tablets with yogurt etc to get it inside. I recovered well and was able to walk few times a day at the hospital. Today i'm on the 14th day after surgery and I have stopped taking pain medication, no pain as such. My sleep is getting better each day and I'm working on breathing to get my lungs do better. Overall I'm so happy I did teh surgery and can already feel the difference.

Interested in more discussions like this? Go to the Hypertrophic Cardiomyopathy (HCM) Support Group.

@vialox

Hi positivity,
glad you feel better after myectomy. I am 7 weeks today after mine. Also was consulted with Dr.Ommen and the surgery done by Dr. Schaff. My recovery was smooth, - so far so good and don't have the symptoms that forced me to look for better option than not working in my case medication (keep my fingers crossed). Hopefully it lasts...

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Thank you so much. You are the 1st person who replied on my freaking out feeling. Thanks so much.

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@klasicnails

Would like to hear of people who have had surgery for this disease

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I had a myectomy at Mayo almost 12 years ago. I wrote about my experiences here:
http://Www.cynthiassummeradventure.blogspot.com

I also write a current informational blog about HCM that has a page of resources for people undergoing myectomy:

http://Www.hcmbeat.com/resources-for-patients-about-myectomy

Hope that helps!

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