diagnosed with Mobile cecum and redundant colon

Looking for others with Mobile Cecum, Redundant Colon, and Ileocecal Valve Displacement

I’m hoping to connect with anyone who has experienced something similar because I feel frustrated, discouraged, and honestly, at a loss as to where to turn next.

Back in 2018, a CT scan showed a possible mobile cecum and swirling of the mesenteric vessels in my right lower abdomen. For years, I have been telling my doctors about the excruciating pain I experience in my lower right quadrant, near where my appendix would be. This is not occasional discomfort; it is severe, deep pain that has been affecting me for years.

I only recently became aware of the 2018 CT findings, including the mobile cecum, after reviewing my previous imaging. Unfortunately, this was never really discussed with me by my gastroenterologist.

Since then, I have undergone multiple CT scans. My most recent CT scan, dated 10/25/2026, describes a redundant colon with the ileocecal valve ectopically located in the left mid abdomen.

I brought these findings to my gastroenterologist because I wanted his opinion and asked whether a referral to a colorectal surgeon or general surgeon might be appropriate.

Unfortunately, I felt that my concerns were completely dismissed. He attributed my pain to stool and constipation and basically indicated that no surgeon would perform surgery for a mobile cecum because many people have this condition.

I left the appointment feeling incredibly upset and discouraged. I have been living with this pain for YEARS, and I feel like no one is looking at the bigger picture or trying to determine why I am experiencing such persistent symptoms.

I understand that not everyone with a mobile cecum needs surgery, but does that mean the symptoms should simply be dismissed? What about the combination of findings on my CT scans, the abnormal positioning of my cecum and ileocecal valve, and the persistent right-sided pain?

I continue to experience significant bloating, trapped gas, and deep right lower abdominal pain that can be triggered by eating, bending, twisting, or certain movements. Passing gas or having a bowel movement sometimes provides relief, but the pain continues to return.

I would really appreciate hearing from anyone who has experienced:

* Mobile cecum with chronic right lower quadrant pain.
* Swirling of the mesenteric vessels on CT.
* Redundant colon with an ectopically positioned ileocecal valve.
* Similar symptoms of bloating, trapped gas, and persistent abdominal pain.
* Whether you were evaluated by a colorectal or general surgeon and what treatment, if any, helped.

Did anyone find a surgeon who took these findings seriously? Was further imaging or surgery recommended?

I am not looking for surgery just for the sake of having surgery. I am looking for answers, someone who will take the time to investigate these findings, and hopefully a way to live without this constant pain.

Thank you to anyone willing to share their experience. I feel very alone in this journey.

Our situations aren't the same, but your description has spurred me along to call my surgeon for the answer to a question I've had for years. I had to have right side colon resection. I had a precancerous (as it turned out) adematous polyp right at the valve. A change in prep routine had revealed it when no previous colonoscopy had. It was obstructing the valve by about 50%. My colon configuration was unusual in that there was no attachment where there normally would be at the junction of the right side and transverse colon. The surgeon said that it was just a matter of pulling the transverse section down and then joining it to the ileum. He didn't say if I lost the valve or not. My problem is that my evening meal triggers violent, painful diarrhea. Only that meal. I've finally started taking loperamide in advance and that helps. I'm resolved to call his office for an answer to that question today. If they had to take the valve, then that might explain my symptoms...

@earle Well, I got a quick AI answer to my question of why now, after eight years. Too long to repeat, but, in all likelihood, I lost the valve and the last section of my ileum. I already had collagenous colitis, so I've lost a lot of water absorption ability in my colon. It suggested Questran (which I hate), in addition to the loperamide...

@lizzie514 I had cramps and vomiting and eventually pain roughly where the appendix would be. I have fully recovered from the surgery, but it took 5 months of diarrhea before I found what worked for me: no dairy, citrucil, and a refrigerated probiotic. I am now off the probiotic and can eat dairy, but try not to overdo it. The only advice I got from the hospital was to take Imodium, which would work for a day or two and then back to diarrhea. One I started the new regimen, took a while for the bowel to take over the duty of the cecal valve to remove the water from the feces. Good luck!