diagnosed with Mobile cecum and redundant colon

Still waiting to see surgeon. appointment is May 20th. And havent heard anything back from the Cleveland Clinic yet either. Still diarrhea everyday. Thank you so much for asking!

I hope you hear something helpful on the 20th. I'm a bit confused if you're waiting to hear from your insurance company or the Cleveland Cl. Maybe someone gave you a time estimate of call? If not, you may want to call them . I've learned the hard way how often get overlooked or lost. Good luck and please post what you learn.

My wife has mobile cecum and has had Digestive and autoimmune issues all her life. I have come to the conclusion that she has had a raging vitamin B12 deficiency for most of her life and that the mobile seek him creates an environment where the ilium has absorption issues for both bile and vitamin B12 which can both be corrected with supplementation. I would recommend you seriously look into B12 and B9 shots but make sure they are the methylated version and not the man-made version, you want to look for methylcobalamin and methylfolate, and avoid folic acid and cyanocobalamin or hydroxycobalamine as you may not be able to absorb these forms. I'm starting to come to the conclusion that most gallbladder surgeries are unnecessary if the only thing they are resolving is a bile absorption issue which it sounds like the ilium is responsible for. I'm hoping someday to have some concrete criteria to post data but until that time all I have is conjecture and ideas but they seem to be helping my wife. I hope this gives you some form of relief or assistance and good luck to you.

Hello! I just recently have bed. Diagnosed with mobile cecum syndrome too.. after 13 years of dealing with the pain and no doctor has been able to figure it out. I’ve felt so alone through this whole thing! When I explain the pain to my friends/family they have no idea what I’m talking about 🙁 i guess I just wanted to connect with someone who knows that pain I go through! It’s excruciating and so isolating since it’s not common!

@marilyns22
I'm thankful you've posted here because I could have written your sentence: "I have a mobile cecum and get excruciating pain in my lower right abdomen and under my left ribcage." doctors have zero advice (or knowledge in the UK, where I live) and just say to take a daily laxative. I wonder what your update is, and if a barium enema with xray is advised. I saw that on another post. Thank you and best wishes!

@makenzienicole you are not alone. I have it, too. People don't realize that when you're in pain, it makes everything a bit of a challenge. I don't like to take drugs so I don't take any pain killers... I figure that just masks pain ~ which is my body communicating. I hope you've found some relief or way of coping. (if so, please share.) best wishes and take care ~

@member8675309 Yes, I am one of those people that had to have emergency surgery for a “twisted bowel”. Also called a cecal volvulus. Funny thing is, I never had any symptoms until 6 hours before we decided it must be appendicitis and went to the er. They did a CT scan and prepped me for surgery immediately. If a ‘mobile cecum’ can indeed become twisted, which stops all movement in the colon and eventually kills you, I would think they would want to do something before it becomes critical. I had to have open surgery because the cecum had already become too large to remove laparoscopocally. And that was after only 6 hours of symptoms. I had never had any digestive problems before and had a normal bowel movement 2 days before. Hope this helps!