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MAC Treatment: When will I see side effects?

Posted by wal6578 @wal6578, Oct 28, 2019

Started a little over a week ago with the "big three" for my mac lung. So far no side effects at all except the orange urine after rifampin dose. Appetite is great with no changes, no fatigue which I have never had even before started taking.

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hoopsnest17897 | @hoopsnest17897 | Oct 23 10:17am
In reply to @jamesthom101 "I started 2 weeks ago along with 3 infusions a week of 1100 of Amikacin. Orange..." + (show)
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I started 2 weeks ago along with 3 infusions a week of 1100 of Amikacin. Orange urine and no other side effects yet from big 3

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@jamesthom101 I took Big 3 for 12 mos 3xweekly and never experienced side effects, thankfully. Hope you have same good outcome.

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roebeau1 | @roebeau1 | Oct 26 10:34am
In reply to @wal6578 "I wrote that question in 2019. I stopped taking the meds a few months after starting..." + (show)
Profile picture for wal6578 @wal6578

I wrote that question in 2019. I stopped taking the meds a few months after starting when I went to Mayo. My Dr told me at Mayo that the antibiotics big 3 should never be subscribed unless you are really bad whuch I was not. He put me on neb treatment. I just went back yesterday and my lungs were almost clear and no sign of Mac. All tests came back negative. I have worked through covid, no longer wear a mask and love yard work and never wear a mask. The key is keeping the lungs clean.

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@wal6578 do you know what was in your nebulizer treatment? Thank you

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jmr69 | @jmr69 | Oct 27 10:06am

This is encouraging news, especially for us that are in "watchful waiting" stage. Helps ease the anxiety associated with hearing the words, "the Big 3".

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