New PARI Nebulizer Options Coming Our Way?

Posted by scoop @scoop, Oct 5 12:45pm

PARI has introduced some new nebulizer products that, for now, appear to be available only in Europe. The new portable PARI BOY Go appears to be available only in Germany at this point.

I’d love to see these products introduced in the USA sooner rather than later, although I realize there are regulatory and other hurdles that have to be cleared first.

It might be possible for someone traveling to Europe or Germany to purchase one or both of these devices, although I don’t know what issues there might be with bringing them back to the USA, power compatibility, warranties, replacement parts, etc.

PARI BOY Go:
https://www.pari.com/int/products/inhalation-devices/pari-boy-go/
eFlow rapid nebulizer system, smaller new controller:
https://www.pari.com/int/products/inhalation-devices/eflow-rapid-nebuliser-system/
If anyone has information or experience with either of these newer products, please post any details here.

Since bronchiectasis is a lifelong condition, it’s encouraging to see continued development of nebulizer technology. Anything that can make our daily treatment routines faster, easier, or more portable could make a meaningful difference in managing the disease over the long term.

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

Profile picture for scoop @scoop

@gigiv and others who purchased Pari Boy GO
I've only used my PARI BOY GO twice so far, so I need a little more time before forming an opinion. However, one thing I've noticed is what appears to be leaking.

I'm not sure whether it's actually leaking or whether the mist from exhaling is condensing into liquid, making it seem that way. Whatever the cause, I find that I need to hold a cloth around the nebulizer to keep my clothing from getting wet.

Has anyone else experienced this? Is this normal for the PARI BOY GO, or could mine be defective?

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@scoop
I noticed 0.5-0.7ml accumulation of my inhalation solution in the space between mouth piece and medication chamber. I aspirated solution out in the sterile syringe & put it back to medication chamber, then nebulized again for 4-5 breath. For leaking, it happened more frequently when I use 7% Sodium Chloride but not large amount. No leaking when I use DuoNeb solution. Try to tilt nebulizer slightly ( 5 degree ? )away from your face while you nebulize to see if it helps. Bong

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Profile picture for lilianna @lilianna

@sueinmn hi Sue. I exercise 10 minutes am after levalbuterol inhalation. I walk during the day pretty fast for two miles. I do 3lb weights while nebulizing( one hand then the other) I make 10000 or more steps a day so I really don’t sit. I have not done specific exercise routine, that’s true except chair yoga at the senior center. Honestly I am not able to vigorously exercise because I am short of breath. The NJH pulmonologist said that I would have to sweat to make exercising move the mucus plugs. So what is your vigorous movement? When I was in Denver in July and had a bronchoscopy, dr Fuentes removed many mucus plugs but of course they form all the time and I really didnt get any advise how to start them moving. I got a prescription for nacetylcysteine nebulization, 12 ml four times a day. Each NAC session takes over an hour plus I do saline twice a day- and even if I tried for two weeks NAC four times a day it did not change anything. Please share how you exercise. I would be grateful.

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@lilianna
Shortness of breath has long been an issue, but I nebulize levalbuterol and/or inhale Symbicort to improve my ability to get the heart rate up.

When I can't get out, I use a treadmill (can set incline & speed) or bicycle (can set resistance) - I go hard & fast to get the heart rate up. Sometimes I have to stop to catch my breath. But even raking, sweeping or mopping can get my heart rate up sometimes.

I find home activities that require position changes help move mucus - like bending and reaching in the garden, or even putting the clothes basket on the floor, grabbing an item and folding it, walking quickly to the drawer and putting away, then repeating - as quickly as possible -can increase heart rate. Emptying the dishwasher one piece at a time and walking/reaching to put things away is another option. Weeding in the garden can be done aerobically too. Yesterday, in two hours, I did 6000 steps putting away lawn art and pulling dying plants and putting them in compost... And it takes 8000-9000 steps over 90 minutes for me or my husband to mow our yard (with water/breath-catching breaks.)
Everything counts! Today we parked several blocks from the doctor's office and walked to and from the appointment.

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Profile picture for Sue, Volunteer Mentor @sueinmn

@lilianna
Shortness of breath has long been an issue, but I nebulize levalbuterol and/or inhale Symbicort to improve my ability to get the heart rate up.

When I can't get out, I use a treadmill (can set incline & speed) or bicycle (can set resistance) - I go hard & fast to get the heart rate up. Sometimes I have to stop to catch my breath. But even raking, sweeping or mopping can get my heart rate up sometimes.

I find home activities that require position changes help move mucus - like bending and reaching in the garden, or even putting the clothes basket on the floor, grabbing an item and folding it, walking quickly to the drawer and putting away, then repeating - as quickly as possible -can increase heart rate. Emptying the dishwasher one piece at a time and walking/reaching to put things away is another option. Weeding in the garden can be done aerobically too. Yesterday, in two hours, I did 6000 steps putting away lawn art and pulling dying plants and putting them in compost... And it takes 8000-9000 steps over 90 minutes for me or my husband to mow our yard (with water/breath-catching breaks.)
Everything counts! Today we parked several blocks from the doctor's office and walked to and from the appointment.

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@sueinmn thank you Sue. You are active. When I was at the pulmonary sessions the therapist said to use the inhaler proactively, before the exercise. So how many times a day do you allow yourself to use levalbuterol? I used it three four times before I started using Dupixent. Now after two months it’s much better probably the inflamation decreased. How much do you let yourself to strain and when do you know your limits? Thank you

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Profile picture for lilianna @lilianna

@sueinmn thank you Sue. You are active. When I was at the pulmonary sessions the therapist said to use the inhaler proactively, before the exercise. So how many times a day do you allow yourself to use levalbuterol? I used it three four times before I started using Dupixent. Now after two months it’s much better probably the inflamation decreased. How much do you let yourself to strain and when do you know your limits? Thank you

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@lilianna I use Symbicort (LABA combo) 2-3 times daily instead of levalbuterol. Rarely use levalbuterol - maybe 1-2 times a month.
I exert, huff and puff, push myself quite hard - it seldom stops me because shortness of breath has been my status quo for over half my life, so sometimes I don't even notice. For example, today after a bunch of other yard work, I started mowing - when I got short of breath, I just slowed down - way down - and realized my O2 must be a little low, but I finished the patch. Then I sat down, drank some water and rested until my respiration was normal - it took about 10 minutes.
I realize my way is not for everyone, but I'm a stubborn old lady.

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Profile picture for bkim408 @bkim408

@scoop
I noticed 0.5-0.7ml accumulation of my inhalation solution in the space between mouth piece and medication chamber. I aspirated solution out in the sterile syringe & put it back to medication chamber, then nebulized again for 4-5 breath. For leaking, it happened more frequently when I use 7% Sodium Chloride but not large amount. No leaking when I use DuoNeb solution. Try to tilt nebulizer slightly ( 5 degree ? )away from your face while you nebulize to see if it helps. Bong

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@bkim408 does the accumulation of the inhalation solution in the space between the mouthpiece and chamber happen often? Would I have to purchase sterile syringes to use this?
Also, how much of the hypertonic saline solution does it use? (I think I read that the Paro E-Flow Rapid uses only 3 ml.). I have 4 ml vials of 7%. If I put in all of the 4 ml, is there more of a chance of leaking? The leaking concerns me.
Thank you!

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Profile picture for Sue, Volunteer Mentor @sueinmn

@lilianna I use Symbicort (LABA combo) 2-3 times daily instead of levalbuterol. Rarely use levalbuterol - maybe 1-2 times a month.
I exert, huff and puff, push myself quite hard - it seldom stops me because shortness of breath has been my status quo for over half my life, so sometimes I don't even notice. For example, today after a bunch of other yard work, I started mowing - when I got short of breath, I just slowed down - way down - and realized my O2 must be a little low, but I finished the patch. Then I sat down, drank some water and rested until my respiration was normal - it took about 10 minutes.
I realize my way is not for everyone, but I'm a stubborn old lady.

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@sueinmn good morning Sue. You are stubborn but you survive on this. Well the weather is perfect in the Chicago area so I rode a bike yesterday, for an hour. It did not improve my mucus but it made me feel better. I have in mind your words about small faster movements and hope one day something works for me because I really tried everything what I heard about or told to do. Anyway thank you for your kind words and I wish happy time in your garden.

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Profile picture for cavlover @cavlover

@bkim408 does the accumulation of the inhalation solution in the space between the mouthpiece and chamber happen often? Would I have to purchase sterile syringes to use this?
Also, how much of the hypertonic saline solution does it use? (I think I read that the Paro E-Flow Rapid uses only 3 ml.). I have 4 ml vials of 7%. If I put in all of the 4 ml, is there more of a chance of leaking? The leaking concerns me.
Thank you!

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@cavlover
If you're someone who likes/needs to nebulize every last drop of saline, I suspect the PARI BOY Go may not be for you. As @bkim408 mentioned, it does leave a small amount of residual saline in the mouthpiece. The eRapid also leaves some residual saline, but with a few gentle shakes of the handset toward the end, I can nebulize virtually all of it.

The PARI BOY Go is an excellent travel solution because of its compact size, speed, and the fact that there are only two parts to sterilize. It must be held upright to prevent leaking.

For me, nebulizing is a means to an end. Its purpose is to help mobilize mucus so I can move on to the essential part, airway clearance.

REPLY
Profile picture for cavlover @cavlover

@bkim408 does the accumulation of the inhalation solution in the space between the mouthpiece and chamber happen often? Would I have to purchase sterile syringes to use this?
Also, how much of the hypertonic saline solution does it use? (I think I read that the Paro E-Flow Rapid uses only 3 ml.). I have 4 ml vials of 7%. If I put in all of the 4 ml, is there more of a chance of leaking? The leaking concerns me.
Thank you!

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@cavlover. My Pari Boy Go accumulates 0.5-0.7ml of nebulizer solutions in mouth piece area every time when I use. When I use sodium chloride it leaks but not bad. I have used Phillips Mesh nebulizer, Aura mesh nebulizer, Omron NU- E 100 Micro Air nebulizer, and Pari E Rapid Nebulizer. To me, Pari Baby Go seems best to use while travel because it is small & easy to sterilize while travel. I am going to use Pari Boy Go for Duoneb & Pro Neb Max for 7 % saline at home.

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Profile picture for scoop @scoop

@cavlover
If you're someone who likes/needs to nebulize every last drop of saline, I suspect the PARI BOY Go may not be for you. As @bkim408 mentioned, it does leave a small amount of residual saline in the mouthpiece. The eRapid also leaves some residual saline, but with a few gentle shakes of the handset toward the end, I can nebulize virtually all of it.

The PARI BOY Go is an excellent travel solution because of its compact size, speed, and the fact that there are only two parts to sterilize. It must be held upright to prevent leaking.

For me, nebulizing is a means to an end. Its purpose is to help mobilize mucus so I can move on to the essential part, airway clearance.

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@scoop can you share you essential part of airway clearance- what do you do after NaCl nebulization

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Profile picture for lilianna @lilianna

@scoop can you share you essential part of airway clearance- what do you do after NaCl nebulization

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@lilianna
Huff coughing by day, Aerobika by night

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