Treatments for Lichen sclerosis besides steroids

Posted by ret18 @ret18, Jan 31, 2018

Anything out there that works other than steriods

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zinnia55 | @zinnia55 | Sep 29 7:31pm

In reply to @pamelasue1953 "@2thfairy I have found Ozonated Coconut Oil to be a God Send!!! My flare ups have..." + (show)

@pamelasue1953 What brand do you use?

painsurvivor | @painsurvivor | Sep 30 9:31am

In reply to @jade437 "Hi... I have been taking Acidophilus tablets quite by accident and have found my itching and..." + (show)

@jade437 Thank you so much for relating this experience. I have lichen sclerosis under pretty good control with use of clobetesol. I know that using that all the time causes thinning of the skin. I''m so happy to find out about the ozonated coconut oil and now this acidophilus reducing itching. I'm eager to see if it stems itching in other locations, because I routinely break out in intense itching all over my body and have to use a special shampoo because of an unidentified cause of itching of my scalp. Thank you, thank you!! I will post how they work for me.

rashida | @rashida | Oct 1 4:50am

In reply to @jade437 "Hi... I have been taking Acidophilus tablets quite by accident and have found my itching and..." + (show)

@jade437 where do you get the acidophilus tablets? Do you know if acidophilus is available in capsule or gelcap form?

painsurvivor | @painsurvivor | Oct 1 7:22am

In reply to @painsurvivor "@jade437 Thank you so much for relating this experience. I have lichen sclerosis under pretty good..." + (show)

@painsurvivor I just checked the two items, the ozonated coconut oil and the acidophilus. They are both so expensive--a lot to spend monthly. Since my condition is under good control, I'm sticking with the clobetasol, which works and is much less expensive.
I do want to mention that I do not use soap to wash that area. I just clean thoroughly with water in the shower. The condition improved greatly when I stopped using soap.
Best wishes to all and success getting the condition under control.

rbush54 | @rbush54 | Oct 1 10:26pm

In reply to @painsurvivor "@painsurvivor I just checked the two items, the ozonated coconut oil and the acidophilus. They are..." + (show)

@painsurvivor
I agree 100% about not using soap in cleaning that particular area. I just spray area with water from the extended shower head I have. Much improved without the soap.

sap52203 | @sap52203 | Oct 8 7:44am

In reply to @suzeebee227 "I need to know more about lichen sclerosis and the best ointments to use. Also, if..." + (show)

@suzeebee227
I have used Emuaid for the past several years. Amazing product. Cuts the itching. Heals my flare ups and works for a number of skin issues. A little costly but I just skip a couple dinners out and works in my budget. Fixed invoke.
Have a nice day!!

stejomeld27 | @stejomeld27 | Oct 8 4:34pm

I too suffer from LS. But I am interested in mitochondrial diseases. Is that an autoimmune disorder or a mutated gene?

2thfairy | @2thfairy | Oct 11 10:47am

In reply to @stejomeld27 "I too suffer from LS. But I am interested in mitochondrial diseases. Is that an autoimmune..." + (show)

@stejomeld27
It’s thought to be autoimmune, but it’s still unknown.

painsurvivor | @painsurvivor | Oct 12 7:10am

In reply to @sap52203 "@suzeebee227 I have used Emuaid for the past several years. Amazing product. Cuts the itching. Heals..." + (show)

@sap52203 Thanks for this information!
Which Emuaid product do you use that works so well?

echapman | @echapman | Oct 13 5:29am

Also mentioned earlier in this post is Lisepten. It's what I use and I like it much better than other things I've tried.

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