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National Jewish NTM & Bronchiectasis 2026 Recordings

Posted by becleartoday @becleartoday, Sep 24 7:56pm

Playlist of all presentations from NJH's 2026 patient conference

https://youtube.com/playlist

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

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irenea8 | @irenea8 | Sep 29 8:37am
In reply to @scoop "@sueinmn That's a good reminder to follow the directions! My theory is that the gold contacts..." + (show)
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@sueinmn
That's a good reminder to follow the directions!

My theory is that the gold contacts on the InnoSpire Go nebulizer need to be cleaned with rubbing alcohol after each use to maintain connection. And using a baby bottle sterilizer is verboten. It seems to warp the plastic a bit and who knows what it does to the mesh head. The instructions explicitly say, "no steam sterilization". I have 2 still in top notch condition, thankfully. They get boiled for sterilizing.

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@scoop
I wonder if the Bololo makes sprint cups and Aerobika wear out sooner. I sure do not want to go back to boiling!

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ingrid1947 | @ingrid1947 | Sep 29 8:47am
In reply to @wangling "@scoop, Does your own experience prove that it is enough? I am doing the same. So..." + (show)
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@scoop, Does your own experience prove that it is enough? I am doing the same. So far so good. Keep my fingers crossed. But I totally understand, with this disease we will never be fully confident no matter what we do. It is sad, isn't it?
Best!
Ling

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@wangling
Does anyone have an opinion about cleaning a showerhead if the person with NTM doesn't use it? I use another bathroom and take tub baths. I don't go into the shower bathroom when it's steamy. Is that good enough? Thanks

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scoop | @scoop | Sep 29 10:48am
In reply to @irenea8 "@scoop I wonder if the Bololo makes sprint cups and Aerobika wear out sooner. I sure..." + (show)
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@scoop
I wonder if the Bololo makes sprint cups and Aerobika wear out sooner. I sure do not want to go back to boiling!

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@irenea8
I think it's the mesh head on the eRapid eFlow that takes a beating. The plastics in sprint/aerobika etc seem durable but your experience is best guidance. If your treatments start taking longer, then replace. Manufacturers recommend replacement every 3 months or something ridiculous! Clearly, they are not in our shoes....

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irenea8 | @irenea8 | Sep 29 11:43am

Is it 6 months for the sprint and 1 year for the Aerobika. Seems reasonable enough considering BE. Last night my Bololo never shut off by itself! The fan was running when we got up and it was warm. My stuff must have really taken a beating! I hope I will not have to replace them early.

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