Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

Profile picture for judy1951 @judy1951

Thank you, so much! I have chronic back pain and sciatic nerve pain down my leg. Some days are great…and others bring tears to my eyes…but, I know that God will always lift me up and carry me through! I am glad to have found your group!

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@judy1951 What non-invasive and invasive treatments have you tried? There are quite a few out there that might help you. Be blessed!

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Profile picture for truyank @truyank

Hi I am truyank and this is one of several groups I have recently joined. Seeking info, suggestions and support

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@truyank support for what?

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the post is just posted now
Christine

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Profile picture for heisenberg34 @heisenberg34

@judy1951 What non-invasive and invasive treatments have you tried? There are quite a few out there that might help you. Be blessed!

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@heisenberg34. I have had multiple fusion surgeries., I am fused from L3 to S1.

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Profile picture for jenatsky @jenatsky

@truyank support for what?

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@jenatsky
I have severe lumbar stenosis with siatica and intermittent leg pain and numbness. I also have some vascular issues which cause leg and thigh pain.

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Profile picture for truyank @truyank

@jenatsky
I have severe lumbar stenosis with siatica and intermittent leg pain and numbness. I also have some vascular issues which cause leg and thigh pain.

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@truyank you’re just like the rest of us. Physical ailment without a cause as yet. Sounds like peripheral neuropathy to me. I have the same except for the intermittent leg pain which I don’t have. Like Judy I’m fused L4-S1. Vascular issues is a whole other bunch of issues because decreased circulation to legs is a bigger issue. What are your plans going forward?

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Profile picture for judy1951 @judy1951

@heisenberg34. I have had multiple fusion surgeries., I am fused from L3 to S1.

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@judy1951 You might try looking to do a trial of a spinal cord stimulator. It worked well for me.

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Hi Kelsey et al, I’ve been in the Mayo connect for a long time. Now unfortunately I have a new affliction. Transgeminal neuralgia. I was having dental surgery and my jaw was hyper extended for a an extended period of time. The first lightening episode was the the night after surgery. Had no idea what it was. I do now. I’m in denial. 20 years of CRPS for multiple reasons and now this. How can I handle 2 syndromes nicknamed the suicide disease?

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Profile picture for caregeraci15 @caregeraci15

Hi everyone! My name is Care and I've had chronic bilateral leg and foot pain for the last 9 years. I've seen many different doctors, had surgery on my spine XRays, CT Scans, epidural injections and pain medicine. I was dropped from my last pain specialist because they no longer accept my insurance. I have an appointment with a new pain specialist in July 8th and I'm very encouraged because this group offers many different modalities and they don't just throw pain meds at you like the two I had in the past. The problem I see is no doctor except my neurosurgeon tried to determine the cause of my leg pain. My pain varies from day to day. I take Oxycodone 5mg Q6H down from 10 mg. My friend, a nurse practitioner, figured out that taking 10mg of Oxycodone was actually having the opposite effect causing me more pain so I cut my dose in half and I'm getting some relief coupled with Tizanidine. Thanks everyone for your interest in my chronic pain. I'll keep you posted on how my appointment goes with my new pain specialist. One more thing. I'd like to be able to go off pain medication entirely and rely on other ways to control my leg pain if they can't determine the cause!

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@caregeraci15 Hi, Care! I, ŧoo, struggle with chronic pain- peripheral neuropathy in both legs and my legs and my left hand. They thought I had Charcot-Marie-Tooth disease, but after doing genetic testing, I don't, so we're back to square one. I take Lyrica and it genuinely helps. It's technically a controlled substance, but it's not a narcotic. I'm here if you want or need to talk 😊

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I've had chronic pain for 20 yrs. 1st diagnosed as CPS. which is a blanket statement for they don't have a clue.
A yr. ago a got severe dry mouth from medication interaction. Since that time I have this feeling of strings in my mouth surrounding my teeth but, dentist, Oral surgeon see nothing there. They say it is probably neurological ( maybe trigeminal neuropathy, burning mouth syndrome or something form of Sjorgrens. It drives me insane. Eating is torture and no one has been able to solve or help me. There are times that I feel that I just want to die.

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