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Living with Neuropathy - Welcome to the group
Welcome to the Neuropathy group.
This is a welcoming, safe place where you can meet other people who are dealing with neuropathy. Let’s learn from each other and share stories about living well with neuropathy, coping with the challenges and offering tips.
I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by volunteer patient Mentor John (@johnbishop) and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.
We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let’s chat. Why not start by introducing yourself? What concerns would you like to talk about?
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Welcome @kenfish99, Sorry to hear you have also spent a lot money on scam treatments. I can tell you that you are not alone there 🙃. The problem with neuropathy treatments is that one treatment may work for some people but not everyone which is why a lot of us are still looking for something that helps. If you haven't already seen it, the Foundation for Peripheral Neuropathy has a list of different treatments including complementary and alternative therapies that might be worth scanning through - https://www.foundationforpn.org/treatments/.
Have you been diagnosed with a specific type of neuropathy?
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1 Reaction@johnbishop
Yes I am doing balance exercises . I do them here at home. At the gym and also Physical therapy.
I saw my doctor on Friday and he gave me a script for Levadopa.
I am hesitant to use it because of some of the side effects.
He also ordered bloodwork. I will do that .
I am not going to get the medicine,
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2 Reactions@gracienlola25
Dr@johnbishop thanks for questioning me. No I haven’t seen a doctor yet. I am 79 and rarely see a doctor. I don’t even know what kind of a specialist to see? My mother died during the covid isolation episode with her feet rotting on her at 92. She had severe varicose veins most of her life and had them stripped; mine are minor, but the incident of loosing my feet, i’d rather not repeat. I would like to know who to see and any tests that can help in diagnosis. Thanks again Dr. Bishop or Ken Fish99
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1 Reaction@silverwind - I’m a patient like you, not a doctor. I would look for a specialist in vascular medicine or possibly a neurologist. If you have a teaching hospital or major health facility like Mayo Clinic, it would be a good place to get checked.
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1 ReactionThank you for the comments and exchanges. Such an empathetic & helpful community.
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1 ReactionI am getting new orthotics as the old ones are TOO old. Would like to hear the shoes that work for you. I was once a runner 34 years on the road with one marathon completed.
When my hip said it was time to stop, walking became my new “running”. Lately, with discomfort down the middle of both feet, I am having trouble finding the best shoe for walking. I have bunions and am flat footed so obviously all of my shoes are wide.
Suggestions?
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1 Reaction@bythesealove here are a couple of discussions where members have shared their favorites:
-- Does anyone find that a type of shoe helps your foot neuropathy?
https://connect.mayoclinic.org/discussion/does-anyone-find-that-a-brand-of-shoes-helps-your-foot-neuropathy/
-- If the shoe fits, wear it!
https://connect.mayoclinic.org/discussion/if-the-shoe-fits-wear-it/
My neuropathy is from my lower back L4. I spent lots of $ on cures. Currently Medicare covers 16 visits of acupuncture. I'm on #5 once a week. Seems to relax my legs. I do get night cramps. My metatarsals and calf's and ankles are affected by this.