Living with Neuropathy - Welcome to the group

What is polyneuropathy?

I’m frustrated with my neuropathy! There doesn't seem to be any valid help. There’s creams, ointments , pills, therapy - nothing works, just a money grabber and false hope. I have diabetes & suffered a bit with neuropathy in my feet. However, ever since I broke my femur, 3 yrs ago, of which I’ve had lots of therapy, & still using a walker, my walking has gotten worse from the neuropathy going up my legs. My legs are weak & painful, I tire easily. Can any doctor help or will I soon be using a wheelchair?

Am a new member I am looking for some information about the tingling in my hands and feet.
My ability to use my hands is undergoing adjustment due to the bruising & pain I feel in even
doing routine housework. This has come about more suddenly than gradually. I haven't yet been
diagnosed as having neuropathy but was recently in the hospital (low sodium, fatigue) which may
have underlying causes. Lab tests show abnormality in my metabolism. My doctor did not know what was causing this tingling.

I am interested in the support group for information. Reading the questions/issues in this group
is not only informative but shows my lack of knowledge re neuropathy & possibly its causes.

Hello @jsfreeley and @jeanni, Welcome to Connect. You are not alone when it comes to dealing with neuropathy. The best thing you can do for yourself is learn as much as you can about the condition and what treatments are available that might provide some relief for your neuropathy symptoms and Connect will help you do that by learning from the experiences shared by other neuropathy patients. I shared my neuropathy journey in another discussion here - https://connect.mayoclinic.org/comment/310341/.

@jsfreely, here's a good video that explains what polyneuropathy is - https://www.youtube.com/watch. You might also want to scan through the other discussions and member comments that mentioned polyneuropathy. Here's search of Connect with links to the different discussions and comments - https://www.youtube.com/watch. There are definitely a lot of scams promising neuropathy cures, so it pays to do some research before buying. Sorry to hear that your walking has gotten worse. I'm not sure anyone can answer your question on the future with a wheelchair. That has been in my mind for sometime and I just keep working on staying mobile with daily exercises to hopefully maintain my leg strength.

@jeanni, here's a search of Connect listing discussions and comments that mention tingling in hands and feet - https://connect.mayoclinic.org/search/.

My name is Amy LaFleur. This summer I have been having trouble with pain in my feet. Along with the pain in my feet I have had balance issues. Does that go along with neuropathy? What vitamins help with neuropathy and numbness in the feet ?

@johnbishop i am new so i hope this is the right place to type. I’m not sure if i have neuropathy problems. My feet are cold and numb particularly on top. At night i wake up after 3-4 hours of sleeping with a buzzing sore feeling. Sometimes in my arms, legs, neck or all over. Cramps are in my legs and feet sometimes. If i get up, it all goes away though my feet can still be cold and feeling funny. Is this neuropathy?

@jeanni Looks like you may need to have an EMG to determine if your symptoms are a result of peripheral neuropathy. Neurologists typically perform this test.

Welcome @silverwind, The symptoms you describe could be neuropathy or possibly other causes like blood flow/circulation issues or benign leg cramps. Have you talked with a doctor about testing for possible nerve damage or vascular problems?

I’ve been dealing with neuropathy for over 5 years and I’m not a diabetic…I’ve spent so much money on scam treatments..the VA tells me it’s not connected with Agent Orange..would like to know what you see as the best treatment to keep my legs under me…

Hello Amy @gracienlola25, I see that you have been a member for awhile but this is your first post so wanted to welcome you to Connect. I don't have pain in my feet with my neuropathy but do have numbness along with balance issues. I do take most of the vitamins and supplements listed here here in hopes that it will stop or slow the progression of my neuropathy but I still have the numbness.
-- Vitamins and Supplements for Nerve Health:
https://www.foundationforpn.org/vitamins-and-supplements-for-nerve-health/
I've been taking them for over 10 years but my numbness hasn't improved much but it also hasn't gotten any worse which is what I was told it would do by my neurologist when I was diagnosed in 2016 with idiopathic small fiber peripheral neuropathy. They also don't help much with the balance so I try to help that with balance exercises and daily exercises to maintain leg strength.

Have you tried any balance exercises to see if they might help?