Connect
Living with Neuropathy - Welcome to the group
Welcome to the Neuropathy group.
This is a welcoming, safe place where you can meet other people who are dealing with neuropathy. Let’s learn from each other and share stories about living well with neuropathy, coping with the challenges and offering tips.
I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by volunteer patient Mentor John (@johnbishop) and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.
We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let’s chat. Why not start by introducing yourself? What concerns would you like to talk about?
Like
Helpful
HugInterested in more discussions like this? Go to the Neuropathy Support Group.
Connect
What is polyneuropathy?
I’m frustrated with my neuropathy! There doesn't seem to be any valid help. There’s creams, ointments , pills, therapy - nothing works, just a money grabber and false hope. I have diabetes & suffered a bit with neuropathy in my feet. However, ever since I broke my femur, 3 yrs ago, of which I’ve had lots of therapy, & still using a walker, my walking has gotten worse from the neuropathy going up my legs. My legs are weak & painful, I tire easily. Can any doctor help or will I soon be using a wheelchair?
Am a new member I am looking for some information about the tingling in my hands and feet.
My ability to use my hands is undergoing adjustment due to the bruising & pain I feel in even
doing routine housework. This has come about more suddenly than gradually. I haven't yet been
diagnosed as having neuropathy but was recently in the hospital (low sodium, fatigue) which may
have underlying causes. Lab tests show abnormality in my metabolism. My doctor did not know what was causing this tingling.
I am interested in the support group for information. Reading the questions/issues in this group
is not only informative but shows my lack of knowledge re neuropathy & possibly its causes.
Hello @jsfreeley and @jeanni, Welcome to Connect. You are not alone when it comes to dealing with neuropathy. The best thing you can do for yourself is learn as much as you can about the condition and what treatments are available that might provide some relief for your neuropathy symptoms and Connect will help you do that by learning from the experiences shared by other neuropathy patients. I shared my neuropathy journey in another discussion here - https://connect.mayoclinic.org/comment/310341/.
@jsfreely, here's a good video that explains what polyneuropathy is - https://www.youtube.com/watch. You might also want to scan through the other discussions and member comments that mentioned polyneuropathy. Here's search of Connect with links to the different discussions and comments - https://www.youtube.com/watch. There are definitely a lot of scams promising neuropathy cures, so it pays to do some research before buying. Sorry to hear that your walking has gotten worse. I'm not sure anyone can answer your question on the future with a wheelchair. That has been in my mind for sometime and I just keep working on staying mobile with daily exercises to hopefully maintain my leg strength.
@jeannim, here's a search of Connect listing discussions and comments that mention tingling in hands and feet - https://connect.mayoclinic.org/search/.